Let the CDC know how you feel!!!!

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Purrrsiankitty
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Date Joined Dec 2016
Total Posts : 1734
   Posted 3/18/2017 11:03 AM (GMT -7)   
I can't go there ..... I know it will set me back .. reading these comments is enough to forwarn me.

Is there any hope?
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16.

mpost
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Date Joined Feb 2015
Total Posts : 1167
   Posted 3/18/2017 1:10 PM (GMT -7)   
Guys seriously, CDC does not care how you feel. Stop telling them how much of a victim we all are because of this disease. It never works.

The only social thing that works is mass protests, unfortunately we need tens of thousands not thousands to make a difference. A few green plates and half dozen thin, pale and angry protesters will NOT tell the real story of how stupid this situation with chronic lyme is.

The media will just say "look, some bunch of crazy vegans with green plates", and move on...

And i know lyme has drawn more attention in the media recently. Not enough to make CDC twitch a muscle...

Good material to watch about the AIDS epidemic and how protests were organized back then in the 80s /www.youtube.com/watch?v=P4diCNXfgsk
Almost certain chance of death in next 9 years for untreated AIDS - that's a hefty reason to get angry ASAP.

Recently, the only difference made with advance in Lyme knowledge is some very wealthy people got sick and pumped money into research through foundations, thus producing research papers that show lyme can be chronic, they pile up and can no longer be ignored. This is what changes the perspective @CDC not us... we are not angry enough, that's because most of us know we will not die of lyme, just have a poor quality of life. Apparently that's not enough to get humans angry ...

julymorning
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Date Joined Jul 2015
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   Posted 3/18/2017 4:11 PM (GMT -7)   
I'm dying of complications from having it for so long with no treatment. Well, you did say most won't.

But I am skeptical of any government monies being liberated for our cause.

You know that if any CDC employees do get infected, they will be like the rest of the hard heads and deny it or deny it if it gets chronic, not if it ends up being one of their loved ones, who knows. We see loved ones of family members not accepting so why would they of theirs? The pay off must be huge
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

madisongrrl
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Date Joined Oct 2016
Total Posts : 230
   Posted 3/18/2017 4:43 PM (GMT -7)   
Psilociraptor said...
Hehe madison i know who you are!!! Not really i can't remember your name... I commented on that one too and can't find it. At the bottom it says 40 of 60 comments but won't let me load the others. So i don't know if they deleted it or if it just got lost in a computer glitch. But yeah... some serious ignorance. "No prominent neurologist believes in chronic lyme". Must be exactly why Norman Latov who is not a Lyme physician or has any vested interest in anything but peripheral nerve disorders refers to it as chronic Lyme in his paper on OspA induced CIDP... There's nothing i hate worse than crusaders of science who don't actually read science but rather support the status quo as if these organizations are gods. The irony is too much to handle


Yeah, I don't know what happened to that whole chain I was posting on. The people who believe chronic Lyme doesn't exist and are hell bent on posting there don't really know the science.....at all. They are just posting random internet articles that confirm their bias.

There is some real venom flying on that board from both sides of the coin. I think we really need to be careful how we present ourselves as a community if we want to be taken seriously. We need to be careful in how we engage with others and not have it devolve into name calling and petty arguments. In open forums like that CDC FB post, we need to be evidence-based in our statements and need to point out legitimate flaws in the CDC backed studies.

And I know this is tough for many of use because we've been through the medical ringer, but engaging with others positively is the only way that the other side might consider another point of view. Megan Phelps-Roper just gave an awesome Ted talk on this topic....basically she talks about the way people politely engaged with her on social media is what made her consider a different viewpoint and she left the Westboro Baptist Church.

So it's too bad my posts on that thread disappeared because I really want to engage with the people who have an opinion that is opposite of mine and challenge them to take a look at the persistence studies that were done - especially the 2 part experiment on the monkeys at Tulane.

