Welcome to our community!! I'm so glad you found us.
If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.
And, here's another good place to find helpful detoxing routines: http://www.tiredoflyme.com/detox-methods.html
Rheumatologists rarely know what to do with Lyme or Lyme patients, neither do most other doctors. We always recommend seeing a LLMD, not because they are miracle workers, but because they are our best bet to get the help we need. They are following ILADS (International Lyme and Associated Diseases Society) treatment recommendations instead of the very highly flawed IDSA treatment guidelines and have had at least some training usually in recognizing and dealing with these infections.
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread titled something like "Looking for LLMD in the
(insert the nearest larger city & state)
area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can email the Tick-Borne Disease Alliance at
[url]email@example.com for LLMD referrals
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
As for your test results, Band 39 is a Lyme specific band, that doesn't have a bunch of controversy surrounding it. Band 31 is also a Lyme specific band, but is surrounded by controversy, so many times people will have a confirmation test done for that band - but since you already have one Lyme specific band, you don't really need to do that. You know you have Lyme, and you need treatment. I would encourage you to find a LLMD and start treatments.
An IgM result means that you have an active infection. It once was thought to mean an 'early' infection, but has since been revised. IgG means that the infection is at a later stage.
The more +'s you have beside a number, the stronger the reaction.
IND means indeterminate - not negative, but not quite strong enough to be "fully positive". But it means that you reacted on those bands and should be considered, especially when they are Lyme specific bands.
A "Lyme specific band" means specific for Borrelia Burgdorferi, sensu stricto - Lyme disease in the strictest sense. There is only one
on the over 300 known strains of Lyme that is considered Bb, ss. Nothing else will turn a Lyme specific band positive other than Lyme disease.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)