Morgellons and llmd treatment suggestion

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goshawk
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   Posted 3/4/2017 1:24 PM (GMT -7)   
Hi, I just wanted to get some feedback on some of my aggravating symptoms(sores all over scalp/itchy/biting sensations in right leg and torso,and one vision incident) I have been having which I have confirmed this morning by microscope is Morgellons. Unfortunately, and very disturbing.

I was doing pretty good about 90% better since Sept/16 until a few weeks ago when this got worse.

I could go on and on....it's just upsetting to add another issue to this Lyme stuff.

Anyways, I called my llmd and asked if I should be on any other medicine for this. He said that when you treat the Lyme ,you also treat Morgellons too. So He suggested I just stay on the zithromyicin and malorone I'm currently taking.

He doesn't do herbals but he is aware I am on Buhner's (lose doses so far, still slowly increasing).
Jk,Sida acuta,Andrographis, Cats claw-tomentosa,Cats claw-rhynchophylla,Salvia miltiorrhiza,scutellaria baicalensis.

Also thanks Trumpet123 for alerting me to this Morgellans in your post yesterday. If anyone else has some of these similar symptoms you might want to check it out to be sure if you have Morgellans or not. I really hope you don't have it.

Do you think I'm on the proper things to take care of this or should I add something else?
If anyone else has this what has worked for you?

Thanks I would appreciate any input on this matter, sincerely, Jo

Krimpet 🍔
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   Posted 3/4/2017 2:40 PM (GMT -7)   
Bump
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PeteZa
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   Posted 3/4/2017 3:17 PM (GMT -7)   
I always reach for Buhner when anything comes up so this is what I found.

buhnerhealinglyme.com/herbs/herbs-for-morgellons-disease/
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You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

goshawk
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Date Joined Sep 2016
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   Posted 3/4/2017 3:30 PM (GMT -7)   
Thanks PeteZa. I have his book and read up on it but I am just beside myself right now worrying about this.

Also I was a bit nervous about taking the borax internally, even though its diluted.But I did increase the Sisda acuta today. Hoping that will help.

I just hope in time I can get rid of this too.
Thanks again Sincerely, Jo

PeteZa
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Date Joined Jul 2015
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   Posted 3/4/2017 3:37 PM (GMT -7)   
Jo, I am very unfamiliar with Morgellons. It definitely sounds scary.

I hope you find some relief.

Most of what I have read on the web is negative, so be very careful saying you have this to a doctor!!! Many patients have reported that their doctor told them they were crazy.

Most of us with lyme have been told we are crazy and it is all in our head. I just wanted you to be aware.

I will definitely put you on my prayer list.
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You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

Ruthie
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   Posted 3/5/2017 7:09 AM (GMT -7)   
The world's most experienced Morgellons practitioner, Ginger Savely, has a new book titled "Morgellons" at www.Amazon.com for about $25. It has a whole chapter on treatments, including medicines and ointments that help. You should buy the book and share the information with your doctor. It isn't yet known whether Morgellons is a separate disease or rather a bizarre manifestation of Lyme disease that most people don't get. Lyme bacteria has been found in the sores of Morgellons patients. Lyme treatment helps, but Ginger has found that bartonella treatment protocols work even better for many patients. Some people also need antiparasitic and/or antifungal drugs.

Ruthie
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Date Joined Mar 2017
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   Posted 3/5/2017 7:19 AM (GMT -7)   
Ginger Savely's website is www.gingersavely.com. Doctors can get her email address at that website and email her for her treatment protocols. (She won't send it to doctors.) There will be a Morgellons conference on April 29-30 in Austin, Texas. It's a great conference for patients and doctors. See www.thecehf.org for details. You can get an information paper about Morgellons by emailing the Lyme Association of Greater Kansas City at Lymefight@aol.com.

dacarte3
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   Posted 3/5/2017 8:11 AM (GMT -7)   
I had morgellon symptoms. They are additional symptoms that can manifest when having lyme. A vast majority of people with morgellon symptoms have lyme, however most people with lyme don't have morgellons or the symptoms are so innocuous that they don't realize it.

My success treating morgellon symptoms was gut health. When fungal/yeast issues get out of control to the point it's systemic, people may experience morgellon symptoms.

Even people without lyme have experienced it.

What I did was use anti-fungals, high quality probiotics, and a paleo diet. Couple all this with lyme herb protocols.