And if you've figured out who I am on FB, feel free to friend me. I don't mind people knowing who I am. smilewinkgrin

julymorning
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Date Joined Jul 2015
Total Posts : 3808
   Posted 3/18/2017 5:10 PM (GMT -7)   
Madisongrrl, your above post was fantastic! You are so right on how and how not to talk to folks, especially on controversial topics!

Another thing is to always try to find some kind of common ground, even if it's a one square inch patch. Something that two strangers can see a similarity to themselves. And try to avoid putting someone on the defensive. Though you can't often predict what some will take offence at!

Having said all that, the internet isn't always the best place to get folks to rationalize, because people sometimes don't behave rationally while they can hide behind a computer screen.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 3/19/2017 8:06 AM (GMT -7)   
I completely agree, Madisongrrl!! I do my best to conduct myself in that manner - everywhere but here!!!! LOL! turn Here I relax and you just get 'me'. LOL!

The hardest thing for me is to not get angry at the name calling - from both sides. As you said, we really need to be careful how we present ourselves as a community if we want to be taken seriously.

The first thing we have to understand is that people read what the CDC says and can't believe they would be putting out false and misleading information. Seriously - it makes no sense to them, just like it makes no sense to us - but we are on the other side of that coin, and are living what the CDC says doesn't happen. So, you have to explain that information sources matter, and some will go so far (as I was challenged one time to do) to prove that chronic Lyme exists by sources that are accepted by the CDC. I have plenty of PubMed articles bookmarked, so I've got that covered - but you still have to show how the articles that ARE accepted by the CDC are wrong, and the articles that the CDC wishes to ignore are very relevant because they are backed up by research studies and clinical trials and such. Otherwise it's just a war of presenting articles that contradict each other.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

mm57553
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Date Joined Jan 2017
Total Posts : 523
   Posted 3/19/2017 8:39 AM (GMT -7)   
I think as more and more state legislators get involved, it's going to put pressure on the CDC. States like New Jersey and Connecticut have already begun to do this. They have seen the effects first hand. They have more power than the average Joe. I think they are going to force more investigations into the CDC and it's leaders. The corruption will be exposed. It's just a matter of time.

astroman
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Date Joined Mar 2014
Total Posts : 4012
   Posted 3/19/2017 9:42 AM (GMT -7)   
Since many "lyme states" politicians now believe in lyme its only a matter of time that this knowledge spreads like lyme itself.

How can it continue to be ignored? CDC will have to cave in sooner or later.

And even if they continue to call it "post lyme syndrome"- they still have to recognize these people are still suffering from a wide range of symptoms.. I'm past that "label", sick is sick. Labeling does not mean its OK to ignore. I've used that as an argument point in real life- labeling does not make the symptoms go away or you body work like it used to.

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1053
   Posted 3/19/2017 10:07 AM (GMT -7)   
Madisongrrl - i forgot your name and with that comment deleted i probably won't remember who you are :P Yeah i'm probably guilty of getting a little fiery myself. I can tolerate ignorance. I can tolerate difference of opinion. But what I can't tolerate is people who are there just to antagonize. People who want to "claim" science for themselves, post the same Aurwaerter nonsense and call everyone else "troofers". I try to make a point with each post the best I can but I can't help feeling the need to shut those kind of people down... I've been dealing with that nonsense since way before Lyme. People who don't want to learn, who want to call themselves educated and objective yet uphold the status quo and use peer support to demoralize others. I can't tell you how many of those losers told me my science was bunk before even seeing it. I was on another thread the other day like that where about 10 people ganged up on me circle jerking eachother with likes and demanding 5 sources to prove the microbiome was relevant. So i posted like 30 sources linking microbes to alzheimers, cancer, cardiovascular disease, autoimmunity etc, most of them review articles linking out to hundreds of other papers. Not a single person responded lol

By the monkey study are you referring to the Rhesus monkey one? That ones pretty good as are the studies by Hodzic. That one addresses pretty much all the criticisms i can remember seeing. But who knows. Wormser is pretty creative with coming up with excuses for why a study is not valid while promoting his own unsubstantiated theories.

