Bill to combat Lyme disease heads to Pres. Obama for signature

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mpost
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   Posted 12/8/2016 9:02 AM (GMT -7)   

PeteZa
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   Posted 12/8/2016 9:44 AM (GMT -7)   
Personally, the more it gets in the news the better!! And maybe this will get monies for better testing and someone will work on a cure or another vaccine.
My healing story --
www.healingwell.com/community/default.aspx?f=30&m=3698803

reminder
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Date Joined Dec 2015
Total Posts : 467
   Posted 12/8/2016 10:04 AM (GMT -7)   
They are finally realizing......it never goes away....never.

So they should try to figure this out.....


r
Started with muscle waste (weight loss)and digestive issues,malaise,brain fog,fatigue.Kidney functions started to decrease.A Lyme Dr diagnosed me October 2015,Lyme,Mycoplasma,Candida,possible Bart...could be more,time will tell.Meds..pulsed Azithro..Rifampin w Flucozanole every few days.Fatigue,brain fog,anxiety,blurred vision always approaches mid afternoon,sometimes fades,sometimes until bed.

Sissy63
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Date Joined Oct 2016
Total Posts : 231
   Posted 12/8/2016 11:51 AM (GMT -7)   
Interesting! Prevention seems like a lofty goal, but one I am hoping they shoot for. Right now I just wish the CDC and insurance companies would recognize the extent of it so people can get treatment. It is such an expensive disease!

njfillet
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Date Joined Aug 2016
Total Posts : 151
   Posted 12/8/2016 12:44 PM (GMT -7)   
The unfortunate part of this is...what exactly does it mean? Not much.

I don't want the government agencies even more involved in "monitoring and control" or oversight of anything. This just creates more layers of bureaucracy and is why we are in this predicament.

mpost
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Date Joined Feb 2015
Total Posts : 1167
   Posted 12/8/2016 1:17 PM (GMT -7)   
njfillet said...
The unfortunate part of this is...what exactly does it mean? Not much.

I don't want the government agencies even more involved in "monitoring and control" or oversight of anything. This just creates more layers of bureaucracy and is why we are in this predicament.


more funds for research + easier to test drugs on people that suffer of chronic conditions that are usually deadly or produce a very poor quality of life.

i think it's good. there are lots of desperate people around, and yeah thats a good way to make money, but at least do it in an organized manner, not by letting people experiment on themselves all sorts of things, without keeping good record of whats working and whats not.... like we sometimes are forced to do :(

njfillet
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Date Joined Aug 2016
Total Posts : 151
   Posted 12/8/2016 2:04 PM (GMT -7)   
mpost said...
njfillet said...
The unfortunate part of this is...what exactly does it mean? Not much.

I don't want the government agencies even more involved in "monitoring and control" or oversight of anything. This just creates more layers of bureaucracy and is why we are in this predicament.


more funds for research + easier to test drugs on people that suffer of chronic conditions that are usually deadly or produce a very poor quality of life.

i think it's good. there are lots of desperate people around, and yeah thats a good way to make money, but at least do it in an organized manner, not by letting people experiment on themselves all sorts of things, without keeping good record of whats working and whats not.... like we sometimes are forced to do :(


Sorry, didn't mean to sound so negative. I know it will contain good provisions, or at least help clear the way for better provisions in the future. Overall it's a positive step. I just get so disappointed sometimes with these bills that contains so much government speak that they end up not really meaning anything, or certain provisions aren't binding, etc.

dacarte3
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Date Joined Feb 2016
Total Posts : 1658
   Posted 12/8/2016 3:52 PM (GMT -7)   
"The U.S. Senate passed legislation to combat Lyme and other tick-borne diseases."

It's not a tick-borne illness, it's a "vector" borne illness. It simple things like this that keep me pessimistic. At least understand borrelia infection well enough to know it's not just from ticks.

"“Our families should be able to enjoy nature without the fear of possibly contracting this disease.”

