og welcome to lyme rant by waxby (mitchell)

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bluelyme
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   Posted 1/28/2017 10:51 PM (GMT -6)   
~~~Lyme cannot be treated as a lone entity.
~~~Lyme Disease is a complex disease, and so, Lyme Complex Disease, or LCD, most often with any number of co-infections that must be treated before Bb, Borrelia burgdorferi, or Lyme, one by one, or simultaneously.

~~~LCD knocks your whole


body/mind/spirit out of sight. You need to reballance, and rehabilitate your whole being!
~~~It IS important to realize that each of our needs,

and symptoms, are unique and require our careful and discerning, educated, well read, attention.
~~~And there is no magic cure or magic DR. or magic clinic. And there are a lot of "snake oils" and "snake oil salesmen" out there, so be cautious!

~~~Some find relief or remission from conventional/pharmaceuticals alone or naturals/alternatives such as herbs etc alone or a combination of any.

~~~We each have our own combination lock, code, puzzle, conundrum, or mystery to figure out.

~~~Here is another of the main issues with Lyme Dis-ease...

~~~If you do not see a Lyme Literate Dr, (LLDr), and your tests APPEAR negative,(or positive),they may treat you for whatever symptoms that your symptomology SEEMS to fit.

~~~And in most cases, if you are, or are not being treated for the actual culprit, Lyme Disease, the phantom treatments for mocking symptoms will do almost nothing or nothing at all or even cause more problems.

~~~It can even do damage, such as being treated for MS, which Lyme mocks, with steroids etc that will only intensify the Lyme invasion and wreak additional havoc inside of you and on your life.

~~~Some have even been prescribed surgery, by a non-LLDr for a Lyme mocking "phantom" problem and the surgery, in many or most cases, failed.

~~~LCD can mock 300 dis-eases and exhibit hundreds of symptoms!

~~~However it remains important to carefully rule out other possible problems.

~~~But, let a LLDr do this to save


you many middle steps.
~~~If you are working with, WORKING WITH (as in not blindly following) a Dr, hopefully a LLDr, Lyme Literate Dr, OR only with yourself as your healer, if you so choose for your own reasons, pay careful attention to your reactions to each potential remedy.

~~~If the reactions are too intense, and you are monitoring and comparing them to possible allergic response and...

~~~having carefully ruled out adverse allergic response, as many reactions are the "herx", try trimming down,ramping down, dosages to 1/2 or 1/4, even as much as 1/8 the dosage in some cases, to find your personal, more tollerable, not overly aggressive, therapeutic dosage, and then "ramp-up" slowly and carefully.

~~~And always take probiotics between doses of antibiotics. Two hours before and after dosing are a good rule-of-thumb.

`````````````````````````````` ```````````

~~~There is a general consensus to get a superior diet in order.

~~~That is, no junk. Every one with any sense whatsoever knows what that is.

~~~This means no sugary sodas or even diet ones or any carbonated dead beverages. Pure junk!

~~~No processed sugar either. No empty calories!

~~~Only nutritiously dense foods in a wide variety of the rainbow such as fresh mixed sprouts, purple and green cabbage and mixed greens salads, mixed berries,etc.

~~~Mostly if not all vegetarian.

~~~Mostly if not all raw - fresh unheated fruits and vegetables are raw.

~~~Little to no dairy.

~~~Cut out gluten,wheat, rye, oats, bran, if you happen to be gluten intolerant as many Lyme Patients are.

~~~Eat whole grains and brown and wild rice blends, quinoa, amaranth, buckwheat, etc.

~~~Raw nuts and seeds, (raw, so as not to destroy living enzymes and essential fatty acids,) such as walnuts, almonds, pumpkin and sunflower seeds.

~~~Beans, such as red kidney, black, garbanzos.

~~~Cooled down to warm teas (under 110 degrees) with some almond milk and a couple of ice cubes etc (not hot,so as not to destroy living enzymes in raw honey and raw choc if added.)