Post Edited (Psilociraptor) : 3/19/2017 11:11:55 AM (GMT-6)


Traveler
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Date Joined May 2007
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   Posted 3/19/2017 10:13 AM (GMT -7)   
LOL, Psilo!!! I have discovered the same thing - if you stay calm and rational, you can overwhelm them with articles and it shuts at least some of them down.

I've got too much going on in my life to deal with Facebook, so I haven't been on there for nearly 8 months posting and trying to help educate people. I will likely be back to it once my life slows down again - whenever that may be. Right now, my higher priority is school.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Psilociraptor
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Date Joined Jul 2016
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   Posted 3/19/2017 10:51 AM (GMT -7)   
Traveler you're in school? Mind if i ask for what? I honestly wasted two days i should have been studying getting in facebook debates this weekend and now i'm paying for it. I was off facebook for years but i've got some big life transitions coming up so i figured it'd be good to network. Good thing is i probably won't have internet for a while when i move so the time i can waste on facebook will be severely limited lol

julymorning
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Date Joined Jul 2015
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   Posted 3/19/2017 10:55 AM (GMT -7)   
Psilociraptor said...
Traveler you're in school? Mind if i ask for what? I honestly wasted two days i should have been studying getting in facebook debates this weekend and now i'm paying for it. I was off facebook for years but i've got some big life transitions coming up so i figured it'd be good to network. Good thing is i probably won't have internet for a while when i move so the time i can waste on facebook will be severely limited lol


Traveler may be off by now. She's been taking classes to become and herbalist! Appropriate and cool, huh?

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1053
   Posted 3/19/2017 11:19 AM (GMT -7)   
Super cool! I'll be doing that soon as well. Well... 2018... i missed the deadline this year. When she gets back i'm kind of curious what kind of educational path she took for it.

mm57553
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Date Joined Jan 2017
Total Posts : 523
   Posted 3/19/2017 12:11 PM (GMT -7)   
astroman said...
Since many "lyme states" politicians now believe in lyme its only a matter of time that this knowledge spreads like lyme itself.

How can it continue to be ignored? CDC will have to cave in sooner or later.

And even if they continue to call it "post lyme syndrome"- they still have to recognize these people are still suffering from a wide range of symptoms.. I'm past that "label", sick is sick. Labeling does not mean its OK to ignore. I've used that as an argument point in real life- labeling does not make the symptoms go away or you body work like it used to.


Dr. Alan MacDonald made a good point in Under Our Skin - Emergence. He said let's just stop calling it Lyme. Just let doctors code it as Borrelia (or Bart, Babs, etc.), which is what it really is anyway. There is no CDC treatment protocol for Borrelia, so doctors could treat it in whatever way they see best for the patient and insurance will have to pay for it.

astroman
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Date Joined Mar 2014
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   Posted 3/19/2017 1:47 PM (GMT -7)   
Yes , Part of the issue is the technical wording, and part of CDC's defense/argument is that.

CDC says long term lyme does not exist. ...............OK, whatever!

CDC says Post Lye Disease Syndrome does exist. .............this pissis people off but.....OK, then lets figure out how to treat it, dont ignore present symptoms. Play their game.

WE SHOULDN'T CARE WHAT ITS CALLED. JUST FIND A FIX AND ALLOW IT TO BE TREATED AS BEST AS IS POSSIBLE TODAY.

And in cases where it is gone, reality is, damage has occured, lets try to fix that too. Note: many other past infectious disease DO leave permanent marks/damage. Polio did for many after the bug was gone- killed nerves and muscle fiber- left many disabled for life.

birthdaysuit
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Date Joined Mar 2016
Total Posts : 291
   Posted 3/19/2017 3:45 PM (GMT -7)   
Munkra said...
I find it hard to comment while incensed with rage.

