Lyme Disease & Morgellons

What symptoms did you show first or all of them?
0
Fatigued that almost hurts, tired and lisless? - 0.0%
1
Any rashes, sores or weird markings? - 16.7%
0
High fevers that came on with no notice? - 0.0%
2
Panic, anxiety attacks, general feeling of being sick? - 33.3%
1
Were you diagnosed with Autoimmune Disease, like MS, Lupus, myalgias? - 16.7%
2
Feelings of bugs crawling or numbness in legs & feet? - 33.3%

 
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Lyme&morgellons
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/25/2017 5:19 PM (GMT -6)   
Hello, I've been on the internet for two years while sick with what doctors kept telling me was my imagination and I was psychotic. I did not just show up with complaints, I had oozing and open sores with parasitic worms and red and blue fibers coming out of my skin. I'm sorry to see so many people being diagnosed with just Lyme, let alone Morgellons. Morgellons was considered a psychosis a year and a half ago...But with new break throughs and scientific proof this is as real as Lyme, which also was called fake for a long time.

There are people who have had Morgellons for over 20 years, and probably longer. There was a show on TV called the monsters inside me, which was about this disease, yet still no one believed it even wanted to believe it existed.

I'm here to tell you, if you have Lyme you more than likely have Morgellons, plus several other co-infections that are growing in numbers every day. I am registered with mylymedata at lymedisease.org

After being seen by five drs of all specialties...I was told I was psychotic. Then the next seven Drs. didn't even check me they just followed suit, you are psychotic. By the way, my husband and his son has something like mine so psychosis is now catching, if you ask the medical Drs. today. The sad part is my husband was in the military jumping out of helicopters to save people's lives as a medic. His visit to the V.A. hospital was exactly the same diagnosis as mine, psychotic break they told him. Those of you who had Drs. At least find you have Lyme are very lucky in finding one.

Anyway my reason for being here is that I am using Dr. S, in Naples, Fl. He is not your conventional doctor because he does a lot of researching on the flea and tick infections and the ever increasing new co-infections. I can tell you that he does know what he is talking about, he's exactly what I was looking for and he's guided me the right way at each turn. My PCP went in to the hospital with cancer at the worst possible time.

Now maybe I don't have a doctor that runs to his phone every single time someone needs a question answered, but he's there if something really changes for the worse. He is very strict on where you get alternative medicines from, he is also very strict on how much of each thing to take and how long. This to me proves he is knowledgeable and is active in the research as well. So, if you need someone to hold your hand then I would not go to him, but if you want to get well, I would go to him and listen to every single word he tells you. I admire this guy for what he does and he doesn't tell sad sob stories to get patients. He actually limits the amount of patients he will see.

I've done a lot of research on everything that is going on with these diseases. Babesia, Bartonella, Borrealla, Spiralchetes, and many many other co-infections. The problem had been biofilm in the blood that stopped the killing of some of these bacteria, fungus and parasites. Animals can and do carry many of these co-infections, but in a healthy person they do not affect them. With the chemtrails and polluted water and GMO foods, you are getting an overload of poisons. Then the vaccinations from childhood on up to flu and pneumonia, only add to this mix. Yet there are still being produced more and more vaccinations and more and more children are having reactions to them. Kids with Autism are triple what they were. Kids with brain problems of any kind are also becoming overwhelmingly high. People go in to hospitals and die for really simple procedures.

I am recovering and yes it is a struggle but it's better than being how I was not six months ago. Cleansing your body daily even twice a day is going to help get the toxic waste out of your body. The skin is the biggest organ so sometimes it comes out of your pores. Salt water without chlorine, flouride is very beneficial but hard to find. I've use coconut oil...The alive kind, non GMO and non GMO lemons and clean with those. I also use Dr. Bronners peppermint and hemp soap. That company has been around for a long time, since late 1800s I believe. The only body cleanser I trust is zeolite ... That is the name of the ingriedent, zeolite is volcanic ash and can get into the blood and clean out the die off. Also activated charcoal once in a while, I just don't feel it works as well, but has some good attributes.

All I can say is I started out wanting to die and now I want to live. My feet to my ankles were numb so that was something that started going away immediately with what I was told to take. I have to mention, I had a high fever two years in a row, taken by ambulance both times because temp. was 105, first time I was told I had pneumonia, I don't think so but didn't know any different at the time. Second time I was in a drug store trying to fill prescription and just passed out. This time they said I had SEPSIS, again not true. After being released; two weeks later, my body exploded with sores and infection. From that time on I was suffering.

