As some of you may know, my family has been struggling for years, like many others here. I usually post about
our struggles and questions related to such. But now, I am posting something different!
Kid#1 was the sickest out of all of us. I actually don't go into the specifics of those dark years, but trust me when I say it's about
as bad as it gets.
After several years of treatment, he is doing really well at this point!! I hesitate saying this because I don't want to jinx it because of this roller coaster ride!!
His labs are also reflecting how he's feeling: CD-57 highest ever for him (91) and C4A is within normal range.
He was previously having physical herxs (eg flu-like symptoms) every few weeks, but it's been some months since his last identifiable physical herx. (He's had a couple of viruses that didn't fit the symptoms of his typical herxs.)
ETA: He has strong seasonal regression (like clockwork!) every fall-spring (especially fall). This is the first year where he showed no regression in fall and no regression in spring. This is huge factor for him!
These are all very promising for him!
But mostly, he's acting like a normal teenager. Like a normal, healthy teenager.
He is still doing Buhner's herbals and mHBOT. He doesn't appear to react to any of the Buhner's herbals - except for the Woodland Essence C.S.A., which tends to make him moody/irritable (but not too bad).
Otherwise, nobody would ever know he was as sick as he was. He appears to be such a healthy/normal teenager.
Moments like this gives me hope. I hope it does for you too.
The moral of the story -- is never ever give up. He took SEVERAL YEARS to get to this point. Yes, I said YEARS. ETA: He is/was extremely difficult to treat. Most things we tried were failures or seemingly of little help. But we kept trying and trying.
I don't know what the future will bring, and I fully realize he may relapse again at some point (it's really early on in his healing).... But we will enjoy this period of good, the good labs, and general lack of symptoms... and just cherish every moment!
And if any doctor (who told us that we couldn't cure his "incurable" diagnosis - eg many of his prior diagnosis which have all been resolved) ever reads this, you were wrong. You were so very wrong.
He is still doing overall very well. Knock on wood.
It's been around ~6 months since his last physical flare (which was the last of his major symptoms to go)!
We are still proactively treating with herbals for babesia/bartonella (and others) and mHBOT occasionally. He does seem to be a bit moody when I increase doses for these herbals, but so far, nothing significant like previously.
I will continue to treat all of us well beyond feeling better to make sure we have this covered! I also feel it's going to take some time to recover/heal from all of the damage done by the pathogens, inflammation, and treatments (abx, other medications, etc).
Fall-winter-spring will be the next major test for him!
But so far, he is still maintaining his overall wellness! And we hope so desperately for this to continue!
Still doing really well!
No regression at all again this past fall.
Fast approaching 1 year of wellness.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
Post Edited (1000Daisies) : 12/7/2017 6:01:13 PM (GMT-7)