So glad to hear you’re improving and doing well! I took Dapsone for about 9 months but herded terribly on it. Had to start very slow. Couldn’t tolerate 50mg. I just felt awful for that 9 months on it and kept feeling worse and worse. I think Babesia is a big problem for me. Am on Alinia now and it’s kicking my butt. Getting terrible mental herxes too. I just have major detox issues and herx very easily. I just sent in hair sample for heavy metals test. Wondering if that’s what’s clogging up my detox pathways.
Thanks! Still a little ways to go and treating babesia is such a grind but making progress which is what counts
Alinia is a good one as well. Def have to go at the pace you can tolerate, some people have strong responses to alinia. I have heard for some people dapsone herx is too much, even with a careful ramp-up in dosage. I shared this post in a couple other threads, but it's just a little reminder to pace treatment at the rate you can tolerate: http://francisholisticmedicalcenter.com/images/managing_through_the_herxheimer_reaction.pdf
I'm not always great at following that advice so sometimes I have to go back and reread it as a reminder to not overdo treatment beyond my tolerance thresholds.
Some people find antihistamines helpful for managing herx reactions (seems to help me), could be something worth looking into. I think a subset of patients have detox issues and also immune hypersensitivity to the organisms themselves (MCAD).