The antibiotics I was given in hospital only made things worse plus they had a lot of unknowns come back from blood work. This is when my PCP doctor was in hospital fighting for his life. Then six months later after being called psychotic our home burned. This displaced us until today as our home is still unfinished. So stress is not good, good nutrition is good, fast food is a danger, even most restaurants. We stopped eating meat, even free range beef and chicken because an animal killed in fear gives off a toxic hormone in the meat, this means we are eating that fear toxin. Most fish is either mercury or radiation poisoned, not to mention they are also being genetically modified and then released to breed with non Geo engineered fish.

I know this is long but the more you know the better you can get the right doctor and the right help. If I helped even one person then I've paid it forward one more time. No one should suffer these diseases, NO ONE, but its5he cause of many other diseases and a lot of people are mis-diagnosed. Don't be afraid to take part in your own Healthcare, no one cares more about you than you and your family. Do research, do whatever it takes, and do join lymedisease.Org and then find mylymedata so you can give input on how your treatment progresses

Post Edited By Moderator (Girlie) : 5/25/2017 5:30:31 PM (GMT-6)


Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 5/25/2017 6:38 PM (GMT -6)   
Hi Lyme&morgellons,
Welcome to our community. I'm glad you found us.

A couple of recommendations - please don't post one long paragraph, as it can be impossible for people like me with Neuro Lyme that affects our eyes to read them.

If you haven't yet, please do read through our "New to Lyme" thread, as it's packed with important and helpful information.

I do have to disagree with you about when you said if you have Lyme, you likely have Morgellons. I'm sure I haven't done as much research on morgellons as you have, as I don't have it, but I do know that morgellons only affects a minority of Lyme patients, not a majority of them.

I do encourage you to share any research you have found particularly helpful with morgellons, as we do have some Morgellons patients that read/post here.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Post Edited (Traveler) : 5/26/2017 7:39:23 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33927
   Posted 5/25/2017 6:38 PM (GMT -6)   
Hi Lyme&moregellons - welcome to our community!

Thank you for sharing your story with us.
I'm sorry for what you've been through with the Doctors. It's a familiar story here.

I agree with you that if you have Lyme, then you most likely have other co-infections - but not necessarily Morgellons. I don't have Morgellons - but I do have bartonella...and now it appears I also have Babesia.
In fact, I rarely see Morgellons discussed here...so I'm not convinced it is one of the more prevalent co-infections.

I'm glad you are now recovering - and yes, it is a long journey to gain our health back.


You will see I edited your post - this was only to change the Dr. name to his initial. We don't use full names on here - for privacy reasons....unless they are openly discussing lyme disease and doing t.v. appearances - like Dr. Horowitz.
I do realize this Dr. is quite well known as well, but I don't want to make that call.

We encourage our new members to read through the thread : "New to Lyme?..Start Here!" It's got a lot of useful information in it. I know you're not 'new' to lyme, but there may be some information in there that you haven't seen before.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 5/25/2017 7:16 PM (GMT -6)   
Welcome Lyme&morgellons -

I am also so very sorry for your insanely difficult journey. It is not at all dissimilar to Lyme patients - except that M is much more taboo and met with much more shameful behavior by the medical industry, which is already a pretty low bar in our Lyme world. I'm sorry you abx your family have had to endure that kind of layered suffering.

I am thrilled you are doing better and have pulled yourself out of that dark place with action and knowledge. And sharing here will help others.

I agree with the others though - not all Lymees have M but I've seen numbers to suggest that most M's have Lyme. Actually, I think most people have Lyme but it presents in us differently for a whole host of reasons. Thankfully, more is being learned about M. The suffering must end.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4908
   Posted 5/25/2017 7:35 PM (GMT -6)   
Jory on lymenet and chicken arise here have good advise protocols ..i have heard dr s will only take you so far ...the work of ginger savely and stricker is good .have you tried antiparasitcals ,neem,and topical oil of oregano or borax ?

I hope you are treating bartonella and filarial.Consider rife and bvt as adjucts to your therapy

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 251
   Posted 5/25/2017 8:13 PM (GMT -6)   
I have had Morgellons and have lyme & Co's. Morgellons is gone. Since Ive used TCM(traditional chinese medicine), as well as doxy, and amox. Im not sure which one dealt w/morgellons.

