Cistus incanus tea

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Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/3/2017 10:38 PM (GMT -6)   
Anyone else tried this or currently using it?

I took it last year but made my stomach cramp up so I stopped because I had way too many issues going on, too much noise.

So here it is, a year later, I'm a year better and have many fewer sx I'm working through, protocol is near optimal level and while I'm still doing a lot of things I have paused all antiicrobials except vanco for 2 wks so that I can rebuild again and test out a few things to determine next steps (there's more to this but it's late and not sure it's relevant).

Anyway, I ran out of BFM-1 and wanted to switch to something else and my tea is expiring next month so decided to go ahead and use it all up.

Next thing I know, I'm dreaming like a madwoman for the first time (consistently, 3-4 nights in a row) in decades, maybe since I was first infected w/ Lyme & Co. I've had more consistent dreaming when I've had a fever or was feeling ill but they were more like nightmares. And I've experienced short bursts of one or two nights dreaming but this is significant.

Also, the weird rashes on my shins disappeared (mostly). These started when I started IV abx 2 yrs ago and come and go... the first one showed up on my right shin and faded mostly after about 6-8 mos after starting Rocephin. Then it came back and another one showed up on the other shin when I started Vanco. This time, instead of fading over a period of months, they disappeared in a day or two.

And I've been in a particularly good mood, which is highly unusual for me. ;)

So, busting biofilms in the brain, maybe in the blood somewhere... in gut... I don't know. Curious how others felt it affect them.

-p

Post Edited (Pirouette) : 6/3/2017 9:42:48 PM (GMT-6)


ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1525
   Posted 6/3/2017 10:41 PM (GMT -6)   
Where do those of you who use this tea obtain it from? It sounds like a treatment worth trying but it wasnt at Vitacost.
AUG14:Mold Sick.FALL16:Clinical Bart/Borellia.
NOV16:Lung Pain. JAN17:Morg Scalp (resolved)
FEB17: Pupils, throat glow UV light.
Rx:Xanax,Kratom,Ambien 3JUN-? ABX & Others BREAK
S:Stabilized O7. Xylitol
Focus:Morgellons pre fibrous
Proto:Mod Klinghardt
Tx: self

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/3/2017 10:44 PM (GMT -6)   
I got mine from BioPure.com
/biopureus.com/product/cistus-herbal-tea/

Although this was before I knew where to find stuff - I also get my JK from them - I really like everything. Although it's probably cheaper elsewhere.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1525
   Posted 6/3/2017 10:46 PM (GMT -6)   
Yeah biopure is pricey, but I got their Bravo suppositories. When I get finished with antibiotics, this will be my last step and I am confident I will then be cured.
AUG14:Mold Sick.FALL16:Clinical Bart/Borellia.
NOV16:Lung Pain. JAN17:Morg Scalp (resolved)
FEB17: Pupils, throat glow UV light.
Rx:Xanax,Kratom,Ambien 3JUN-? ABX & Others BREAK
S:Stabilized O7. Xylitol
Focus:Morgellons pre fibrous
Proto:Mod Klinghardt
Tx: self

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33338
   Posted 6/3/2017 11:48 PM (GMT -6)   
P - Doesn't Traveler use Cistus Tea?


okay - found a thread:

www.healingwell.com/community/default.aspx?f=30&m=3647209
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/3/2017 11:57 PM (GMT -6)   
Yes!
Maybe she'll post.

-p

Oh - a thread, ok thanks I will read through it!

Post Edited (Pirouette) : 6/3/2017 11:04:42 PM (GMT-6)


Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 6/4/2017 8:54 AM (GMT -6)   
Well, I have to admit that I had to stop the cistus incanus tea. It was releasing too much/killing too much all at once. I have more tea that I will use again though, as it was definitely working on me!

