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AK
Regular Member


Date Joined Aug 2016
Total Posts : 245
   Posted 2/10/2017 10:46 PM (GMT -6)   
My first round of lyme in (twenty something years ago), I experienced lots of brain fog and word searching... lots of cognitive issues but not memory loss like I am experiencing now. This time, i am forgetting things..events, episodes, where I put things. I open drawers and find things that I have been looking for forever....(things that I put in there in the first place...) I probably would not worry so much about this (and attribute it all to lyme, bart, erhlichia, babesia, EBV, etc) but I just turned 60. Since this memory loss is presenting so differently than the first round, I am wondering if it is just age related... or worse dementia related.

I often read about brain fog but not the memory loss of events and things. Do others experience this?

Thanks
Summertime flu in '91 Chronic Fatigue 5/92 Diagnosed July 98
3 years, 14 abx, minimal improvement by 2001
2001 off abx, many alternatives, good care, good diet,
played hockey and skied on weekends, raised kids, maintained huge gardens, lived life, didn't think about lyme
June 2016 shoved into relapse hell.

Borrelia, ehrlichia, babesia, bartonella, mycoplasma, yeast, EBV, cytomegalovirus . Ugh.

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1682
   Posted 2/11/2017 12:25 AM (GMT -6)   
AK-Hopefully this will be helpful and 60 is supposed to be the new 40 smile

www.columbia-lyme.org/patients/ld_lyme_symptoms.html

Late Neurologic Lyme Disease

a. Encephalopathy. Patients may develop cognitive problems from Lyme disease either early or many months or years after the initial infection. The cognitive problems most commonly include problems with short-term memory, problems with verbal fluency such as in name or word retrieval, and problems with slower speed of thinking.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/11/2017 1:51 AM (GMT -6)   
I have the memory loss...some days worse than others.

When my other symptoms flare is when I usually have the memory issues.
I particularly have trouble with remembering what day I did something.
Someone will ask "When did you see your MIL?" And I can't remember if it was last Thursday or Friday...
Sometimes I will cross a day off my calendar twice.
For instance I will cross off Friday on my way to bed. Then in the morning I will cross another day (Saturday) not remembering I already crossed the day off the night before.

These memory issues are particularly concerning for my husband. He is so used to relying on my brain...for details...and reminding him about things he needs to do.....and now I'm often in "la-la land"
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Huddie
Veteran Member


Date Joined Nov 2014
Total Posts : 3139
   Posted 2/11/2017 7:19 AM (GMT -6)   
AK,

Hi. I have that now. It is part of lyme and we will heal it - right?

Like Girlie offered, when I'm stressed it is worse. I have mostly word retrieval and that has gotten better but lately I am having trouble remembering where I put things. This is NOT me. In fact, my husband has always been this way and I am the brain/memory for my entire family. My brain can't go.

Not to make light of it, it's scary but I think detox can help. My holistic practitioner gave me homeopathic tablets and they have helped tremendously. I wish I could tell you what they are. I also take cod liver oil, mega ortho EFAs, Mitochore, and Wobynzyme PS all help with inflammation and/or the brain.

Have a great day - it's Saturday by the way yeah

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/11/2017 8:10 AM (GMT -6)   
I had extensive memory loss - and I was only 45 yrs old at the time. At one point for a couple of years, I had no working memory at all and no access to my long term memories. That was highly disturbing, but most of it has come back, and more comes back as I go along, and see physical reminders of things.

At one point I had the same symptoms as late stage dementia patients, not just memory issues, and I've managed to come back from that as well.

Detox very well, stay in treatment and heal. That's the best advice I could give anyone that is going through this. Don't give up and keep doing things that will help your brain 'come back'. I used brain games - easy crossword puzzles, search a word puzzles, jigsaw puzzles - most anything that I thought would help me begin to recognize shapes, patterns, words and things better and more often.

