Posted 5/27/2017 12:20 PM (GMT -6)
Sorry you are having a bad time with the treatment, Tcoach1. I felt exactly the same way when I started the IV vanco, but I also couldn't move head/neck... bed-ridden for a week. It took me 2 wks to get past the initial blow but I eventually felt better.
But I think if you were getting "floxxed" you'd have developed different sx by now, so that's a good sign - I think.
Back in 2013, before I knew anything about anything or that I had Lyme & Co...
I was prescribed Levofloxacin along with various other abx prescribed for a 13-month long battle with chronic sinusitis and bronchitis. Nothing worked because it was a fungal infection (...MDs....sigh...)
But these various abx that are also prescribed for Lyme & Co kept bringing out very specific Lyme & Co sx, which finally made me suspect Lyme and hightail it to my LLMD.
But back to the Levofloxacin, which is a flouroquinalone, along with these other Lyme & co-specif sx, I started developing the classic "floxxed" sx - tight soles in feet, could barely walk in AM. But that's also when the GI attacks started, bone pain, other pretty bart-specific sx.
It was impossible at first to know the difference - I didn't know anything about bart. Over time, I learned and in retrospect I now understand what happened. I've also posed the same question - how do you know if it's a herx or abx harm? I was lucky enough to learn that my mother also had "allergic" responses to the Levofloxacin - like mine which was a anaphalactic reaction so I knew immediately to stop taking it.
So - how do we know the difference? I really don't know as I think the "floxxing" sx and bart sx are so very similar. The other reality is that many people have bart henselae - which is transmitted primarily by household cats so yes, they'll probably have a bart herx if they start taking an abx used to treat bart. Some people report "permanent" damage to the tendons from the floxxing... I don't think it sounds like long-term untreated bart but who really knows? That's certainly not what they're looking for in these studies and we know that these kinds of symptom-driven test results are pretty narrowly defined.
Sorry - this adds no information to the conversation. ;)