It doesn't just happen in "nature". tens of thousands of people have lyme and it didn't happen in "nature". Also, "nature" is called Earth. Outside is "nature". Once again people believing the myths of lyme keeps me pessimistic.
Lyme: Igenex IFA positive and Igenex Westernblot band 31 and 41
Ehrlichia: Positive (Igenex)
Mycoplasma: Positive (Labcorp)

ABX Treatment: 03/2016-04/2016
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Present

multifacetedme
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Date Joined Jan 2016
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   Posted 12/8/2016 3:56 PM (GMT -7)   
Good discussion!
Lyme Forum Moderator: IGEN-X IGM ++ band 41, ind band 31 IGg, ind band 41. Clinical diagnosis of lyme by CMD and Naturopath. Used Herbal protocol: Buhner, Chinese herbs, Zhang herbs, support from this community. Symptoms 90% reduced with flare-ups. Targeted in this order: lyme, bart, babesia, cysts/bio-films, candida & fungus, back to lyme and bart

gfields
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Date Joined Oct 2015
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   Posted 12/8/2016 4:35 PM (GMT -7)   
Not to be a negative Nancy, but I really don't trust government to cure anything. As a matter of fact, the government is sole reason why lyme disease ISN"T cured today. They keep pushing this FAKE NEWS that lyme disease is not a big deal, and you take a month's worth of abx and you're cured.

I'm sorry, but the only people who are going to cure anything are scientists in their basements working on a cure like Dr. MacDonald. Folks like this are our only hope for a cure. Don't hold your breath for gov't to cure anything. They've been trying to cure cancer for 70 years. They've probably found cures 7 times over, but they get swept under the rug. They don't WANT to cure cancer, just like the don't WANT to cure lyme disease. They just want you to give your $$ to big pharma.

dacarte3
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Date Joined Feb 2016
Total Posts : 1658
   Posted 12/8/2016 4:41 PM (GMT -7)   
I agree with a lot of what you are saying gfields.

Also, what is a "cure". I think the colloquial definition is the pathogen being 100% completely eradicated and no longer in the body. However this definition of "cure" doesn't exist, for anything. The medical/scientific definition is "relief of symptoms". That's it. Nothing more, nothing less.

Perhaps the "cure" for lyme is what we are all doing. Slowly but surely, nursing our body back to health. Because this has been proven to work for many. I'm knocking on symptom frees door a year later.

So if anyone with lyme is waiting for a miracle pill, that probably wont happen because in reality that doesn't exist, for anything. It's always a holistic approach + time to get over an illness.

mpost
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Date Joined Feb 2015
Total Posts : 1167
   Posted 12/8/2016 4:44 PM (GMT -7)   
U cant cure lyme in a basement, it is too complex... :(

Government can do good things, they managed to keep people with HIV away from developing AIDS, they cured hep C (well, big pharma did, just a few years ago)
www.medscape.com/viewarticle/872225

lets not underestimate commitment to achieve something. Lack of commitment is what is bad, ignorance is bad.

Keep making noise!

trader758
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Date Joined Aug 2014
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   Posted 12/9/2016 1:45 AM (GMT -7)   
After reading this, I tend to think this is all wrong. Its nice having Lyme brought forth, but whats in the rest of it??.....

avoiceforchoiceadvocacy.org/21st-Century-Cures-Act/

njfillet
Regular Member


Date Joined Aug 2016
Total Posts : 151
   Posted 12/9/2016 5:02 PM (GMT -7)   
trader758 said...
After reading this, I tend to think this is all wrong. Its nice having Lyme brought forth, but whats in the rest of it??.....

avoiceforchoiceadvocacy.org/21st-Century-Cures-Act/


My point exactly! It's accommodating to the Lyme advocates in spirit, but not really that meaningful.

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 893
   Posted 12/9/2016 5:19 PM (GMT -7)   
This is great!