Now, the only thing I really have trouble with is numbers, so I keep a calculator close. LOL.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

AK
Regular Member


Date Joined Aug 2016
Total Posts : 245
   Posted 2/11/2017 11:25 AM (GMT -6)   
Thanks you guys!! I have just been so terrified and almost afraid to ask anyone..... It is good to hear what others have experienced. My friend told me recently that you could have lyme and Alzheimer's.... (with friend's like that......) ! Girlie, there are a few days of late that I think that I would like to cross off the calendar and NOT experience..! (Not very zen of me is it!?!!!)

For me the memory issues are frightening.... My first round I stood up for many hours one day because I forgot to sit down....... I actually forgot what my face looked like and didnt recognize it in the mirror..... these things were so extreme and came on suddenly after many years of being sick and then hit after the first four days of doxy...... so a herx for sure.... (That was 20 years ago and I always thought that I got hit too hard with a death combo of abx and had a toxic brain - long before we knew about detoxing....so probably was spot on in my thinking!) The word searching a cotton candy feeling in my head was over the top....horrible but I KNEW that it was lyme.. I was also young then and didnt even consider dementia.

This relapse round it is just that the memory issues are presenting so differently and I am older.....My brain can feel clear but I am losing things, putting things away and forgetting that I even had them, forgetting whole events that I always (in my previous life) would have remembered. I too Huddie have a husband who is always like this (although he is being treated for Bb too) and even through the first round of lyme, I have been the brain /memory of this whole family....(my friend told me that if she ever had to go to therapy, she would take me because I remembered her childhood better that she did) . It hits hard to have that go to ground zero! I sometimes laugh, thinking that I could become a hoarder because I will forget what I already own!

,,,,,Forgetting so much is NOT me..... like a family visit a few years ago to the most beautiful quarry for swimming. ( our dog ran away chasing a deer...something I would have remembered) ..A visit from a friend last summer when the refrgerator repair guys asked my friend if he knew anything about refrigerators (it had to have been funny!) I was right there but have no memory of it,,,...I also ALWAYS hung on to numbers. I had to hunt through piles and piles of bills to find out how much money I had lent my son..(normally I would have remembered that one) And I could not remember the amount that my dad's house sold for for taxes,,,,(these are not things that I couldn't look up,,,and they are not life and death ,but they are just so different for me that it is just freaking me out,,,,,) The "thickness" (brain fog), word searching, concentration issues are familiar to me. This other stuff (when my brain feels "clear" and I forget) feels so much closer to dementia... and then I do have a friend who's mom has been sitting in a nursing home after getting lyme and being treated for one month with an IV.....she later started complaining of memory issues........so yes, TRAVELER keep at treatment, heal is the mantra....

..Traveler....I am sorry for what you went through but it is hopeful hear that it can come back.... and yes, the detox detox detox.... I feel like so much of this is just the combo of infection (and toxic slurpee that is my brain...!)

Thanks you guys! I am sorry that any of us are going through this... it is a horrible home made illness that hits so many good good people.....
Summertime flu in '91 Chronic Fatigue 5/92 Diagnosed July 98
3 years, 14 abx, minimal improvement by 2001
2001 off abx, many alternatives, good care, good diet,
played hockey and skied on weekends, raised kids, maintained huge gardens, lived life, didn't think about lyme
June 2016 shoved into relapse hell.

Borrelia, ehrlichia, babesia, bartonella, mycoplasma, yeast, EBV, cytomegalovirus . Ugh.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/11/2017 11:43 AM (GMT -6)   
I would find the cereal in the refrigerator, and milk in the pantry (ew!), or my dirty clothes in the trash can and something that belonged in the trash can in my dirty clothes hamper. The stories just go on and on and on! I'm glad that I generally think more clearly now, but they do make for something to giggle over sometimes!