I currently use essential oils(Oregano, lavender, frankencense, others),all over body to deal w/any possible biotoxins coming out through my pores.

I too suspect that more Lymies have Morgellons, but perhaps are not aware.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 5/25/2017 8:41 PM (GMT -6)   
Welcome Lyme&morgellons,
First, I would like to say I am so sorry that you were treated so inexcusably horrific by the medical doctors you went to for help, understanding and answers.

It is a shame that in this day and age we have to go through that, be it Morgellons, Lyme, RMSF, or any of the other confections.

It is already such a struggle for us to cope with symptoms that we don't always understand or know what is initially causing them.

I was fortunate about a month ago to attend the Morgellons annual conference in Austin, Tx.
The speakers were excellent and there was abundant information about Lyme, Bartonella and morgellons.

Some things I learned:

Until recently only about 6 % of people with Lyme also had morgellons. However, there has been an increase in morgellons all over the world. So that number in changing.

Some morg. patients never get lesions but suffer with the other symptoms. They are the more fortunate. ones. I saw first hand, lesions on people at the conference and my heart goes out to them. They don't understand why some get them and others don't.

Research in Germany by a well known clinic has shown that 85% of morg. patients have bartonella.
Just treating for Lyme does not always help, you must treat for Bartonella according to G. S.(leading expert on Morg.)

Research in USA has shown that Borreiia burgdorferi is found In Morg. patients skin and tissue.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072536/

Igenex research has showed the link with Lyme.
https://www.lymedisease.org/new-studies-morgellons/

If you have morgellons you have Lyme. and highly probable that you have bartonella.

Morgellons possibly might be another co infection of Lyme.

The most inspiring things I learned: There are many dedicated researchers and medical professionals working on finding answers and a cure for morgellons.

Treating for Bartonella is one of the most successful treatments for Morgellons.

People heal. I met some wonderful people that had success healing from Lyme and Morgellons.

I wish everyone here on the forum the best of healing and if you read this, may I to just think about all the people that are struggling, suffering, healing and battling Lyme, morgellons, and all the co infections and send a healing thought, prayer, or word their way.

Tonight.... Lyme/morg. and co. makes me feel a heavy sadness for all that are inflicted. If only we could find a cure for all of these.

Thanks, Jo

Lyme&morgellons
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/26/2017 6:45 AM (GMT -6)   
Thank you for all the welcoming party 😀 and I am sorry that I didn't separate my paragraphs. I'm working on a cell phone because my computer is a crispy cream after the fire.

Lyme is symbiotic with Morgellons. Lyme has been around for at least a hundred years but, so has Morgellons. They called it Dermatitis something and kept it limited to just cows.

I happened on it by accident you can find info here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/ And again here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072536/#!po=7.81250

Then researching even further I found that this disease was known well before 1977 and could be as old as Lyme which is at least a hundred or more years old. But since a Frenchman discovered Morgellons in the 17th century, I'd have to say it's older than Lyme as I couldn't find Lyme before a hundred years ago.

As rocky mountain spotted fever seems to have killed so many people because it was a tick born disease with an unknown or other unknown co-infections.

This is how I deduced that Morgellons and Lyme are symbiotic in their relationship since one does make the biofilm that hides them. This is why so many people show a false negative when tested for Lyme by the CDC guidelines. Only ILLADS has the right method which can still be 15% wrong so it needs backed up by other labs.

IGENEX is one of the six ways you need tested and a fry lab test as well. Both Morgellons and Lyme are Spiralchetes, in fact the Morgellons Spirolchete is very similar to the Malaria Spirolchete.

There is a long story about this in a book I read. It's also a Borellia type bacterium, just the last name changes and there are at least five different strains.

In my case I have most everything including toxoplasmosis or a single cell parasite. No, neem oil or tea tree oil or any oil for that matter, helped me. Like others I tried to help myself and did get these things right. We are Vitamin D deficient, Vitamin Bs and also nacient iodine deficient. In my case I have no progesterone and I was at risk of blood clots or cancer.

I also found zeolite which did help clean out a lot of toxic waste from die off. Especially in the digestive tract it cleaned brilliantly. Since the zeolite is so small and made from volcanic ash it enters the blood stream very quickly gathering the bad things in a cage like structure when the zeolite attracts it.

Not sure if it gets through the blood brain barrier but I started feeling a little better just taking those. I also drank non GMO whole food shakes as I could not eat. I had a debilitating pain in the center of my rib cage that would not stop when I ate food. Lost 45 lbs in less that two months. This was good in some ways but not in other ways.

