Thanks you guys!! I have just been so terrified and almost afraid to ask anyone..... It is good to hear what others have experienced. My friend told me recently that you could have lyme and Alzheimer's.... (with friend's like that......) ! Girlie, there are a few days of late that I think that I would like to cross off the calendar and NOT experience..! (Not very zen of me is it!?!!!)
For me the memory issues are frightening.... My first round I stood up for many hours one day because I forgot to sit down....... I actually forgot what my face looked like and didnt recognize it in the mirror..... these things were so extreme and came on suddenly after many years of being sick and then hit after the first four days of doxy...... so a herx for sure.... (That was 20 years ago and I always thought that I got hit too hard with a death combo of abx and had a toxic brain - long before we knew about detoxing....so probably was spot on in my thinking!) The word searching a cotton candy feeling in my head was over the top....horrible but I KNEW that it was lyme.. I was also young then and didnt even consider dementia.
This relapse round it is just that the memory issues are presenting so differently and I am older.....My brain can feel clear but I am losing things, putting things away and forgetting that I even had them, forgetting whole events that I always (in my previous life) would have remembered. I too Huddie have a husband who is always like this (although he is being treated for Bb too) and even through the first round of lyme, I have been the brain /memory of this whole family....(my friend told me that if she ever had to go to therapy, she would take me because I remembered her childhood better that she did) . It hits hard to have that go to ground zero! I sometimes laugh, thinking that I could become a hoarder because I will forget what I already own!
,,,,,Forgetting so much is NOT me..... like a family visit a few years ago to the most beautiful quarry for swimming. ( our dog ran away chasing a deer...something I would have remembered) ..A visit from a friend last summer when the refrgerator repair guys asked my friend if he knew anything about refrigerators (it had to have been funny!) I was right there but have no memory of it,,,...I also ALWAYS hung on to numbers. I had to hunt through piles and piles of bills to find out how much money I had lent my son..(normally I would have remembered that one) And I could not remember the amount that my dad's house sold for for taxes,,,,(these are not things that I couldn't look up,,,and they are not life and death ,but they are just so different for me that it is just freaking me out,,,,,) The "thickness" (brain fog), word searching, concentration issues are familiar to me. This other stuff (when my brain feels "clear" and I forget) feels so much closer to dementia... and then I do have a friend who's mom has been sitting in a nursing home after getting lyme and being treated for one month with an IV.....she later started complaining of memory issues........so yes, TRAVELER keep at treatment, heal is the mantra....
..Traveler....I am sorry for what you went through but it is hopeful hear that it can come back.... and yes, the detox detox detox.... I feel like so much of this is just the combo of infection (and toxic slurpee that is my brain...!)
Thanks you guys! I am sorry that any of us are going through this... it is a horrible home made illness that hits so many good good people.....
Summertime flu in '91 Chronic Fatigue 5/92 Diagnosed July 98
3 years, 14 abx, minimal improvement by 2001
2001 off abx, many alternatives, good care, good diet,
played hockey and skied on weekends, raised kids, maintained huge gardens, lived life, didn't think about lyme
June 2016 shoved into relapse hell.
Borrelia, ehrlichia, babesia, bartonella, mycoplasma, yeast, EBV, cytomegalovirus . Ugh.