Posted 1/9/2017 9:39 AM (GMT -7)
Hi, I'm pretty new to Lyme myself. My family and I picked it up on vacation in August. The one thing I found is that when I looked here and online, I found really scary stories of people who were really bad off. I think many of them didn't start off that way but were misdiagnosed or undiagnosed for years and when it was finally discovered the bacteria had totally overtaken their immune system and it's just difficult to come back from that. I do think it happens but I think that person who has healed despite their best intentions to remain a beacon of hope ultimately gets on with their life especially if lyme kept them away from that life from an extended period of time. We all come on here because we are searching for information because there is a question or problem we are trying to find the answers to. They are no longer searching and it's just unlikely that they will be posting everyday to let people know they are okay.
I personally have discovered this in other areas of my life. Prior to lyme, I experienced many miscarriages. We didn't know at first but there was a known genetic condition that was causing the miscarriages. It's not uncommon for people to have miscarriages in the double digits prior to have one child. When I was trying for our second child, I was constantly reading emails and posting in groups with others trying in vain for a child. When I finally did have my second child, I really wanted to stay on to provide a story of hope. Then, I had a third child, I still wanted to be an inspiration that you can get past it, but honestly I couldn't keep up with the emails and ultimately had to discontinue receiving them because I wasn't reading them anymore because I had small children and a job and life. I stay remained on some Facebook groups, but again life got in the way and trying to conceive was no longer a focus of my life. Now, that I've moved onto Lyme, I find it even harder to follow these groups because it just seems so far away now.
I've also reached out to a lot of family members who live in Lyme endemic areas and I've been surprised the number of them who have had Lyme (some of them multiple times). I've never heard them talk about it much but I think some people just take the prescription meds and assume they work. IF they still don't feel better, I think they go back to their doctor and take another round and move on.