The fat cells store toxins, so get rid of fat and the toxins are gone while cleansing. You can also go to the Morgellons foundation in Texas for more at www.morgellons.org I hope that's the link

One thing I learned quickly is not all alternative meds are created equally, you must know the ones who make high quality products. As silly as it seems, Japan and China have more knowledge of these things than the U.S. I'm not sure if our country knows all this too, they are not sharing it, if so.

I have pictures online of what my body became and I keep them up to get more awareness of these diseases. I'm also very active with what is going on in our country. I am in contact with some Native Americans who see things we don't.

I don't hold political stances, in that each person has the right to believe or disbelieve, anything they want. Some of us are more aware after these illnesses than those who keep moving along as if nothing is wrong. This is ok I was one of those people.

Again, with all I've read, some I've had to translate from a different language, everything points to Lyme and Morgellons being symbiotic, this could be the cause if the relapse people have. I think that one co-infection, left untreated has the ability to start replicating the whole scenario again.

I came to this conclusion when I found out about self replicating nano bots, chemtrails and other government testing on U.S. citizens without our knowledge. I'm a realist, if I don't have proof, it's not true in my mind.

It used to be that you believe half of what you hear and all of what you see. Now it's, believe nothing and find out for yourself. What if we all woke up tomorrow and found our whole life has been a lie? Anyway, I thank you and will try to update when I remember links.

Never believe in just one doctors beliefs, always get confirmation in other opinions, ideas and proof. I wish you all peace and a cure.

Lyme&morgellons
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/26/2017 8:30 AM (GMT -6)   
Guess I didn't see Jo's comment, sorry, but yes you are right, in fact I'm starting to think Lyme is the co-infection, and we are talking about this being a world wide epidemic. It's not limited by any means to the United States.

There are more accounts of Morgellons like symptoms in the 1700s, than of Lyme disease in the late 1800s. This is where I disagree with Lyme being the main infection.

If practising biological warfare, then you must know they used chemical and viral, fungal and bacteria forms as well.

Chemtrails alone have strontium, barium, aluminum, a sort of synthetic blood, replicating nano bots and smart dust. This is all documented www.chemtrailsplanet.net this I had stumbled onto as well. My facebook page under Melony Vasho will guide you to my photos of the sores I had with the antibiotic resistant staph gotten from hospital.

I'm not at all afraid of anyone knowing who I am. They cannot make me suffer any more than I already have. Pity is not a word I like to use, empathy, compassion, understanding, yes... There are many out there suffering more than I. Many have died without any medical assistance what so ever.

My sister died with a Glioblastoma Multiforme brain tumor..This could be linked to Lyme, not only that they show a promising cure, after her death of four years ago.

My brother contracted heart disease..How do you contract a heart disease? Is it catching? I believe it was also linked to Lyme and he died just two months ago. Friends of mine are just dying for unknown reasons. This is suspect to me.

There are a lot of good doctors and researchers out there and that is a positive note...In fact you cannot start putting yourself, you have to stay positive as the mind is a powerful tool. I try to think of only good things, stay away from negative people and stay around other positive people.

My heart was heading in the same direction as my brother, so you see it attacks, brain, heart, lungs, kidneys, liver without prejudice.
I'm advanced in my disease, I've had it for decades according to my Dr.

I will update when I find things of interest and links I've had saved in my burned computer. Years of research gone in an instant. Thanks for all input, no one knows it all, I listen to everything, and don't pretend to know everything. But I've experienced the worst of this, along with my husband and now his son. I truly do not believe this is spread from person to person.

I do believe it's in our air, water and food. Going to put link to what's inside the food we eat and our animals eat. It will blow your mind to say the least. Sorry for not seeing your post Jo. Again I'm only using a cell phone, just got a notepad but it's got to be set up.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 5/26/2017 8:46 AM (GMT -6)   
Well, thank you for sharing what you can at this point! I look forward to learning more as you put up links and other information that you lost (so sorry!!!).

And thank you so much for the separation in your posting! I promise it really helps!

I do agree that it's basically a co-infection of Lyme - not everyone gets every co-infection - so that makes a lot of sense. I have not had any of the symptoms that I'm aware of, maybe when you have time you could help us by posting a good site for symptoms of Morgellon's?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Lyme&morgellons
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/28/2017 6:21 PM (GMT -6)   
Have any of you been to the carnicom institute? https://carnicominstitute.org/wp/mrp-symptom-survey-results/
I've had Lyme for decades, and honestly I think I had it at a young age because I had gall bladder complications from age 13 on, then removed at age 19 when it was a big deal.

