Welcome to our community! I'm so glad you found us.
Inexpensive water filters will not work for the more serious needs this family seems to have - that's if they need a water filter. We have a well and our water is very 'hard water' - lots of hard water deposits on everything, and normal , inexpensive water filters don't even change that.
What area are you from? I would encourage you to find another LLMD for at least a second opinion. Girlie and I both have lists of some of the LLMD's and there are other lists that we can share so you can see what might be available near you.
A chronic illness counselor should be able to help, although a Lyme literate one would be best of course. We do have a few on our lists of Lyme literate doctors.
Some doctors declare themselves Lyme literate after attending just one ILADS conference, so they come at all stages of 'expertise' - it's easy to get one that doesn't know enough when you are dealing with a lot of complex issues with Lyme and company. Just remember, it's never ever wrong to get a second opinion, or just a new set of eyes on the problems.
The best thing to do is to break down the issues into stages - you simply can't conquer it all, all at once. No one can. First things first - you need to be doing what you can to get everyone eating as close to healthy as you can - obviously the kids are old enough to eat things you aren't preparing (at school, at friend's homes and such), but do what you an at home and encourage them to eat healthy when away from home.
Detoxing should come next because if you are full of toxins, then there's little room for more to accumulate - whether from dying bacteria or other means. There are some really good ideas in our 'New to Lyme?' thread and here: www.tiredoflyme.com/detox-methods.html
For example, I have not had any of the gene mutation testing done, although I do seem to have the same kind of issues as those that do - so I figured it was best for me to assume that I did and work to get my body to detox much better. It took a lot of diet changes as things with my body changed,
I use a foot soak,
dry skin brushing,
Lymph massages as needed,
making sure my bowels moved at least once a day (sorry if it's TMI!)
pushing myself to drink at least 64 ounces of lemon water each and every day,
liver/gall bladder flushes (all natural) as needed,
Apple cider vinegar,
Alpha Lipoic Acid,
oil pulling with coconut oil and a few drops of tea tree oil,
using Yogi brand detox tea,
taking activated charcoal (when necessary),
and keeping the amount of stress in my life at a bare minimum.
(I'm sure I"m leaving out some things still)
But, there is such a thing as over detoxing, which can bring on a herx as well. There's a very careful balance we each must find with treatment and detoxing. Most of our toxins are in our tissues/organs, not in our bloodstream, so we have to do methods that will help 'release them' and move them into our bloodstream so they can be detoxed out. Over detoxing is when we move more toxins into the bloodstream than can easily be detoxed out by our body. So there's a careful balance that we must maintain between killing bacteria (which creates more toxins) and detoxing so that we can still be functional.This is why we suggest adding in more detoxing methods slowly (no more than 1 new routine every 3 - 5 days), and stop adding in more when you seem to be feeling okay or good. www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html
Supporting the body functions/systems is the next logical step, particularly for those that have been ill for a while. We have to have the body working at it's peak performance to heal from something as devastating as these infections. Supporting any gland, organ, body system that is struggling will allow the body to switch it's 'concentration' from just trying to function over to healing.
And, since this may be a lot of information for you, I'll stop there. (LOL) The learning curve for these infections is quite steep, so be sure to lean on us for help in understanding - yet remember we are all very unique beings and will need something slightly different than most others. It's a lot of work figuring all of this out for one person, so figuring it out for each member of your family will take time and patience. Let us help point you to articles and information to help you. Just be sure to double check all information you receive here as just because it's right for one person, doesn't mean it's right for every person.