I no longer experience things like fibers or specks or glitter *knock on wood*. This makes sense as it coincides with 90% of lyme symptoms being gone as well.

So yes your LLMD is correct. A complete and holistic treatment of lyme also treats the additional morgellon symptoms.
Positive for Lyme (Igenex), Ehrlichia (Igenex), and Mycoplasma (Labcorp)

ABX Treatment: 03/2016-04/2016
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016

95% Symptom Free. Now repairing the body: Thyroid health and physical therapy

Traveler
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   Posted 3/5/2017 8:41 AM (GMT -7)   
If a person has the fibers and sores, Lyme treatment alone likely won't heal it. I don't know a lot, but am friends with a few Morgellon's patients on Facebook. There is one gal that really knows her stuff on Facebook, but she doesn't have a 'Facebook group'. I can share her name in an email to anyone looking for support and guidance.

Morgellon's is connected to Lyme, and the person does need Lyme treatments, but they need more than what those without Morgellon's symptoms would need - plus doing the other things.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

magoo2
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Date Joined Mar 2015
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   Posted 3/5/2017 8:47 AM (GMT -7)   
Like many diseases they can be more than one cause.
I had M and when we treated dental and then parasite it went away. I treated parasite first but M never went away until we treated dental. Just my experience

dacarte3
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Date Joined Feb 2016
Total Posts : 1728
   Posted 3/5/2017 10:38 AM (GMT -7)   
Traveler said...
If a person has the fibers and sores, Lyme treatment alone likely won't heal it. I don't know a lot, but am friends with a few Morgellon's patients on Facebook. There is one gal that really knows her stuff on Facebook, but she doesn't have a 'Facebook group'. I can share her name in an email to anyone looking for support and guidance.

Morgellon's is connected to Lyme, and the person does need Lyme treatments, but they need more than what those without Morgellon's symptoms would need - plus doing the other things.


The severity definitely matters. I can only speak from the perspective of mild to moderate Morgellon symptoms, not severe.

goshawk
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Date Joined Sep 2016
Total Posts : 1477
   Posted 3/5/2017 2:47 PM (GMT -7)   
Hi Thanks everyone for responding. Great information. Right now I would say I have mild symptoms.

I'm wondering if when I was bitten by chiggers in May 2016 in Texas, the rash/itchy sores I got after was really the beginning of Morgellons. The itchy sores were all over my legs and torso, probably over 50 sores.
probably never know. When I came down with the bad neuro-lyme symptoms in September I still had a reoccurring small rash on back of my right leg. about 5 itchy sores.
It cleared up right away on doxy.
Ruthie: Thanks I did order the book so I can learn everything a bout this.

Traveler:I will email you, I would like to connect with others about this.Thanks so much.

magoo2: It is so reassuring to hear you were able to get rid of it, it gives me hope.

dacarte3:Thank you too. The best medicine after figuring out I have this besides having Lyme, is hearing from others and reading about your experiences.

The good news is my nuero lyme symptoms have been much better over the last few days. smile Yeah!!!

Take care, Sincerely, Jo

The Sal
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Date Joined Feb 2017
Total Posts : 18
   Posted 1/1/2018 5:20 PM (GMT -7)   
magoo2 said...
Like many diseases they can be more than one cause.
I had M and when we treated dental and then parasite it went away. I treated parasite first but M never went away until we treated dental. Just my experience


I'm wondering if you can elaborate on the dental issues you treated?

goshawk
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Date Joined Sep 2016
Total Posts : 1477
   Posted 1/1/2018 6:18 PM (GMT -7)   
Hi Sal and welcome back,

Since this is an older post , Magoo might not see your question. You could start a new post with something in the topic heading like "Question for Magoo....dental issues treated?"


Hope this helps and I hope you are doing well, Jo

magoo2
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Date Joined Mar 2015
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   Posted 1/1/2018 6:43 PM (GMT -7)   
I did miss the question. I had a terrible dental infection that my regular dds missed. After that we had some cavitation issues. I highly suggest attacking the dental. Find a biological dds with an eav or a cavitat. My St. Louis doc is simply the best at finding dental and parasite-simon yu
After dental parasite find some ozone treatment and the Morgellons will be gone-dental will have to be double checked some months later-often it has to be done again. Find a biological dds who usues prp and ozone.

