I tested positive for Lyme via Igenex in 5/2016, Bartonella in 3/2016 and likely Babesia. (In retrospect likely had for a decade or more.) I had severe symptoms starting in 7/15. I did abx for 12 weeks targeting Bartonella 5/16-8/16. .
For the 4 weeks post abx for Bart I was better but still only about
60% me. Had been on herbal treatments but was only minorly functioning as me. (example-- couldn't raise arms to get plates/cups from cabinets, couldn't stand through shower, couldnt put my hair in a ponytail, INCREDIBLE pain standing/sitting/climbing stairs, lots of anxiety and 'world coming to an end' level of fears.)
My Lyme-N experience: NOTE: I used the loading dose regimen and loading huffing method of nebulization.
48-72 hours I felt immensely better: energy, clarity, joint pain all were so much better. I continued on as prescribed but sort of down shifted. My LLMD in consult with Largo Science team had me extend treatment into mid Feb. My clarity and mojo as me were largely back but I still had great pain in my large muscles and some cycling of previous symptoms.
It was suggested I could continue then with Lyme N. I chose (not due to any unhappiness with Lyme-N results) to d/c Lyme-N and focus on detoxification.
Ninety days out +/- I remain so much better than I was! I do have cycling of symptoms-- very strange-- I have chills (likely Bart) and every symptom I've had over the past two years rapidly cycles through me lasting maybe 2-4 minutes each (some joint pain is quite severe but brief) and usually finishing with panic/anxiety/fear attack. I finally get very hot and sweaty, sleep it off and am back to where I was. This appears to be aligning with a pattern in my menstrual cycle.
I believe the Lyme N is still supporting my recovery and think that I will continue to see an overall upward trajectory in my health. (Note I'm GF, largely paleo and I got a tabletop Berkey water filtration cauldron for Christmas (really check it out-- I'm quite sold on its benefits!)
Most of my pain seems related to detox-- though I still have some pretty bad knee joint pain. Most of my pain feels almost like inflamed muscles-- so I'm chasing inflammation at the moment.
Would I do Lyme-N initially again?? Absolutely! It was well worth the money-- and less than my lab bill from igenex!
Will I do it again?? There seemed to be a sense within the community that this was an immediate cure-all....and some people, particularly kids do seem to have had that response. There's also plenty of indication that this is a formula that works with your body to allow your own body to takeover 'maintenance' and that some people are needing a little support months out. If that seems to be the best course for me, I will do it.
Yes-- it looks like iodine and tastes like iodine-- but I believe that is merely the carrier ion. (In unrelated experimental nebulizer trials for other illnesses in EU, iodine is the carrier of choice.)
I completely concur with anyone gnashing their teeth that GRAS is really not a substitute for knowing the ingredients and I dont buy their story that it's like the secret seasoning recipe for KFC. But if you will let yourself get past that and the crazy disclaimers you must sign, you really may find the relief for which you've searched. My story (as well as all the ones out there) is anecdotal.But I personally know of twenty people who have been helped by Lyme-N. Hope this helps in your information gathering.
Post Edited (blimeylimeymaggie) : 5/25/2017 6:11:54 PM (GMT-6)