2nd day of levaquin feel awful

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tcoach1
Regular Member


Date Joined Dec 2014
Total Posts : 258
   Posted 5/27/2017 8:55 AM (GMT -6)   
2nd day. Burning is double. Weakness is bad. Feel sick. Thought u couldn't herx from Bart. Have headache also.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 5/27/2017 9:10 AM (GMT -6)   
The "official" stance is that you don't herx from the Bartonella directly, but from other things going on during Bartonella treatment (I believe) - but ask most any Bart patient that herxes from Lyme treatment, and most will tell you that it's still a herx! I know I have herx symptoms when I treat Bart. That's why I can't get up to my full doses right now - herxing on Bart treatment.


How's your detoxing going? That will make this easier to get through.

Also, did you start on a low dose, or full dose?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

tcoach1
Regular Member


Date Joined Dec 2014
Total Posts : 258
   Posted 5/27/2017 9:30 AM (GMT -6)   
Started with 500 mg once daily.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 5/27/2017 9:33 AM (GMT -6)   
I'm not that knowledgeable about the abx, but that sounds like the full dose??? If so, you need to reduce it by about 1/2 for a few days to a couple of weeks (depending on how you handle the half dose), and then raise it back up. Increase your detoxing during this time so that the transition will be easier too.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 5/27/2017 10:17 AM (GMT -6)   
The problem I see with taking one of the fluroquinolones is how do you distinguish between a herx and a side effect?

The nerve pain could be a herx....or it could be a side effect. How will you know?

I know Buhner says no herxing with bart...but I know some LLMD's say you do herx.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1306
   Posted 5/27/2017 10:41 AM (GMT -6)   
When I was treating Bart the headaches started and the only relief I got was from caffienated coffee and Excedrin Migraine. Please watch out for Levaquin side effects and do some research on this drug. My Llmd won'r prescribe it to his patients.

Patty
toxic effects from 2 doses of Levaquin in 2008.....Xanax for 4 monrhs in 2008 (horrific withdrawal effects)......CDC positive for Lyme's in 2009 (prescribed 200 mg daily of doxycycline for 2 months........extreme fatigue, anxiety, decreased cognition, etc. and was becoming worse in 2012......tested for Lyme's through Igenix and was CDC positive.....treatment started 9/2012

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 5/27/2017 12:20 PM (GMT -6)   
Sorry you are having a bad time with the treatment, Tcoach1. I felt exactly the same way when I started the IV vanco, but I also couldn't move head/neck... bed-ridden for a week. It took me 2 wks to get past the initial blow but I eventually felt better.

But I think if you were getting "floxxed" you'd have developed different sx by now, so that's a good sign - I think.

Back in 2013, before I knew anything about anything or that I had Lyme & Co...
I was prescribed Levofloxacin along with various other abx prescribed for a 13-month long battle with chronic sinusitis and bronchitis. Nothing worked because it was a fungal infection (...MDs....sigh...)

But these various abx that are also prescribed for Lyme & Co kept bringing out very specific Lyme & Co sx, which finally made me suspect Lyme and hightail it to my LLMD.

But back to the Levofloxacin, which is a flouroquinalone, along with these other Lyme & co-specif sx, I started developing the classic "floxxed" sx - tight soles in feet, could barely walk in AM. But that's also when the GI attacks started, bone pain, other pretty bart-specific sx.

It was impossible at first to know the difference - I didn't know anything about bart. Over time, I learned and in retrospect I now understand what happened. I've also posed the same question - how do you know if it's a herx or abx harm? I was lucky enough to learn that my mother also had "allergic" responses to the Levofloxacin - like mine which was a anaphalactic reaction so I knew immediately to stop taking it.

So - how do we know the difference? I really don't know as I think the "floxxing" sx and bart sx are so very similar. The other reality is that many people have bart henselae - which is transmitted primarily by household cats so yes, they'll probably have a bart herx if they start taking an abx used to treat bart. Some people report "permanent" damage to the tendons from the floxxing... I don't think it sounds like long-term untreated bart but who really knows? That's certainly not what they're looking for in these studies and we know that these kinds of symptom-driven test results are pretty narrowly defined.

Sorry - this adds no information to the conversation. ;)

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 5/27/2017 1:36 PM (GMT -6)   
Levaquin is awesome for Bart probably the most potent abx killer out there for it. Unfortunately its a black box warning drug and lots of folks have major side effects from it that being neuropathy and/or tendonitis. I had both and had to stop and it really angered me because I know it works very well.

Can't herx from Bart? I'm sorry but who came up with this authoritative statement? I don't believe that for a second and from my own experiences its counter to that stance.

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/18/2018 9:19 AM (GMT -6)   
My worse day on Cipro was day 3. My nerves went wonky! After that, the pain dissipated. We changed to Levaquinwith Doxy and I started Intramax all in the same weekend. I think I created the perfect storm. By day 7 of that concoction, my pains increased, I got strangely fatigued and my muscles went practically limp. I recovered from that mostly within 24 hrs but took additional days for my nerves to quiet down and my sleeping pattern to improve. My sleeping tends to get really bad a week before my period. My doc ended up stopping the doxy and had me take the Levaquin 2 days on and 1 day off. He’s not a fan of ppl herxing too much. That is a good thing to because I have to be able to function.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 11:27 PM (GMT -6)
There are a total of 2,974,360 posts in 326,171 threads.
View Active Threads


Who's Online
This forum has 161243 registered members. Please welcome our newest member, BG14.
322 Guest(s), 6 Registered Member(s) are currently online.  Details
borrelioburgdorferii, SantaZia, JayPoppa, gerdy, (Seashell), KarloVen