I would always be dizzy since age 13. I had major panic attacks, night terrors, anxiety from age 13 as well. This is a lot for a child. No one checked for anything, just told me I was too young to be sick...Starting to wonder who was sick first, me or the doctors.

I learned to live with it, lots of bad days, few good. I was amazed how other people could get thru days without panic, anxiety, etc. Knowledge is power, I never stop searching, but one thing i never did was actually read thru carnicom institute. Thought some of you might be interested.

Peace to all of you.

Post Edited (Lyme&morgellons) : 5/28/2017 5:25:58 PM (GMT-6)


Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/22/2018 5:28 PM (GMT -6)   
I was very impressed with your post and was hoping you could get with me on the Doctor in Florida, I have the same exact symptoms and was told by my NP that I have Morgellons, but she has no idea how to treat. I have lost my family,friends and pets due to this horror, I would be so grateful for a reply

Lyme&morgellons said...
Hello, I've been on the internet for two years while sick with what doctors kept telling me was my imagination and I was psychotic. I did not just show up with complaints, I had oozing and open sores with parasitic worms and red and blue fibers coming out of my skin. I'm sorry to see so many people being diagnosed with just Lyme, let alone Morgellons. Morgellons was considered a psychosis a year and a half ago...But with new break throughs and scientific proof this is as real as Lyme, which also was called fake for a long time.

There are people who have had Morgellons for over 20 years, and probably longer. There was a show on TV called the monsters inside me, which was about this disease, yet still no one believed it even wanted to believe it existed.

I'm here to tell you, if you have Lyme you more than likely have Morgellons, plus several other co-infections that are growing in numbers every day. I am registered with mylymedata at lymedisease.org

After being seen by five drs of all specialties...I was told I was psychotic. Then the next seven Drs. didn't even check me they just followed suit, you are psychotic. By the way, my husband and his son has something like mine so psychosis is now catching, if you ask the medical Drs. today. The sad part is my husband was in the military jumping out of helicopters to save people's lives as a medic. His visit to the V.A. hospital was exactly the same diagnosis as mine, psychotic break they told him. Those of you who had Drs. At least find you have Lyme are very lucky in finding one.

Anyway my reason for being here is that I am using Dr. S, in Naples, Fl. He is not your conventional doctor because he does a lot of researching on the flea and tick infections and the ever increasing new co-infections. I can tell you that he does know what he is talking about, he's exactly what I was looking for and he's guided me the right way at each turn. My PCP went in to the hospital with cancer at the worst possible time.

Now maybe I don't have a doctor that runs to his phone every single time someone needs a question answered, but he's there if something really changes for the worse. He is very strict on where you get alternative medicines from, he is also very strict on how much of each thing to take and how long. This to me proves he is knowledgeable and is active in the research as well. So, if you need someone to hold your hand then I would not go to him, but if you want to get well, I would go to him and listen to every single word he tells you. I admire this guy for what he does and he doesn't tell sad sob stories to get patients. He actually limits the amount of patients he will see.

I've done a lot of research on everything that is going on with these diseases. Babesia, Bartonella, Borrealla, Spiralchetes, and many many other co-infections. The problem had been biofilm in the blood that stopped the killing of some of these bacteria, fungus and parasites. Animals can and do carry many of these co-infections, but in a healthy person they do not affect them. With the chemtrails and polluted water and GMO foods, you are getting an overload of poisons. Then the vaccinations from childhood on up to flu and pneumonia, only add to this mix. Yet there are still being produced more and more vaccinations and more and more children are having reactions to them. Kids with Autism are triple what they were. Kids with brain problems of any kind are also becoming overwhelmingly high. People go in to hospitals and die for really simple procedures.

I am recovering and yes it is a struggle but it's better than being how I was not six months ago. Cleansing your body daily even twice a day is going to help get the toxic waste out of your body. The skin is the biggest organ so sometimes it comes out of your pores. Salt water without chlorine, flouride is very beneficial but hard to find. I've use coconut oil...The alive kind, non GMO and non GMO lemons and clean with those. I also use Dr. Bronners peppermint and hemp soap. That company has been around for a long time, since late 1800s I believe. The only body cleanser I trust is zeolite ... That is the name of the ingriedent, zeolite is volcanic ash and can get into the blood and clean out the die off. Also activated charcoal once in a while, I just don't feel it works as well, but has some good attributes.

