Chicken Arise has anything specific helped you?
Yes and I will get to some of that soon so stay tuned.
In the meantime....
Check this out.
If you discount the alluded racial bias, this sounds like a part of what we have come to know as a part of Morgellons and it has a name!
The culprits are my old friends Propionibacterium acnes (for which I am on 100 day course of high dose Augmentin), Yeasts (Malassezia species), and Demodex mites !
I dunno about
the statement of irreversible alopecia as I am slowing hair loss dramatically. Maybe treatment guarantees it.
Here's where it gets really cool:
Newer pathologic hair findings include: pigmented casts,black dots, and "3D" yellow dots
. Newer associations include: keratitis-ichthyosis-deafness syndrome, Crohn disease and pyoderma gangrenosum. Older associations include arthritis and keratitis.
Are you ready for the name?
Say the following 5 times quickly: Folliculitis et perifolliculitis capitis abscedens et suffodiens
Folliculitis et perifolliculitis capitis abscedens et suffodiens is a rare disease of unknown etiology. It is a suppurative process that involves the scalp, eventually resulting in extensive scarring and irreversible alopecia. The condition is also known as ‘acne necrotica miliaris’ or ‘Proprionibacterium’ folliculitis...
The clinical picture is determined by fluctuating painful fistule-forming conglomerates of abscesses in the region of the occipital scalp. The cause of scalp folliculitis is not well understood. It is generally considered to be an inflammatory reaction to components of the hair follicle, particularly the micro-organisms.
These include: bacteria (especially Propionibacterium acnes, but in severe cases, also Staphylococcus aureus), Yeasts (Malassezia species) and mites (Demodex folliculorum).
The initial histopathologic finding is an exclusively neutrophilic infiltration followed by a granulomatous infiltrate. The treatment of the disease is usually difficult and often disappointing.....
The main reason is considered to be the disordered keratinization and further occlusion and accumulation of keratin at the hair follicle.
After a dilatation followed by rupture, not only a granulomatous inflammatory process accompanied by the attraction of gigantic cells, partially phagocyting the keratin masses are induced in the hair follicle, but also an inflammatory bacterial process derived from a superinfection
, most frequently caused by Staphylococcus aureus and Staphylococcus epidermidis, which are considered to be the main factors in the chemotaxis of neutrophils.
Now for the treatment (not cure) and its a doozy....
Successful treatment with isotretinoin 1 mg/kg body mass could be achieved only after regular systematic administration in the course of 3–4 months.
Eruptive purulent form of the disease, has been controlled
with combination therapy: systemic antibiosis with metronidazole and clindamycin, dermatosurgical removal of single nodular formations, and isotretinoin 1 mg/kg body mass for 3–5 months.
I will be honest, the treatment sounds almost as bad as the condition. Plus its just one facet of Morgellons. There's also a cancer scare statement contained within so be prepared as it could be suggested at any time that you should treat with chemo and radiation. Dont fall for it. We all know better.
At least we have a starting point and a name (holy heck and how) and medical journal references.
You can bring it to your doctor and see if he can pronounce it. After all paying for med school gives them a license to be condescending but only if they pronounce it correctly.
Be prepared for the doctor to place emphasis on the disease affecting men of African-American or African-Caribbean descent. So you will have to bring the second article.
There has got to be a better solution./www.ncbi.nlm.nih.gov/pmc/articles/PMC3132914/
Here it acknowledges "but the condition also has been reported in other races and in women. "emedicine.medscape.com/article/1072603-overview
And one for good luck/www.ncbi.nlm.nih.gov/pubmed/24852785
The drug sounds like a weaponized modification of Vitamin A
Isotretinoin is available only from a certified pharmacy under a special program called iPLEDGE. You must be registered in the program and understand the risks and benefits of taking this medicine.
It is dangerous to try and purchase isotretinoin on the Internet or from vendors outside of the United States.
Isotretinoin in just a single dose can cause severe birth defects or death of a baby. Never use this medicine if you are pregnant or may become pregnant./www.drugs.com/mtm/isotretinoin.html
Newer treatments reported include tumor necrosis factor blockers (TNFB), quinolones, macrolide antibiotics, rifampin, alitretinoin, metronidazole, and high dose zinc sulphate (135-220 mg TID). Isotretinoin seems to provide the best chance at remission, but the number of reports is small, dosing schedules variable, and the long term follow up beyond a year is negligible; treatment failures have been reported. TNFB can succeed when isotretinoin fails, either as monotherapy, or as a bridge to aggressive surgical treatment, but long term data is lacking. Non-medical therapies noted in the last decade include: the 1064 nm laser, ALA-PDT, and modern external beam radiation therapy
. Studies that span more than 1 year are lacking./www.ncbi.nlm.nih.gov/pubmed/24852785
So ask your doctor about
Supercalifragalyeasticancemitadocious today! And let me know how it goes.