Especially reading comments like this : ''I had Rocky Mountain Spotted Fever and wish the CDC could do more for me, but really I'm just here to watch the chronic Lyme truthers embarrass themselves in the comments.''


Munkra this individual probably didn't even have Rocky Mountain fever. I take it you don't know about shilling, JTRIG and the ALDF who hire people to whitewash chronic Lyme and persistent lyme on the web. Now, I'm not saying that nobody has a legitimate argument for disagreeing with chronic lyme what I am saying is this individual uses a very sneaky tactic of attacking the cdc subtly, promoting the idea that he too didn't get much help from the cdc and that he is a logical individual, while simultaneously belittling chronic Lyme patients and using straw men arguments and reductio ad absurdism to confuse and stir up emotions. This tactic works absolutely great. You presend to agree with the opposition by pretending to experience their suffering g while labeling that same opposition crazy.

madisongrrl
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Date Joined Oct 2016
Total Posts : 230
   Posted 3/19/2017 4:51 PM (GMT -7)   
birthdaysuit said...
Munkra said...
I find it hard to comment while incensed with rage.

Especially reading comments like this : ''I had Rocky Mountain Spotted Fever and wish the CDC could do more for me, but really I'm just here to watch the chronic Lyme truthers embarrass themselves in the comments.''


Munkra this individual probably didn't even have Rocky Mountain fever. I take it you don't know about shilling, JTRIG and the ALDF who hire people to whitewash chronic Lyme and persistent lyme on the web. Now, I'm not saying that nobody has a legitimate argument for disagreeing with chronic lyme what I am saying is this individual uses a very sneaky tactic of attacking the cdc subtly, promoting the idea that he too didn't get much help from the cdc and that he is a logical individual, while simultaneously belittling chronic Lyme patients and using straw men arguments and reductio ad absurdism to confuse and stir up emotions. This tactic works absolutely great. You presend to agree with the opposition by pretending to experience their suffering g while labeling that same opposition crazy.


If that annoying dude really had Rockey Moutain Spotted Fever and got treated as prescribed by the current standard of medical care prescribed by the CDC yet was still sick for months on end, well I think he is demonstrating our point beautifully.

madisongrrl
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Date Joined Oct 2016
Total Posts : 230
   Posted 3/19/2017 5:06 PM (GMT -7)   
I used to help teach classes for family dog training. One of my college professors owned the company and she is a world-renowned animal behaviorist. I learned a lot about behavior - both canine and human.

Often times when dogs would bark at their owners for attention, the owners would yell back at the dog to stop barking. So really, both human and dog were barking at each other, which is counterproductive and not teaching the dog anything. A better approach is to withdraw your attention from the attention seeking dog and you will see their barking fade. And if you are consistent with your approach, you will likely get an extinction of the behavior entirely.

This technique can work with FB trolls as well. If you take your attention away from them (even if you are burning up in anger), you will eventually take away their power because you aren't engaging them and giving them a platform to perform on.

Psilociraptor
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Date Joined Jul 2016
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   Posted 3/19/2017 6:26 PM (GMT -7)   
Does that work with cats too? Because I walk away and she keeps screaming at me lol. I'm not doubting you're right but I just can't always do it. It's too much lol

silly sheep
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Date Joined Oct 2014
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   Posted 3/20/2017 2:06 AM (GMT -7)   
I am going to throw in my two cents worth on this topic (I can't help myself, lol!!), just because I have spent the last couple of years not only initially engaging in similar 'discussions' on pages such as this (not only on facebook) but also studying the disingenuous reasons behind them and occasionally somewhat deviously getting to know those on the other side - I like to know what I am up against ;)

1. Sites and pages such as this one are NOT set up to collect genuine information or as a means of educating anyone. They are invariably created to 'have a laugh at the comments thrown at the mentally ill' (I am paraphrasing that into a more polite version of what I was told). By not being drawn into such 'discussions' those who are simply getting a kick or laugh out of it are denied their 'fun' and quickly lose interest and disappear. Remember that those who would chose to spend their time purposely ridiculing those in society who they consider to have a 'mental illness' can really not be considered anyone with reasonable human emotions or reasoning skills. As a species we really ought to have evolved beyond this, but apparently not for some, hey.