The looking into a mirror and not recognizing your face sounds like depersonalization/derealization. I used to deal with this a lot, but fortunately it only now hits me when I'm at my worst. You can find a pretty good description of it here: www.tiredoflyme.com/depersonalization-and-derealization-from-lyme-disease-and-its-coinfections.html

And now, in my personal situation, I am the one with the better memory - unless I'm dealing with quite a bit of brain fog that day. Hubby relies on me to remember a lot of different things - so there's always hope!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

ChickNorris
Veteran Member


Date Joined Jan 2012
Total Posts : 622
   Posted 2/11/2017 2:07 PM (GMT -6)   
My memory has been awful lately, and I'm only 34. I forgot how old my oldest son was. I thought for sure he was 9 but he is 10. I only realized this after I was talking to my husband about this other kid and I was like, he is the same age as Jett, 9! And my husband was like.....no? LOL! Not really that funny!
I forgot what airline I was flying out on yesterday so I ended up in the wrong terminal, waited in line for the wrong ticket counter. Forgot how to get to baggage claim in an airport I have been to a hundred times. Just stupid stuff that makes me feel like a wandering idiot.
Igenex 9/2016 31-I, 39-I, 41-++, 58-+
CD57: 28
Positive for early antigen EBV

11/22/16 started Doxy 100mg/2x a day, Samento and Banderol 10 drops/2x a day
1/10/17 stopped Doxy, abx break

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3827
   Posted 2/11/2017 2:49 PM (GMT -6)   
ChickNorris said...
My memory has been awful lately, and I'm only 34. I forgot how old my oldest son was. I thought for sure he was 9 but he is 10. I only realized this after I was talking to my husband about this other kid and I was like, he is the same age as Jett, 9! And my husband was like.....no? LOL! Not really that funny!
I forgot what airline I was flying out on yesterday so I ended up in the wrong terminal, waited in line for the wrong ticket counter. Forgot how to get to baggage claim in an airport I have been to a hundred times. Just stupid stuff that makes me feel like a wandering idiot.


No wonder you were so upset yesterday. Anyone of us in brainfog would be in a panic in those surroundings.

3HumpedCamel
Veteran Member


Date Joined Aug 2016
Total Posts : 578
   Posted 2/11/2017 5:05 PM (GMT -6)   
I've had substantial memory loss... I've lost big chunks of time. I am not old either. Some of this was related to bad mercury issues (living in a house where gas meter was moved and mercury mess not cleaned up) ... I doubt it ever comes back. Good news is I can make up a past that suits who I am now 😂😂😂. Sorry... bad joke.

Most recently, I had a terrible time talking. Would lose words to not think of things I wanted to say, losing a thought mid-sentence... that is really not happening at all now...

Kct
Regular Member


Date Joined May 2016
Total Posts : 183
   Posted 2/11/2017 10:17 PM (GMT -6)   
I recommend Strattera . I also take Nuvigil really helps with pain and alertness. It is why I still have a job .

seyshell
Regular Member


Date Joined Sep 2014
Total Posts : 39
   Posted 2/7/2018 8:36 AM (GMT -6)   
What helps with the memory? I am 63 and been treating since I got bit in 2011.

Isn't ashwaghanda suppose to help?

Lately I cant remember names ...like my adult childrens' friends names? Actors/actresses? Movie titles, etc

Scarey.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/7/2018 1:12 PM (GMT -6)   
For me - it is the infections...and when I flare/herx - look out.

It still 'throws' my husband...he can't believe it sometimes....


Just had a very busy 4 days flying from West Coast Canada to Washington,DC = 4 airports and three flights going there...and the same coming back 3 days later.

Going there - I was having a bad day symptoms wise...and I was useless...no help to hubby at all...in fact most likely a hindrance.

Coming back...having a good day...and I did quite well - remembering Gate numbers...etc.

My husband carried the passports, boarding passes, schedule of flights...etc. on the way there. He gave mine back to me on the way back....because he knew I could handle it.

The way I look at it, Seashell - is if I can have good days where my brain is doing well...memory, cognition...then when those 'flares', herxes subside...I'll be good to go.

Seyshell - are you currently treating - and what infections?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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