All I can say is I started out wanting to die and now I want to live. My feet to my ankles were numb so that was something that started going away immediately with what I was told to take. I have to mention, I had a high fever two years in a row, taken by ambulance both times because temp. was 105, first time I was told I had pneumonia, I don't think so but didn't know any different at the time. Second time I was in a drug store trying to fill prescription and just passed out. This time they said I had SEPSIS, again not true. After being released; two weeks later, my body exploded with sores and infection. From that time on I was suffering.

The antibiotics I was given in hospital only made things worse plus they had a lot of unknowns come back from blood work. This is when my PCP doctor was in hospital fighting for his life. Then six months later after being called psychotic our home burned. This displaced us until today as our home is still unfinished. So stress is not good, good nutrition is good, fast food is a danger, even most restaurants. We stopped eating meat, even free range beef and chicken because an animal killed in fear gives off a toxic hormone in the meat, this means we are eating that fear toxin. Most fish is either mercury or radiation poisoned, not to mention they are also being genetically modified and then released to breed with non Geo engineered fish.

I know this is long but the more you know the better you can get the right doctor and the right help. If I helped even one person then I've paid it forward one more time. No one should suffer these diseases, NO ONE, but its5he cause of many other diseases and a lot of people are mis-diagnosed. Don't be afraid to take part in your own Healthcare, no one cares more about you than you and your family. Do research, do whatever it takes, and do join lymedisease.Org and then find mylymedata so you can give input on how your treatment progresses

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/22/2018 5:39 PM (GMT -6)   
Hi Jo; I have lyme and Morgellons but my NP has no clue how to treat me. She put me on Iver and Doxy which helped, but I still have itchy sores all over my body. Did they tell you at the conference the best way to treat Bartonella ? I thank you for your post and pray that you will get back with me as I have lost my finances and family and pets to this horrible disease.
Blessings,
Deborah


goshawk said...
Welcome Lyme&morgellons,
First, I would like to say I am so sorry that you were treated so inexcusably horrific by the medical doctors you went to for help, understanding and answers.

It is a shame that in this day and age we have to go through that, be it Morgellons, Lyme, RMSF, or any of the other confections.

It is already such a struggle for us to cope with symptoms that we don't always understand or know what is initially causing them.

I was fortunate about a month ago to attend the Morgellons annual conference in Austin, Tx.
The speakers were excellent and there was abundant information about Lyme, Bartonella and morgellons.

Some things I learned:

Until recently only about 6 % of people with Lyme also had morgellons. However, there has been an increase in morgellons all over the world. So that number in changing.

Some morg. patients never get lesions but suffer with the other symptoms. They are the more fortunate. ones. I saw first hand, lesions on people at the conference and my heart goes out to them. They don't understand why some get them and others don't.

Research in Germany by a well known clinic has shown that 85% of morg. patients have bartonella.
Just treating for Lyme does not always help, you must treat for Bartonella according to G. S.(leading expert on Morg.)

Research in USA has shown that Borreiia burgdorferi is found In Morg. patients skin and tissue.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072536/

Igenex research has showed the link with Lyme.
https://www.lymedisease.org/new-studies-morgellons/

If you have morgellons you have Lyme. and highly probable that you have bartonella.

Morgellons possibly might be another co infection of Lyme.

The most inspiring things I learned: There are many dedicated researchers and medical professionals working on finding answers and a cure for morgellons.

Treating for Bartonella is one of the most successful treatments for Morgellons.

People heal. I met some wonderful people that had success healing from Lyme and Morgellons.

I wish everyone here on the forum the best of healing and if you read this, may I to just think about all the people that are struggling, suffering, healing and battling Lyme, morgellons, and all the co infections and send a healing thought, prayer, or word their way.

Tonight.... Lyme/morg. and co. makes me feel a heavy sadness for all that are inflicted. If only we could find a cure for all of these.

Thanks, Jo

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/22/2018 6:24 PM (GMT -6)   
Would you please give a link to your morg pictures, I would like to compare mine as I have many bites and odd things coming out of my skin.
Thank you

Lyme&morgellons said...
Thank you for all the welcoming party 😀 and I am sorry that I didn't separate my paragraphs. I'm working on a cell phone because my computer is a crispy cream after the fire.

