tremors a sign for?

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gfields
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Date Joined Oct 2015
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   Posted 3/10/2017 10:50 PM (GMT -6)   
What has been your experience with lyme tremors?

Did it mean you were getting better? Did it mean you were getting worse? Did it mean that lyme penetrated deeper than it had before?

Tremors are a relatively new symptom for me. They start about 2 months ago. I've noticed the more stressed I get, they worse they become. In meetings at work, I've been getting self conscious about them, because it's difficult to type and I wonder if people notice that my hand is shaking.

I'm worried they will continue to get worse until the point they become debilitating. They're really not too bad right now, and I'm probably over reacting, but it is worrying.

What has been your experience with them? Do they go away eventually, or get worse over time?

astroman
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Date Joined Mar 2014
Total Posts : 5090
   Posted 3/10/2017 11:30 PM (GMT -6)   
There were a couple posts on this in the last month maybe. I dont remember who responded.

Having tremors for quite some time (of and on for a couple decades), my worst point was when my forst symptoms all hit me like a ton of bricks, then it leveled off for a decade. Then most recently at the time of my heightened toxicity from lyme treatment combined with candida. I Detoxed more aggressively, but it didnt matter, plus I have some genes that make methalation / detoxing not as optimal as in some people.

Work performance was affected so I went on Rx Propranolol, which is one of the first beta blockers but also commonly used for essential tremor when prescribed in extended time release form. It does the job no herbs would do. You could say it saved my "employ-ability". Doesn't bother me anymore, This still improves slowly, it sometimes acts up when stressed to- so adrenals might play a part of it too.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33893
   Posted 3/10/2017 11:34 PM (GMT -6)   
For me the tremors happened about 4 months after my first Lyme symptoms.

It lasted until I started treatment - It actually resolved early on on treatment.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 3/10/2017 9:39:26 PM (GMT-7)


Girlie
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Date Joined May 2014
Total Posts : 33893
   Posted 3/10/2017 11:38 PM (GMT -6)   
Astro - Do you experience any side effects from the Propranalol?

- like lowering of your blood pressure?

My LLND suggested I try it for my nervous system shivers but I never did. Not sure I want to lower my blood pressure.
He thought I might be able to go on it for 30 days - then stop and maybe the shivers would stop.
I guess he was thinking that I needed to interrupt it and break the cycle.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4903
   Posted 3/11/2017 12:15 AM (GMT -6)   
6 month into treatment got bad ...random muscle twitching...leg giving out etc etc ...iv magnesium helped ,oral and mag creme and epsom salts ,high dose efa and biotin with bvt and bartonella treatment ...i think its the buggers in the nerves ,pretty much gone but needs attn imo

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 966
   Posted 3/11/2017 9:39 AM (GMT -6)   
Interesting. I've never heard of Propranolol. Did you LLMD prescribe this for you?

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/11/2017 9:42 AM (GMT -6)   
My tremors were always there when I was really struggling. When I was healing and doing well, the tremors weren't there. But, your tremors and my tremors would have to be caused by the same issues for it to be the same for you - and there's no way of my knowing just what was going on at the time. My practitioner was not allowed to run any tests where she had to use a lab (crazy Arkansas laws - she wasn't a licensed MD is the only reason).
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 966
   Posted 3/11/2017 11:47 AM (GMT -6)   
So they eventually went away?

I wonder what the mechanism is of these tremors. I wonder if the spirochetes are eating away at the part of the brain that controls this. Or if they're screwing around with the spinal chord somehow.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/11/2017 12:17 PM (GMT -6)   
Yes, my tremors are gone for the most part. Being reinfected at this point, I have noticed that I get the feeling of a small tremor when I'm really pushing myself physically, but they never manifest to where they are evident to anyone walking by me any more. Treatment cleared it up.

I'm not sure what actually "goes awry" when we manifest tremors. It could be nerves, muscles, or even the brain, but it can all heal. Even those with "full blown" Parkinson's symptoms have healed.

I used to get several types of tremors - one was called "Intention tremors" - these happen when we are 'intending" to reach for something or place our leg/foot in a specific place (we 'intend' on doing something) and I believe those are from the brain. But, I also got full body tremors that were not connected to any action - they hit when they hit - and it was violent shaking, so much so that I could never stay on whatever I was sitting or laying on. Those were scary - and exhausting! For a long time, people thought I was having seizures again, but I don't believe I was, as it honestly just felt like my muscles were just doing things apart from me, as I have had seizures as well with these infections.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5090
   Posted 3/11/2017 12:21 PM (GMT -6)   
Tremors can be caused from many issues all rolled together. Just like the cause of a perfect storm.

Its part toxicity, hormones- thyroid- adrenals-others, muscle fatigue, nerve issues - when some or all are askew- tremors can happen. All this stuff can happen when lyme is rampant. So if someone says it was from lyme and went away when lyme went away- its this stuff that most likely got better. Brain/nuero stuff does it too too- from lyme.

I could not wait to resolve this, at the time a couple years ago it was at it worst peak, I needed to remain employable. I still tremored some days on it but less, since I didnt take a high dose. Still on ot too, but I tremor very little this winter.

Keep in mind I had lyme for decades, I do believe there is some long term lyme effects that linger or heal very slow like nervous system and adrenals, and I have autoimmune hashimoto too- that can make tremors too. So everyone's outcome can be different.

If you shake with movement its called essential tremor and propranerolo has been used for that for many years. Yes it will lower your BP too, mine was little high, so might as well.

Skakeing while not moving is non-essential tremor - look at parkinsons ect - similar thing but they shake when not moving..

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33893
   Posted 3/11/2017 1:30 PM (GMT -6)   
I'm still not convinced that the Propranolol is something I want to try...since I don't have the anxiety through the day (I have about a minute of it when I wake in the morning)...and no tremors.

Also, my bp is often below 105 so don't really want to lower it....
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

1234567890
New Member


Date Joined Apr 2018
Total Posts : 16
   Posted 4/15/2018 7:55 PM (GMT -6)   
Sorry to respond to an old thread but I have this too.

I start shaking and it almost feels like restless leg syndrome, its like the need to shake.

I really want to know if its a herx or antibiotic toxicity.

I hope its a herx.

It's more intense than a tremor, although I have those too.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5090
   Posted 4/15/2018 8:18 PM (GMT -6)   
The info is this thread is pretty accurate for tremors.
Shakes- I'm not sure.


For Tremors:

some its a herx, for some (myself) it was semi long term and a herx double whammy.

Thats why I took one of the few tremor meds there are - propranerolo, it helped keep me employed.

The cause is part brain amino acid imbalance, nervous system, part adrenal , and part weak/tight muscles that cant move smooth.

For some people amino acid choline helps.
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