~~~You should be able to hold your finger in it and just feel the warmth, not hot...

~~~Green tea, red (rooibos) tea etc, almond milk, etc, raw honey, raw cocoa powder. Yum!

~~~You could vigorously stir into the warm mix a Tablespoonful or two of some organic chia seed, from health food store, and drink it through a straw, unless you want a chia pet mustache!

~~~You could also vigorously stir in some brown rice protein powder (from "NutriBiotic"Wink and brewers yeast(from "Lewis Labs"-no this is not the yeast that contributes to yeast-growth problems, and is very nutricious and a tasty brand.)

~~~And also some raw maca powder.

~~~I make a mixture in equal amounts of brown rice protein powder, raw maca powder, and brewers yeast and use a couple of tablespoons of this mixture in my breakfast tea.

~~~Plenty of water, between meals, some with fresh lemon, for detoxifying, one simple, of many methods critical for consistently, persistently, clearing toxic load from our bodies. A good rule of thumb for quantity of water to drink is to divide your body weight number in pounds in half, and use that number for number of ounces of water to drink each day.

~~~Go to a healthfood store and get a sprouting kit and make your own mixed sprouts at home in your kitchen.

~~~Try 2 Tablspoons broccoli, 2T fenugreek 10T(5oz) mung sprouting seeds in a half gallon sprouting jar.

~~~In three to five days, depending on the temperature, Winter or Summer, and poof, nutriciously dense food.

~~~They'll keep for a week in the fridge in airtight container.

~~~Leave uncovered overnight in fridge the first night to chill and breath out initial condensate and then cover and leave covered.

~~~Don't rinse on last day to keep on dry side to keep longer in fridge.

~~~Start a new batch some days before they run out to keep a constant supply for sandwiches, salads, etc. Add it to a big mixed greens salad.

~~~Omega 3 fatty acids and fiber rich seeds such as chia (whole or ground) and freshly ground flax-freshly ground flax as the omegas become unstable after some time after being ground, and flax is undigestable whole.

~~~Unheated so as not to destroy vital omega fatty acids and living enzymes.

~~~I use 2 tablespoonsful of whole organic flax seed and grind it fresh in a coffee grinder each time I use it.

~~~I stir this vigorously into 16 ounces, or more,of tepid water 30 minutes before some meals.

~~~I continue to drink more water in between meals away from food for better digestion and elimination.

~~~Drinking liquids with meals only dilutes your food not allowing it to digest more properly.

~~~Drinking this flax/water mixture gives it a jump ahead of meals in order to capture more bile and transport it out of the body, so it is not recycled back into your body, as is what happens to the bile, thus ushering the bile's excess cholesterol and toxic load out of the body.

~~~Your body will readily produce more fresh unpolluted bile.

~~~Flax (as well as chia) also contains essential omega 3s and 6s in a healthy proportion of 3 times more 3s than 6s.

~~~Most diets contain way too many 6s than 3s.

~~~Corn oil has 46 x more 6s than 3s, very bad.

~~~Olive oil has a ratio of 3-6s to 13-3s, very good.

~~~We tend to get way more 6s than 3s, not good.

~~~Your body will convert these essential fatty acids into necessary DHA and EPA. 9See Wikipedia omega 3 fatty acid.)

~~~Organic every thing as much as possible.

~~~No harmful habbits such as smoking etc, or alcohol, which are very bad for many Lyme patients.

~~~Just as an example, out of hundreds of potential remedies, presently I'm doing MMS, for eleven months now, and in alternating days, frequencies, amounts, and combinations,

~~~teasel, samento, venus fly trap, banderol,

~~~smilax, japanese knotweed/resveratrol, andrographis, "Buhner's Herbs from his book "Healing Lyme."

~~~Dandelion and parsley extracts, mangosteen extract, olive leaf extract, grapefruit seed extract, bromelain, systemic enzymes, nattokinase and switched to lumbrokinase, Graviola, Sangre de Drago, Jatoba (these three are South American rainforest herbs.)