Lyme is symbiotic with Morgellons. Lyme has been around for at least a hundred years but, so has Morgellons. They called it Dermatitis something and kept it limited to just cows.

I happened on it by accident you can find info here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/ And again here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072536/#!po=7.81250

Then researching even further I found that this disease was known well before 1977 and could be as old as Lyme which is at least a hundred or more years old. But since a Frenchman discovered Morgellons in the 17th century, I'd have to say it's older than Lyme as I couldn't find Lyme before a hundred years ago.

As rocky mountain spotted fever seems to have killed so many people because it was a tick born disease with an unknown or other unknown co-infections.

This is how I deduced that Morgellons and Lyme are symbiotic in their relationship since one does make the biofilm that hides them. This is why so many people show a false negative when tested for Lyme by the CDC guidelines. Only ILLADS has the right method which can still be 15% wrong so it needs backed up by other labs.

IGENEX is one of the six ways you need tested and a fry lab test as well. Both Morgellons and Lyme are Spiralchetes, in fact the Morgellons Spirolchete is very similar to the Malaria Spirolchete.

There is a long story about this in a book I read. It's also a Borellia type bacterium, just the last name changes and there are at least five different strains.

In my case I have most everything including toxoplasmosis or a single cell parasite. No, neem oil or tea tree oil or any oil for that matter, helped me. Like others I tried to help myself and did get these things right. We are Vitamin D deficient, Vitamin Bs and also nacient iodine deficient. In my case I have no progesterone and I was at risk of blood clots or cancer.

I also found zeolite which did help clean out a lot of toxic waste from die off. Especially in the digestive tract it cleaned brilliantly. Since the zeolite is so small and made from volcanic ash it enters the blood stream very quickly gathering the bad things in a cage like structure when the zeolite attracts it.

Not sure if it gets through the blood brain barrier but I started feeling a little better just taking those. I also drank non GMO whole food shakes as I could not eat. I had a debilitating pain in the center of my rib cage that would not stop when I ate food. Lost 45 lbs in less that two months. This was good in some ways but not in other ways.

The fat cells store toxins, so get rid of fat and the toxins are gone while cleansing. You can also go to the Morgellons foundation in Texas for more at www.morgellons.org I hope that's the link

One thing I learned quickly is not all alternative meds are created equally, you must know the ones who make high quality products. As silly as it seems, Japan and China have more knowledge of these things than the U.S. I'm not sure if our country knows all this too, they are not sharing it, if so.

I have pictures online of what my body became and I keep them up to get more awareness of these diseases. I'm also very active with what is going on in our country. I am in contact with some Native Americans who see things we don't.

I don't hold political stances, in that each person has the right to believe or disbelieve, anything they want. Some of us are more aware after these illnesses than those who keep moving along as if nothing is wrong. This is ok I was one of those people.

Again, with all I've read, some I've had to translate from a different language, everything points to Lyme and Morgellons being symbiotic, this could be the cause if the relapse people have. I think that one co-infection, left untreated has the ability to start replicating the whole scenario again.

I came to this conclusion when I found out about self replicating nano bots, chemtrails and other government testing on U.S. citizens without our knowledge. I'm a realist, if I don't have proof, it's not true in my mind.

It used to be that you believe half of what you hear and all of what you see. Now it's, believe nothing and find out for yourself. What if we all woke up tomorrow and found our whole life has been a lie? Anyway, I thank you and will try to update when I remember links.

Never believe in just one doctors beliefs, always get confirmation in other opinions, ideas and proof. I wish you all peace and a cure.

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1157
   Posted 3/22/2018 6:31 PM (GMT -6)   
Seriously7 said...
I was very impressed with your post and was hoping you could get with me on the Doctor in Florida, I have the same exact symptoms and was told by my NP that I have Morgellons, but she has no idea how to treat. I have lost my family,friends and pets due to this horror, I would be so grateful for a reply


FYI: You may not get a reply from 'Lyme&Morgellons,' as that person has not posted since May 2017.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1304
   Posted 3/22/2018 7:13 PM (GMT -6)   
Just my experience Morgellons can be cured by treating dental and parasite-both.
Dr Yu helped me with this when nobody else would even try.
Hang in there

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/22/2018 7:29 PM (GMT -6)   
Thank you, I am trying to retain some semblance of optimism. lol

The Dude Abides said...
Seriously7 said...
I was very impressed with your post and was hoping you could get with me on the Doctor in Florida, I have the same exact symptoms and was told by my NP that I have Morgellons, but she has no idea how to treat. I have lost my family,friends and pets due to this horror, I would be so grateful for a reply


FYI: You may not get a reply from 'Lyme&Morgellons,' as that person has not posted since May 2017.
blush blush blush blush

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/22/2018 7:35 PM (GMT -6)   
Thank you so much for getting back with me on this, I know you are exactly right. I have really nice looking teeth with some really bad root canals under the crowns, I know I will have to address this soon as they are starting to hurt.

