I think what I should have said, was that the crazy one for thinking that was me! Somehow I thought everyone else was crazy but "I was truly sick". I now cant believe how horrible it was for me to think that. I can tell you that the worst of this how it has affected my brain. Its hard to read, write, and comprehend things, not to mention the embarssment of forgetting everything. I cant tell you how many times I make up excuses for not remembering things. I have become the best lier unfortunately.
Anyway thank your for responses, I feel so alone in this situation although I have a wonderful husband and kids.
I have a few questions I would love help with:
1. How do you tell people what you have? I told one friend and she looked it up and didnt think it sounded that bad? Once again I felt like the crazy one.
2. Is it normal for a Lyme doctor to never do a psysical exam and start you on herbals before doing a
an exam? I am now so scared of doctors that I dont trust them anymore.
3. The doctor also doesnt think having an ECG or any type of neuro testing is necessary. Is that normal for Lyme doctors.
4. Does taking antibiotics the week before the Igenex for a bladder infection affect the results?
Thanks for the help on any of these questions.
I seriously doubt anyone on here will hold that against you. What it took to admit to it shows us a lot about
you - and I think that a lot of us wish we had something - nearly anything - other than these infections.
1) I tell people I have Lyme disease. I've had a few that have come back with "oh, I had that and took a couple of weeks of abx and was done with it" and I just respond with that I've had it long enough for it to invade every aspect of my body - brain, heart, nervous system, and more - and how happy I am that they didn't have to go through that. If they were to tell me it doesn't sound that bad, I would just tell them that they didn't look far enough into chronic Lyme. But, I'm very upfront with it all. I'm pretty much the same person 'out there' as I am on here. LOL!
2) Not many LLMD's do a full physical - they assume you searched them out, have seen quite a few doctors and have had plenty of useless physicals (which rarely reveal issues like we have). They may order blood tests, depending on what you have previously had done.
3) This would depend on what kinds of symptoms you are having. I've never had symptoms to suggest that I needed to have an EKG, so I've not had one. If you don't have significant neuro issues, they may not do neuro testing, or they may just assume that it won't show much. I had a bunch of neuro testing done over the years, and all it ever told the doctors is that I wasn't lying about
how messed up my nerves were, but it didn't lead to anything else.
4) It's possible that the abx usage could mess with the results, but maybe not, as they will not be as strong as what is used for these infections. This would be just something to keep in mind when your test results come back - the only direction it may go that you need to be concerned about
is that it may return with a negative result. You have the symptoms of these infections, including a bulls eye rash, which the only way to get that is to be infected with Lyme - so there's no doubt that you have at least Lyme, and most likely other infections as well.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)