~~~vits, mins, supps, baking soda, superior diet.

~~~And for about a year now 100mg a day or every 2nd, 3rd, or 4th day, week, or month of minocycline.

~~~However, for now, I am only doing the MMS and at one to three drops one to three times a day, even skipping a day or more as I am very ill and for many years, and I think I am doing too much too soon for my level of infection.

~~~However, (update) now, including MMS at five drops properly prepared several times a day and also ten drops properly prepared and administered through my skin and directly into my bloodstream with DMSO, Google it.

~~~I am doing Minocycline, Azithromycin, and Rifampin every day. Rocephin IM, (breaking), Atomidine (hoping to replace Armour Thyroid), HBOT (hyperbaric oxygen treatments, 75 dives and taking a break), Myers Cocktail IV plus glutathione (vits, mins, + glutathione) twice a week, Byron White's A-Bart and A-L (pulsing and ramping up), vitamins, minerals and supplements, coloidal silver, meditation, prayer post thread, yada yada ...

~~~Your symptoms will change, come and go, see-saw, roller coaster, scare you, tickle you, nauseate you, turn you shapes, colors, and sizes, make you laugh, make you cry.

~~~Hold tight. This is some Amusement Park!

~~~This forum is your refuge. We "get" you. USE IT!

~~~And remember, "this is a marathon and not a sprint."

~~~Be the turtle, not the hare. Moving too quickly could be potentially harmful.

~~~Chronic, persistent Lyme Dis-ease can take a very long time to diminish towards remission. It must be approached carefully, systematically, persistently, patiently...

~~~And...Never give up!

`````````````````````````````` ```

~~~On ramping and pulsing...

~~~When a remedy dose hits too unbearably hard, your dose may be too high, and that is after making certain this is not an alergic reaction.

~~~Take a day or two or three off if you must, until the "Herx" calms down to a reasonably, tollerable manageable, level, and begin again, every other day, or more, if you must, thus pulsing...

~~~Begin at a lower more tollerable dose such as 1/2, 1/4,or 1/8 the dose thus ramping down.

~~~If one more dose hits too hard again, take every other or third day off, pulsing, until you arrive at a more tolerable Herx event level and tolerable therapeutic dosing level.

~~~As your Herx effect lessens over time, begin turning up the volume by adding back some dosage level, ramping up, and then closing the pulsing gaps.

~~~And always take PRO-biotics between doses of ANTI-biotics to re-constitute intestinal flora as ANTI-biotics destroy both bad and good bacteria. Take pro-biotics, starting in your mouth, the beginning of your digestive system, two hours before and after dosing, as anti-biotics clear the stomach and intestines, are a good rule-of-thumb.

