Welcome to our community! I'm glad you found us.
As Cr3ativegirl said, if you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.
And, here's another good place to find helpful detoxing routines: http://www.tiredoflyme.com/detox-methods.html
I hear what you are saying about
the Lyme literate doctors (LLMD's) - it's as if they are in an underground network. But that's because they have been forced to be there. Why? Because the CDC and the medical boards refuse to allow them to practice medicine that doesn't include them strictly following ILADS (International Lyme and Associated Diseases Society) treatment guidelines for these infections instead of the highly faulty and misleading IDSA treatment guidelines. The LLMD's get brought up on charges in front of medical boards, and end up either losing their license or have to hire an ID doctor to oversee every treatment decision (so back to IDSA treatment guidelines), and it usually ruins them financially - so either way they are out of business.
This is not because the ILADS treatment guidelines are wrong - as a matter of fact, they replaced the IDSA treatment guidelines in the National Guidelines Clearinghouse with the ILADS treatment guidelines, so this should not be going on at all - and yet it continues. No one can find a clear answer for the reason why, unless you delve into the assumption that they have something to hide. But, that's a story for another thread.
Here's some differences between the two though:
ILADS vs IDSA:www.clinicaladvisor.com/controversy-continues-to-fuel-the-lyme-war/article/117160/archinte.jamanetwork.com/article.aspx?articleid=226373www.ncbi.nlm.nih.gov/pmc/articles/PMC2901226/
For information on finding an ILADS trained LLMD in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact information to be posted on the forum. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread titled something like "Looking for LLMD in the
(insert the nearest larger city & state)
area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can email the Tick-Borne Disease Alliance at
[url]email@example.com for LLMD referrals
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)