1000 Daisies...... I would love to talk with you more about your kids having Lyme. Now that we have gone back and realized how long we have had Lyme I am very concerned my boys have it. Especially my My older son has always been difficult. He was a very fussy baby and has been very moody and irritable his whole life. We even went down the ADD journey with him thinking that was the problem. He tried medication but it did work and only made him feel worse. Since the 6th grade he has been struggling with school socially and with his grades. He started high school this year and by the end of the semester he was begging me to let him home school. We went ahead and let him because he was so miserable. He has always been mostly healthy but last year he was having a lot of bad days when he didn't feel good, having a low grade fever and just staying in bed for a whole day, then the next would be fine. so I took him to the dr (this was before we were diagnosed) and they ran some blood tests on him. Of course looking of the usual stuff, Mono, flu etc. All of it came back negative except one concern was his WBC was low. they wanted to test him again but of course he refused. He is quite stubborn and now that he is 15 very difficult sometimes. I see a lot of the same traits in him that I have seen in my husband such as anger, and inability to control it. he has a very negative outlook on things and doesn't have good self esteem or confidence. Still has the ADD symptoms but seems to be getting a better grip on them. I would love to hear about your children and what type of symptoms they have had and how they are doing with dealing with Lyme.
I am so sorry your son is suffering! Yes, I'd be concerned too - especially with both your husband and you being positive.
One thing you will learn is that symptoms for kids will vary greatly - some physical, some mood, some emotional, some mental, some subtle, some not-so-subtle, and any and all combinations.
For one of my kids, it greatly affected his mood - depression, irritability - and other things. Since he is being treated, nearly all of his diagnosis have been dropped (and supposedly, he had "incurable" diagnosis that they say can't be cured!).
So, yes - I don't underestimate what these bugs are capable of.
One of my kids stalled in his treatment, but once I added in HBOT, he was a very different - and much improved - kid.
BUT - he was difficult to treat (didn't respond well to many treatments). On top of that, his depression clouded his thinking and judgment. Sometimes, it was a real battle with him to understand what was going on.
Also, I don't know if this is true in your situation, but my boys greatly regressed in symptoms around that pre-puberty/puberty age. And I mean - seriously tanked. I've read that is common.
Please do let me know if you have any specific questions. My heart goes out to you and your family.