Would you please tell me about the protocol Dr. Yu gave you, I would be ever so grateful.



magoo2 said...
Just my experience Morgellons can be cured by treating dental and parasite-both.
Dr Yu helped me with this when nobody else would even try.
Hang in there

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 3/22/2018 8:18 PM (GMT -6)   
Hi Seriously7,
I am so sorry for what you are going through. I have to say I never had lesions, I cant imagine how difficult it is to deal with that and my heart goes out to you all all the others with lesions.

I did have some fibers and pimples/sores on my scalp. Also itchy, prickly, crawling sensations and hair follicle issues. I don't know or understand why some of us get a so called mild case of morg. but I am ever so grateful.

I do have Lyme, Babesia and a strong Bartonella infection.

I was told by Dr. G. S the expert on Morg. to treat for Bartonella when I spoke with her at the conference.

I began treating Lyme in September 2016 after being misdiagnosed for many years.

I have been treating Bartonella/morg since Feb. 2017, with azith and Bactrim, Malarone(also treating babesia).

I began Stephen Buhner's Bartonella herbal protocol in July 2017.

I am at 95 % to 98 % better.

Dr G.S. Book "Morgellons, the legitimization of a disease" offers treatment paths to use.

She starts on p337 and offers different combinations of intracellular antibiotics, some anti parasitics and also herbal protocols by Beyond Balance, Researched nutritionals and other herbals similar to Buhners protocol for Bart.

Its on amazon and affordable.

You may also want to email and touch bases with Chickenarise or do a search here above for his posts. He has offered alot of helpful information to members.

This is a newer scientific peer reviewed study linking Lyme and bart to Morg.

/www.dovepress.com/history-of-morgellons-disease-from-delusion-to-definition-peer-reviewed-fulltext-article-CCID

Take care and I wish you the best of healing and most of ...hang in there you will make it and get better.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 3/22/2018 8:32 PM (GMT -6)   
Some of the different combinations of ABX that are listed are:

Clarithromycin and DS sulfa with or without atovaguone
or

Doxycycline and rifampin with or without tinidazole

or

Doxycycline and ciprofloxacin with or without tinidazole

Again all from the book"Morgellons, The legitimization of a disease"by Dr.G.S.

I am no medical expert and you should consult with your GP or NP or LLMD and check for side effects and contradictions.

The book also offers other things she had to use for some patients in addition to these or the herbals.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1304
   Posted 3/22/2018 9:05 PM (GMT -6)   
Dr Yu treats the individual not a set protocol.
With me he cured my Morgellons by finding my dental problems and aggressively treating parasites with high does meds and natural herbs. Nothing was worse than living with Morgellons-hang in there and take some action you can cure this also.

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/23/2018 10:27 PM (GMT -6)   
Thank you so much for your very informative reply, I will get the book now and take the information to my doctor, hopefully she will be willing to follow the protocol. I am so thankful that you are so much better, it gives hope to the rest of us.

May God Bless You

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1304
   Posted 3/23/2018 10:48 PM (GMT -6)   
Seriously-I have never changed a doctors mind but I have changed doctors. Good luck

Seriously7
New Member


Date Joined Mar 2018
Total Posts : 7
   Posted 3/24/2018 3:24 PM (GMT -6)   
Yes, I think changing doctors is a must for me at this point. Would you mind giving giving me a brief list of what they put you on? I was given high doses of Ivermectin at first as I was diagnosed with scabies that would not go away, then the other symptoms appeared.

I was very excited when I saw you went to Dr. Yu, because I thought you may live in my city as we also have a Dr. Yu. After reading your other post I saw you live further North.

Thank you,
Deborah

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1304
   Posted 3/24/2018 4:01 PM (GMT -6)   
Seriously he used every antiparsite med I ever heard of-helped but didn't cure until we tackled dental. Go see him-he cured my Morgellons by treating both dental and parasite
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