I have chronic Lyme and Bartonella but My first symptom was SFN as well. Symptoms are worsening and my neuro says take more gabapetin and my Lyme doctor has put me back on antibiotics when the burning pain came back but it doesn’t seem to be helping. I actually think things are worse. I have fought for ivig but that doesn’t seem to be the route they want to take. I would love the name of the Boston neurologist. I have also read that if certain antibodies were present I could possibly be approved for ivig. I saw a neuro/rheum at Hopkins since I’ve had autoimmune processes effected, but he didn’t seem to have any answers. Any help you could give would be great. Thank you!
Hi Joy - welcome!
I’m sorry you suffer with the nerve pain... I have that too.
So it went away for awhile after treating your infections but has now come back?
This will bump the thread up for more views - I hope you are able to get the IVIG.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi