I started to feel a lot of pain in my armpit, like if I was on fire or something like that. I went to the nearest hospital and… well, I spend 7 months in ICU with morphine, fentanyl, hydro morphine and lots of painkillers, including an epidural catheter.
I’ve been taking so many meds, and actually I’m on a Immunoglobuline treatment here in Colombia, with sandoblobuline. I’d have 7 episodes of CIDP AND CHARCORT MARIE TOOTH, I’m walking, I’m going to my Uni… I have a “normal” life.
-CHARCORT-MARIE-TOOTH PROCESS: This one is easier to explain, my neurologist did an electromyography to my mother and it was the same pattern as me!
The doctors came with the final decision, the told us (my family and me) that I have two kinds of polyneuropathy, they are studying some DNA results and that’s my story.
Have they given you any genetic testing to prove that you have CMT or are they still determining that? Do you have hammer toes or high arches? Do your parents?
CMT comes on very slowly and can come on at a wide variety of ages, however, you wouldn't have "episodes" of CMT. You are likely to have acute exacerbations or "episodes" of CIPD. I'm glad you are getting IVIG for this.
I'm sorry you are dealing with this.