Post Edited (magoo2) : 1/1/2018 6:50:03 PM (GMT-7)


dacarte3
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Date Joined Feb 2016
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   Posted 1/1/2018 7:11 PM (GMT -7)   
Morgellons definitely has a parasitic component to it.

Those that recovered addressed dental issues. Others it's parasites in their gut and/or skin (including me and I believe ChickenArise).
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

magoo2
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Date Joined Mar 2015
Total Posts : 1038
   Posted 1/1/2018 7:34 PM (GMT -7)   
Dental is a big part of Morgellons and it sucks-you may have to get a cavitation cleaned out two of three
times-really sucks .Hit it hard. The only thing that sucks more is Morgellons!

Dental-parasite-ten pass ozone will cure Morgellons as long as you get the dental cleaned out

I didn't do it but I would check marcons also. I just learned of it

The Sal
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Date Joined Feb 2017
Total Posts : 18
   Posted 1/1/2018 8:24 PM (GMT -7)   
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.

dacarte3
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Date Joined Feb 2016
Total Posts : 1728
   Posted 1/1/2018 8:43 PM (GMT -7)   
The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.


Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

magoo2
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Date Joined Mar 2015
Total Posts : 1038
   Posted 1/1/2018 8:43 PM (GMT -7)   
Sal do you use a biological dds?

I would not rely on a traditional dds-Two of them missed my major infection. You can always do a dna test of the infection with a lab called dental dna-cheap

Most dds will miss infections. Find someone who uses a cavitat and I bet you will find infection

Post Edited (magoo2) : 1/1/2018 9:00:19 PM (GMT-7)


The Sal
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Date Joined Feb 2017
Total Posts : 18
   Posted 1/2/2018 4:52 PM (GMT -7)   
dacarte3 said...
The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.


Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.


Thanks for the reply. Can you give me some suggestions for addressing "gut parasites?"

The Sal
New Member


Date Joined Feb 2017
Total Posts : 18
   Posted 1/2/2018 4:55 PM (GMT -7)   
magoo2 said...
Sal do you use a biological dds?

I would not rely on a traditional dds-Two of them missed my major infection. You can always do a dna test of the infection with a lab called dental dna-cheap

Most dds will miss infections. Find someone who uses a cavitat and I bet you will find infection


I have not yet, it's next on my list of things to have done as I can afford it. My LLMD gave me some names of biological DDS's. I've had heavy metal testing so I need to get these fillings taken care of so I can start chelation. Thanks for the response.

dacarte3
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Date Joined Feb 2016
Total Posts : 1728
   Posted 1/2/2018 7:09 PM (GMT -7)   
The Sal said...
dacarte3 said...
The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.


Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.


Thanks for the reply. Can you give me some suggestions for addressing "gut parasites?"


I didn't do any drastic.

I took a couple of different antifungals. I drank fermented probiotic vegetable juice/drinks. The real deal probiotics that have a strong fermented smell and you can hear the bacteria in it. The legit kind, not the dead synthetic probiotics you find at the grocery store or CVS. I got mine from a company I thoroughly researched from Australia.

Boosting my gut biome (and thus my immune system as well) is the route I took. Turning my own biological army to fight against parasites, yeast and fungus. Then the antifungal was nystatin in powder form.

I've written some past post that more thoroughly explains what morgellon symptoms are.

Most people with Morgellon symptoms have lyme. But most people with lyme don't have morgellons. (yes I wrote that correctly).

A small minority of people with morgellon symptoms don't have lyme at all.

It's in this small minority of people did I dig deeper into my research, because they are some what like the "control group" because they don't have lyme.

So then what "really" causes it?

The answer is when a person's immune system is significantly suppressed and a person's gut flora is depleted (antibiotics is a common culprit of this) parasites, yeast, and fungus start to run a muck.

The person than gets a severe systemic infection of parasites, yeast, and or fungus. This creates morgellon symptoms.

Lyme just so happens to be that perfect storm of a immunosuppressive and gut attacking, automimmune, multisystemic disease that creates the bodily environment that can bring about this domino affect in which morgellons manifest.

Then on top of all of that we help further destroy our gut flora with ABX trying to treat lyme disease.

Edit: some others on this forum went a bit more hardcore with it and took anti-parastic meds. Some where designed for animals, which just shows you how desperate we lymies can get because the main stream medical community are not helping us.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present
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