~~~Unfortunately, feeling worse before feeling better is par for the course, but is a useful gauge for pulsing and ramping and consistently, presistently, keeping fire under the critters butts.

```````~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey, Mitchell~

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 1/28/2017 10:57 PM (GMT -6)   
I dont know if waxby is with us anymore but he was a gangster lyme warrior helped many on md junktion.this is a homage to the homie and so refer newbies to the inner workings of ..i showed trav this the other and thought others may glean pertinant info from it ..please bump frequently or copy n paste for the new person.. you once were lost scared and overwelmed too.pay it forward.thanks

in no particular order
check www.cpnhelp.org (if you ever had a cough)
read all of lymenet flash old n new
watch under our skin 1 and 2
watch justin and christie .ca
watch under the 8 ball
watch lyme n reason 1 and 2.0

consider dna connexions test for coinfections ..borrelia never travels alone
buy a microscope
consider rife ,bvt and essential oils
buy buhners books
dr h book
cure unknown
bite me
and ask healing well

chances are your hashimotos ,ms ,als ,fibro ,arthritis lupus vasculitus or mystery illness has a multiple pathogenic cause ...if its not borrelia its probably bartonella cpn and or mycoplasma

Post Edited (bluelyme) : 1/28/2017 10:07:08 PM (GMT-7)


julymorning
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Date Joined Jul 2015
Total Posts : 3827
   Posted 1/28/2017 11:16 PM (GMT -6)   
It's a good list blue, thank you. I hope it can become a 'sticky' thread or added to the "New to LYme" section. I kind of wince at the idea of overly long postings all at once to each new member because yes, it is overwhelming when you first get here, and often have brain fog, so absorbing so much at once is asking a lot of them.

I do kind of love how everyone welcomes with their own tidbit(s) too, it makes for a very personalized, warm and friendly greeting. And lol, even then we sometimes repeat each other!

Anyway, I will bump it every time I see it start being buried very far. Thanks for putting finding this! Sounds like a great man to have known, and am curious about how he fared.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false)positive '92 untreated,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, Cong. Heart Failure, osteoarthritis. Treating PHY. an Internist, LLMD out of the question. Used Doxy, Zithro and Flagyl since June '15, self pulsed.Current treatment with JK, Milk Thistle, kudzu, beginning Hout. shortly.

Traveler
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Date Joined May 2007
Total Posts : 36310
   Posted 1/29/2017 10:02 AM (GMT -6)   
Well, I hate to say this, but there are quite a few bits of information that may be true for some, but most definitely not good for all.

Things like raw veggies when a person has leaky gut, green tea and macha is not good for everyone (caffeine and low adrenals don't go well together), flax seed and oil can interfere with the thyroid function for some, and a few other things.

So, while there is some good information in this post, I would not promote it without some modifications. Not all the things they are promoting are actually good for some of us.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Huddie
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Date Joined Nov 2014
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   Posted 1/29/2017 10:40 AM (GMT -6)   
Thank you Blue. I always enjoy your posts. They are so full of care and they make me laugh. You have a unique writing style.

I agree with Trav, many can't eat raw. It is amazing but for GI/leaky gut it can make matters worse. Same with raw nuts - but modifications are easy. I soak all nuts and quinoa and problem is solved.

Thanks for putting so much care into your post!

Rikky1
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Date Joined Jun 2015
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   Posted 1/29/2017 11:33 AM (GMT -6)   
>>chances are your hashimotos ,ms ,als ,fibro ,arthritis lupus vasculitus or mystery illness has a multiple pathogenic cause

dr. hulda clark one of the founders of RIFE technology writes about this a lot in her famous book The Cure For All Diseases. Its centered about rifing technology but good information on how to eat/live clean. She gave it away for free because she wants to help people here's a link to a PDF if you're interested in perusing.

drhuldaclark.curehelp.com/download-the-cure-diseases-here/

Huddie
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Date Joined Nov 2014
Total Posts : 3139
   Posted 1/29/2017 12:30 PM (GMT -6)   
Rikky,

Thanks for sharing the free download. Love those!

I have a question. I go to a holistic practitioner who does body scanning (scans every part of us on a computer screen while we wear a head set) and has lots of machines, including Rife. She won't do Rife on me. She thinks I am not ready and that it is way too strong. She said for many people it weakens them.

Anyone have this experience? It makes sense that the machines would not be a one size fits all.

I do something where I am on massage table, a few conductive pads are put on body and I am then covered in thick special blanket with a covering for my head. Can't remember name of machine. I don't herx from it it but I do sleep great the days I have treatment and feel better the following day.