2. It is important to remember that those who are 'higher up the food chain' are currently using 'insurgency tactics' - yes, this sounds like paranoia but trust me it is the case. The point is simply to create discord and 'warring factions' and instigate what ends up looking like mob mentality - so that anyone who might seek education simply comes across a farcical situation and thus doesn't investigate further and is thus turned away from getting involved in a positive manner for fear of ridicule.

3. Your time and effort is soooo much better spent helping and supporting those who need it and educating on pages and forums that aim to do so - such as this one or those dedicated to genuinely raising awareness, getting out a message etc. Simply arguing with those who are specifically there to argue back is just giving those 'powers that be' exactly what they want.

4. In my experience, and it is only my opinion, if you are ever going to address one of those adamant Lyme or CLD deniers I have discovered that using a specific scientific peer reviewed article that backs your point is paramount. Simply post it up, make your case then walk away. You have put up the relevant info that would serve as an education tool for those who may read it - and then don't look back and be pulled into a name calling or mud slinging exercise. You have provided the education and the proof. The rest will not be a discussion, trust me.

Here is an example of what I like to use - firstly it is an article by Wormser and others since those you will find yourself up against will most likely refer to other (even creditable, reputable scientists in the field) as quack, they have a hard time arguing against the man whose views they are now spouting. Secondly it contains Wormser's evidence and opinions that agree with what we are generally arguing IS happening. For example -

www.nejm.org/doi/full/10.1056/NEJM199707313370501#t=articleTop

The study sample only included those who definately had Lyme (those with an EM rash)...

'Patients who had been in areas where Lyme disease is endemic, who were eight years of age or older, and who had acute disseminated Lyme borreliosis were eligible for enrollment in this open-label, controlled, randomized, multicenter study. The study was conducted between May 1990 and June 1994. Erythema migrans, defined as an expanding, annular, erythematous skin lesion at least 5 cm in diameter, was required for study entry. Disseminated disease was considered present if the patient had one or more of the following: more than one erythema migrans lesion; carditis manifested by heart block; neurologic abnormalities (seventh-cranial-nerve palsy or radiculitis of less than three months' duration); and acute large-joint arthritis.'

And yet by CDC standards for testing as argued today, many of them would now be told that they don't...hmmmm.

'Ninety-nine of the 140 patients (71 percent) were positive for B. burgdorferi on ELISA at entry into the study. Eighty-six of the 99 patients with a positive ELISA had two or more bands on the Western blot; 30 patients had more than five bands. Sixty-four of these 99 patients met the current CDC criteria for a positive Western blot. Forty-eight of the 64 met the criteria for a positive Western blot with respect to IgM but not IgG. Reactivity to the 41-kd flagellin band was the most common type and was observed for 92 percent of the patients who were positive on ELISA. Reactivity to outer surface protein C was the next most common, occurring in 64 percent of the patients (unpublished data). Of the 29 percent who were ELISA-negative, only 10 subsequently seroconverted.'

Another point made in this article highlights the treatment FAILURE rate -

It is stated that 'only one patient in each treatment group had objective evidence of active disease after treatment'. OK, so that is two patients, the most significant one from the group treated with Doxycycline, but as a percentage of the group, and thus as a percentage of the total number of those suffering from Lyme, for whom the CDC now maintains are ALL completely cured after receiving the same treatment, translates in to a HUGE number of people who will have 'objective treatment failure'. And that's from Wormser himself. Go figure.