Vaccines in HR34: The 21st Century Cures Act would fast track the approval of all vaccines, and shields drug companies and vaccine administrators from liability for fetal injuries and deaths caused by vaccines marketed for and given to pregnant woman. It also allows the approval of drugs by the FDA vaccines “with the least BURDENSOME means.” Drugs should require the MOST rigorous testing, not the least burdensome means.

...

The priority is protecting those poor drug companies from lawsuits, and fast tracking more vaccines, with less testing to make sure they actually work. We need to get rid of those pesky pregnant women who are complaining about their children having autism. What a nuisance. Yes, this bill is going to do wonders. What would we do without the federal government to protect us?

...

“Making experimental drugs quickly available for the sick and dying, who voluntarily choose to use them, is one thing but Congress should not be greasing the skids to license experimental vaccines that government will recommend and legally require healthy children and adults to use. It is a prescription for disaster.”

...

Disability in HR34: The 21st Century Cures Act would create big brother mechanisms in (IHSS) In Home Supportive Services for home care providers with the creation of the electronic visit verification system.

Electric shock “therapy” in HR34: The 21st Century Cures Act would fast track Electric shock “therapy” as a cure for maladaptive behaviors and seizures.

Reduced Funding of NIH and FDA in HR34: The 21st Century Cures Act would trades temporary additional funding for the National Institutes of Health and the FDA for permanent weakening of the FDA’s approval process.

Post Edited (gfields) : 12/9/2016 5:25:48 PM (GMT-7)


OldSalty
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Date Joined Sep 2016
Total Posts : 260
   Posted 12/10/2016 4:36 PM (GMT -7)   
"I'm from the gubbermint and I'm here to hep you" Are words that strike fear into my heart. There ARE proven vaccines that have done wonders to reduce and practically eliminate many horrible diseases. I have a smallpox vaccination scar as a result (it likely has lost it's effect, but I have it.) I took the polio vaccine as well and am thankful when I visit a friend with post-polio syndrome. I can understand fast-tracking a therapy for last-chance conditions with a release of liability for the manufacturer for treating otherwise terminal conditions. The mental stop comes when they combine the two. If a treatment or vaccine is to be required for the good of the general population, then it should be thoroughly tested. After testing and evaluating it for the necessity of preventing a fatal pandemic, then it can be required. Limited liability could be assigned. In the case of vector borne diseases that are being ignored by the medical community and stonewalled by the gubbermint - CDC- use "X-prize" competitions to find: A- competent and ACCURATE testing and B- open evaluation of therapies to illuminate cure strategies. Currently there is little correlation between the necessary 70% efficacy requirement to authorize a "legal" therapy and the variety of combinations of critters that are infecting us that can avoid those therapies. The co-infections are a moving, evolving target that evades most mainstream therapies and are able to assist each other in situ as well as symbiotically utilizing other pathogens, such as nematodes. My greatest concern about this legislation is that it might allow more government obfuscation and more delay in actual effective treatment. The CDC and IDSA are a greater threat than an ally.

mpost
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Date Joined Feb 2015
Total Posts : 1167
   Posted 12/10/2016 4:42 PM (GMT -7)   
OldSalty said...
The CDC and IDSA are a greater threat than an ally.


CDC and IDSA are a set of rules and regulations. People come and go.
Change the rules and you change the institutions themselves.

That's why things like this bill are so important.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4441
   Posted 12/11/2016 1:28 AM (GMT -7)   
Why didnt bush pardon lyme legislation? Thought he has/had it ..what eas his treatment ?
Curza 99 didnt sound all that acording to sapi...

i like how ol salty calls it gubbermint ...theybare the same who conducted tuskeggee expeirments ..and radiation on indians in white sands ..
the same who made borrelia in a lab 257 to reduce population. Its diabolical, evil ,meniachial ,sick and i kinda dont want them ,corporations ,universities or any hospital doing or controling any of my already ineffective bullcrap treatment !
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