Rikky1
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Date Joined Jun 2015
Total Posts : 2860
   Posted 1/29/2017 9:21 PM (GMT -6)   
huddie it sounds like some kind of bioresonance machine similar to the 8D-LRIS i just bought. with my device you also wear a headset but no blankets or conductive pads attached. maybe those pads are doing some restorative treatment on you. you should ask what the machine is sounds interesting.

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 1/30/2017 1:59 AM (GMT -6)   
Huddie .thank you that gives me inspiration to keep writing ....dr k believes electrical fields make pathogens grow 6x faster ...i was always sensitive to high power wire ,cell towers etc ...current kinesiologist says this goes away with treatment.
Plasma rife and contact are very different imo...i hear babs falls easily with prior ...people like me temd to over do it ..rosner says at most 3x a week ...some coinfections may need daily ...the body can only clear as much as it can as quik as it can ....try some i thought was bs until one day i hit my number for strep..whole body was warm.....also i saw thrush disappear with candida treatment ...
pioneers like hclark, rife and hanaman will take the butcher out of medicine one day...

re diet ..raw fresh may have to help with histamine intolerance ...and stomach acid levels may have to do with digestion abilty and b vitamin absorptio . ..but that another post

Huddie
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Date Joined Nov 2014
Total Posts : 3139
   Posted 1/30/2017 11:02 AM (GMT -6)   
Thanks Rikky and Blue,

Rikky I will find out the name of the machine. The headphone one is the scanner. The table with the pads/blanket is what we do after that. Two different machines.

Blue, she isn't saying I will never do Rife, just not ready yet.

Are you suggesting that the other machines (any type of frequencies) help the pathogens grow? Any links? That is the last thing I want.

I don't see how that can really happen though. Upping frequencies gives us the help we need to raise immunity.

Lyme is such a steep learning curve!

Rikky1
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Date Joined Jun 2015
Total Posts : 2860
   Posted 1/30/2017 11:24 AM (GMT -6)   
With my 8D-LRIS you can actually do a few treatments once it tells you what ails you. This device told me I was coming down with a respiratory infection even before I felt anything! It can tell you what pharma and/or homeopathic drugs to combat it. It can do meta-therapy (sends energy into your body to rebalance the deteriorating condition). You can even put energy into water and drink it to provide a type of tincture remedy. Stone therapy and phytochemicals is also there.

It's really cool stuff and I can see the value in it.

Huddie
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Date Joined Nov 2014
Total Posts : 3139
   Posted 1/30/2017 11:29 AM (GMT -6)   
This definitely sounds like what I have done. It is so fascinating and then homeopathic tablets are made for us right then and there.

I'm going tomorrow so I will let you know what the machines are called. It varies as to which machine we are put on.

I will say that I was having a really bad few weeks with brain pain and bad word retrieval issues. The homeopathic has really, really helped. Even my son noticed how my speech is already improved.

Good luck with it all!

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 2/15/2017 3:28 AM (GMT -6)   
What machine were you using and are you still doing treatments huddie ? Bump for others ...

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 3/12/2017 6:59 PM (GMT -6)   

Huddie
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Date Joined Nov 2014
Total Posts : 3139
   Posted 3/12/2017 7:14 PM (GMT -6)   
Not sure if they bump is for me but we don't use Rife. Practitioner has it but says it is definitely not for everyone and it is too strong for me and my son.

She uses three different machines on us:

1. Some scanner that looks at every organ
2. Some machine where you lie in front of it and it does 'something'
3. Another machine where you have heavy specialized blanket put over head/body and suction cup type things put on your body.

I promise to get names next time.

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 7/1/2017 12:43 AM (GMT -6)   
Also most everything is out of pocket ,be prepared finacially or at least mentally to do what need be done .general bump for newbies welcome to the meniachal game of lyme whack a kete

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 4/13/2018 12:03 AM (GMT -6)   
there is a emotional/ spiritual component to healing lyme ...its trauma , treatment is traumatic , relationships suffer have grace with yourself and if its your partner thats sicker than u (its a std)... have unfathomable patience please

goshawk
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Date Joined Sep 2016
Total Posts : 2123
   Posted 4/13/2018 3:39 AM (GMT -6)   
Thanks BlueLyme, wishing you the best of continued healing and hope you have a good day today.

We just have to keep on moving forward every day in all aspects of this fight...many lessons learned along the way
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