Similarly 'Signs and symptoms attributable to the nervous or musculoskeletal system have been noted by other investigators. Two separate, large, retrospective studies of patients treated for early Lyme disease found a surprisingly high incidence of continued signs and symptoms, especially if treatment was delayed Shadick et al. found that 34 percent of patients in a suburban area of highly endemic disease just north of Boston who had been treated for early Lyme disease had long-term sequelae, including arthritis, arthralgia, cognitive impairment, and neuropathy. A similar investigation carried out in Westchester County, New York, found that 114 of the 215 patients studied (53 percent) had persistent signs and symptoms, including neurologic, cardiac, and musculoskeletal disorders.' Of course it is easy for the CDC to now write these off as PTLD symptoms, and yet the article itself clearly states that -

'The clinical significance of the persistent symptoms is difficult to assess. Early studies of Lyme disease focused primarily on the most severe outcomes of the disease, and in the past, patients with minor symptoms have generally been considered to have a favorable outcome.6,16,18 Although there are several possible explanations for the presence of residual symptoms — including continued infection'. Again, go figure.

OK, this is just one of my example but this post is now far, FAR too long (my apologies!!) but after my initially being caught up in such madness and depression causing facebook and other 'discussions' I learned my involvement in them in any other way only really hurt me, wasted my time and solved nothing by way of educating or addressing any one sensible. We know what the truth and the true problems are and by 'playing them at their own game' we will not be manipulated by those whose only intention is to make us question our own sanity - which we do NOT need to do - and we WILL win out in the end!!

Hang in there folks!!

Post Edited (silly sheep) : 3/20/2017 3:09:27 AM (GMT-6)


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 3/20/2017 7:33 AM (GMT -7)   
Silly Sheep!!! It's so GOOD to see you back here!! I do hope that life is good for you!! Well, considering.... smile
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 3/20/2017 7:39 AM (GMT -7)   
Psilociraptor said...
Super cool! I'll be doing that soon as well. Well... 2018... i missed the deadline this year. When she gets back i'm kind of curious what kind of educational path she took for it.


I chose to use The Herbal Academy of New England /theherbalacademy.com/about-us/ as they offer completely online studies, an affordable price, payment options, and a schedule I *think* I can live with. (lol!)

You too? Very cool!! Would you mind sharing what your thoughts are on your educational path? I missed out on my exceptional herbalist teaching me one on one when she had to move out of state to help take care of her parents - so this is the next best thing.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

silly sheep
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   Posted 3/20/2017 8:27 AM (GMT -7)   
Hellooo Traveler!!! You know I am always right glad to be here, it has been toooo long!! Am about to put up new thread so I won't hijack this one ;)

Nice to see so many friendly new faces around though as well as you 'oldies' LOL!!!

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 3/20/2017 8:32 AM (GMT -7)   
Yeah, LOL! I"m one of the moldy oldies!! smilewinkgrin

Lots and lots of new members too!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1053
   Posted 3/20/2017 9:00 AM (GMT -7)   
Wow Silly Sheep, that is quite a find. I wouldn't mind seeing your other examples! Lol. I know that it is widely accepted that two-tier might not work for acute illness, but the fact that he said seroconversion didn't occur for a percentage definitely seems to suggest it doesn't necessarily work for chronic illness in all cases either.

Traveler - That's pretty cool but i'm sorry to hear you missed out on that opportunity. I'd love to train with a Lyme literate herbalist. I've noticed that's a pretty deficient field. As for me, i'm not totally sure. My last instructor recommended me to Blue Ridge School in Asheville as that's where I'm moving. I talked to the owner and he seemed pretty cool but i haven't taken a class with him yet. And Asheville has more herbal schools than i can count. That place is full of hippies so it shouldn't be too hard to find something, other than a job afterwords :P What I do like about Blue Ridge is that they have follow up clinical program and I can get the entire semester for the initial program free if i apprentice
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