Need advice

I am so sorry that it is flaring again, but am glad you are not letting it go. Hopefully others who deal with babesia will be along and can advise you better than I can.

If you are able to read without problems you may want to pick up one of Stephen H. Buhners books on Lyme and babesia. He provides a lot of information that might help you decide what to do. You can be treating on your own till you can afford a visit to your np.

I have been treating myself for almost a year on Buhner's advice. I saw my LLMD for the first time this week and she was very pleased at what I have been doing to treat and had a lot of respect for Buhner.

I wish you complete healing in 2017!

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Tested Igenix positive for Lyme March 2016.
Lyme symptoms for possibly 40+ years but severe in the last 5 after traumas to the system.
Currently treating with Buhner's Protocol for Lyme and Bart.

PeteZa
That was the best explanation of herbs I have ever read!! I honestly thought they were just natural antibiotics and were used for killing only.

I am going to order Buhner's book and begin to pick through it as best as I can with my lyme brain.

I am an antibiotic user, really only because I can not keep a complicated thought in my head long enough to treat myself with herbs so I am using an llmd to direct me. At this point I need someone to tell me do this on this day and this on this day and if this happens do this. But I don't want to be on antibiotics forever, and even my dr tells me there is no cure, just remission and that my body systems need to recover to be able to get to remission. I am relying on his advice to get me there and when my brain is well enough, I will move to burhners protocol to finish up and if I ever relapse that is the route I will go.

So being an antibiotic user, I feel like my body has been through a war. I took antibiotics for 8 months and I am worse now than when I started. I felt miserable everyday for 8 years prior to diagnosis but had times where it calmed down. Months actually then a flare that lasted months on end then calm down again. On the calm times I was still sick but able to go about life. Now 8 months into treatment, I am in one long flare with every body system screaming out.

While my dr was good, I don't feel he went the extra step to check my labs as much as maybe needed to be done. And it was all antibiotics with no other support whatsoever. No talk of detox. Never heard of detox until I came to this forum. My new llmd, is big on detox, diet and supporting the body systems as we go along. Yeah! Hopefully things will improve for me this go around.

So my point about antibiotics is, that you still need to support the body systems. I feel you can't just dump these drugs into your body and expect it will all fix itself. Nope, it can be made worse.

From what I am hearing from you with the herb treatments, the same is true, you need to go about the herbs with support of the body systems being most important aspect, not kill, kill kill which is what I was hearing from my former llmd.

So anyway, thank you for taking the time to explain the herbs. It has really changed my way of thinking about what is happening in my own body while I am on the antibiotics. Time to get his book and do the best I can to learn about how to support myself as I am in treatment with antibiotics.

Thank you!

We do have to understand that even just increasing the immune function will kill the bacteria, better than any abx or herb. And, Buhner's DOES include 'killing herbs' for each of the bacteria/protozoa that he addresses. But that is not the main goal of his protocols. Killing only should never be the main focus, unless the infection(s) are caught very, very early on. Otherwise we are ignoring the rest of the body and it's inner connectiveness. There is not one part of our body that can "stand alone", without at least support of another part of the body - that's why we all have these different parts!! They are all needed, and even though we can live without some of those 'parts' (lol!), there are "consequences". For example, for me, living without a gall bladder has meant that I have to be sure my liver stays very healthy, as it now has to work overtime because there is no 'back up' for bile to help digest food if my liver can't produce enough at any given time.

The body works as a whole, and we need to remember to help each part that is affected by these bacteria.

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Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

notquitesoscared13 said...
Hi All,

It's been a really long time since I've posted, so probably no one remembers me. about three years ago I crashed, and discovered I have probably been carrying Babesia and possibly Lyme for decades. After a very difficult year or so filled with suicidal thoughts and crippling anxiety, I began to recover. This after taking a huge variety of antibiotics, Mepron, herbs and vitamins for many months. Altogether I took abx for about two years, and have been off them for about 1 year. about two months ago I had some bloodwork done by my naturopath, because I was beginning to experience some headaches and mental issues again. Nothing serious, but I didn't want to let it go. She found I was deficient in Iodine, and put me on a very high iodine supplement. Other bloodwork suggested to her that the Babesia was flaring up again, despite the fact that we thought we had kicked it.

For about two weeks now, I've been getting progressively worse. Mostly headaches and mental issues--depression and anxiety. Especially in the mornings, which is typical for me. about a week ago I stopped the iodine, after reading that too much iodine can cause thyroid problems. I'm still getting worse. I've been taking CSA, Teasel and Houttounia (sp) for the past two months, on the advice of my naturopath. I cannot afford to go back to the naturopath at the moment, due to insurance, so I'm looking for some advice. I have a whole bottle of Rifampin in my fridge. Also have a lot of doxycycline. I'm not up on the most current protocols. We KNOW I have/had Babesia--Lyme itself was never proven. Would you all change up the herbal protocol? Stick with the herbs and add an antibotic? If so, which one? Would appreciate any advice you can offer. I'm not sure when I'll be able to afford another visit to the naturopath...

Well, I remember you, Notquitesoscared!

I think you are being wise in not ignoring these issues!! Unfortunately, I too know more about the herbs than the abx, so I don't know if Rifampin and Doxy are a good mix or not, for example.

What herbal protocol have you been using? This would help us help you better, I think. But in a general answer, yes, I would change up my herbal protocol to be sure that I was using the most effective herbs to support my body and the most appropriate herbs for the infection(s) that you are dealing with.

And don't forget the support herbs and detoxing - they are just as much a part of our recovery as the 'killing treatments' are.

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Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Hey Traveler,

I think my response and your post crossed paths. At the moment, in addition to naturopath-prescribed vitamins and minerals (I also don't process B vitamins appropriately), I am taking the Cat's Claw and Japanese Knotweed combo, CSA formula, 2 droppers 3X/Day, Hottounia (sp) 1 dropper, 3X/day, and Teasel, 1 dropper, 2X/day.

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Probably sick for more than 20 years. Crashed in Aug. of 2013. Completing 12 months of treatment as of Aug. 2014, and feeling much better! Have taken a wide variety of antibiotics, antiparasitics and herbals for blood-diagnosed Babesia, Erlichia and Anaplasma, and suspected Bart and Lyme.

Bitten by two ticks in March of 2016, which seems to have set off a new infection.

I am not familiar with the Cat's Claw and Japanese Knotweed combo. As for the Houttuynia, I took that for Bart, not Babesia. Your CSA would be for the Babs because it has the Cryptolepis.

How about adding Red Sage and Skullcap for cytokine cascade? Or immune remodulation with some Cordyceps?

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When life gives you lemons, just add them to water and detox.

Well all,

I ended up picking up Red Sage and Kudzu on my way home from work. I took two dropperfulls of each along with my other supplements about an hour ago. For the first time today the black cloud is gone. My mental state is so much better! Could these possibly work this fast, or is this just a coincidence or a placebo effect? In any case, I'm enjoying feeling better! Thanks for the suggestions.

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Probably sick for more than 20 years. Crashed in Aug. of 2013. Completing 12 months of treatment as of Aug. 2014, and feeling much better! Have taken a wide variety of antibiotics, antiparasitics and herbals for blood-diagnosed Babesia, Erlichia and Anaplasma, and suspected Bart and Lyme.

Bitten by two ticks in March of 2016, which seems to have set off a new infection.