Something positive to share!! [UPDATE]

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Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27943
   Posted 7/29/2017 7:56 PM (GMT -7)   
Wonderful news, Daisies! 6 months and counting! I hope that this continues and it paves the way for your other two children.

You've worked so hard at this...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

jennydancingfish
Veteran Member


Date Joined Sep 2016
Total Posts : 887
   Posted 7/29/2017 8:10 PM (GMT -7)   
SO HAPPY FOR YOU!!!!!!!!!! Squeeeeeeeeee
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.

Sweetlife
Regular Member


Date Joined Jul 2017
Total Posts : 95
   Posted 7/29/2017 8:11 PM (GMT -7)   
Tysm for sharing .. very inspirational and hopeful

Octobrsky13
Regular Member


Date Joined Feb 2016
Total Posts : 147
   Posted 7/30/2017 6:13 AM (GMT -7)   
Every success is one for all of us. So, so happy for you all! xoxo

DJF2005
Regular Member


Date Joined Dec 2009
Total Posts : 91
   Posted 7/30/2017 8:10 AM (GMT -7)   
This is fantastic. Thank you. I am struggling with my fourth relapse and this encourages me

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2059
   Posted 12/7/2017 6:02 PM (GMT -7)   
Just posting an update on Kid#1. Still very positive.
He is still doing really well. Just a normal/healthy teenager!
No regression this past fall again (seasonal regression was a major factor for him previously).
We are fast approaching a year of wellness!
THERE IS HOPE!!!! BELIEVE!!!!!! KEEP TRYING!!!!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1734
   Posted 12/7/2017 6:25 PM (GMT -7)   
absolutely wonderful! thank you for the encouraging update!
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast & leaky gut.Restart Buhner for BBB.

Lymess
New Member


Date Joined Nov 2017
Total Posts : 19
   Posted 12/7/2017 6:29 PM (GMT -7)   
Loved reading this post today! Really needed it. Had lots of anxiety today and the positivity was refreshing and brought hope. Thank you! I was going to continue to read other posts but I think I’ll stop on this awesome high note! Your an awesome mom indeed! Wishing you and your family the best.....keep striving and thriving!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27943
   Posted 12/7/2017 7:12 PM (GMT -7)   
Great news, 1000Daisies.

You must be so happy!!!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 154
   Posted 12/7/2017 11:25 PM (GMT -7)   
Wonderful news! I'm very happy for you. Thank you for sharing!

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2059
   Posted 12/13/2017 8:47 AM (GMT -7)   
Thanks for everybody! It's been a very long, difficult journey for him.

Yes, I am beyond thrilled. But I will be honest in saying that it's very much overshadowed dealing with another very sick kid (Kid#2 is better than previously but not well yet).

But, regardless, it's a success! I hope to keep bumping this over time. I think we need more success stories shared here. smile smile smile
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9211
   Posted 12/13/2017 8:53 AM (GMT -7)   
Oh wow!! I love reading this positive thread first thing in the morning. Yeah!!

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 197
   Posted 12/13/2017 9:06 AM (GMT -7)   
Go, Kid #1 !!! And keep on going. To the coming milestone of 1 year of wellness. It must make your heart soar! Congrats and lemon water cheers!

Warmly -

Peppermint Tea

yancync
Regular Member


Date Joined Nov 2015
Total Posts : 488
   Posted 12/13/2017 11:02 AM (GMT -7)   
Oh my gosh - DS #1 sounds like he's exactly at the same point as my DS - yippee! And no seasonal issues or bite anniversary herx either here. Just like you, I too have been afraid to say much to jinx it, lol but I need to post soon. I'm so happy for him and for you! It's amazing, isn't it?

Thanks for posting an update.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents
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