I have since discovered (maybe it's in that other thread?) that it has all kinds of 'anti-properties' (like my new word?)- it's anti lots of things! Anti-fungal, anti-microbial, anti-viral, anti-inflammatory, anti-oxidant, and let's not forget that it's a biofilm buster too. It's no wonder that it packs a punch!!

Even though I was still in treatment, it was too much for me at the time, so as I said, I had to stop using it, but plan on returning to it's use again - when I'm in a much better place, that is!!

A few links that may be of help:
www.fransussman.com/cistus-tea-or-how-to-become-repulsive-to-ticks/


/www.ncbi.nlm.nih.gov/pubmed/19828122


And I don't know how the prices compare, but here is another place to buy it:
www.donkeyisland.gr/eng/cistusplant.html
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 274
   Posted 6/4/2017 8:00 PM (GMT -6)   
Hi P - I haven't tried Cistus incanus tea, but I had to chime in to say "congrats!" on making progress. I haven't spent much time in here lately, but I was so happy to read:

"So here it is, a year later, I'm a year better and have many fewer sx I'm working through, protocol is near optimal level and while I'm still doing a lot of things I have paused all antiicrobials except vanco for 2 wks so that I can rebuild again and test out a few things to determine next steps (there's more to this but it's late and not sure it's relevant)."

That is fantastic news you are making some headway! I'd love to know what is working for you if you're inclined to share. If not, I totally understand and regardless I'm super psyched for you.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/5/2017 8:55 AM (GMT -6)   
Hi M -

Thanks! I AM making headway! I crashed hard end of Dec from starting biofilms. And I mean hard. Every time I tried to restart the biofilm buster, I'd crash again. But the recovery finally started improving after a few months and have stayed on anti-biofilm consistently and continue to improve.

VIRAL
With the recent crash, my viral load exploded again, so I'm back on antiviral Rx and will be on them until I'm done w/ tx - whenever that is. I've fought so hard to stay off antiviral Rx but it's a pipe dream. Natural antivirals do not work for me and my body gets so overwhelmed, it's not worth it. So this is definitely a key to my improvement.

LYME & BART
I also finally stopped Rocephin a few wks ago. Still on vanco while rebuilding herbal protocol that I want to use as I transition off vanco. And will start bvt soon, hopefully.

The abx have been great and probably essential for me but I feel I'm platueauing and also started feeling autoimmune sx(?) not sure. Seems like I'm ready to move on. I feel like most of my Lyme sx are gone although I do continue to have hip, knee joint problems and can't figure out why. But not looking to abx to solve.

I still have some bart issues left - still get intermittent bone pain in legs but it's minimal. The vanco has done so much. My GI attacks are gone - they were caused by the A-bart so have been looking to find other herbs to transition to.

BABS
I need to treat babs more aggressively now that Lyme & Bart have been reduced. I can't get a positive test in order for insurance to cover meds so I'm going herbal route for now - did well on A-babs, MC-BAB didn't do much, was in a neuro-psycho chaos w/ CSA so I think that's what I'm going to try again. I'm not able to handle CSA and be functional - have a teaching gig in a couple wks, then will probably dive back into CSA to get the babs tx going. Not looking forward to it but that feels like it's my last phase, hopefully.

OTHER
Gut health doing very well - mostly due to all the slow, hard work over the past couple of years but made that last group of improvements with pure cholestyramine, which also has helped clear out mold and has kept yeast/fungus at bay w/out using antifungals. It's been my go-to detox and tx component in my final stages, thankfully.

I'm looking to bvt to finish off the antimirobial, antifungal, antiviral approach. That may also be a pipe dream but I'm hoping. I could take "anti-meds and herbs" the rest of my life, but I'd rather not. We'll see...

Still a lot going on but making headway - thanks for asking! Hope you are also making progress and doing OK, if not well!

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/5/2017 9:06 AM (GMT -6)   
Traveler -

Another thing I wanted to mention was that I've noticed psoriasis(?) popped up since starting BFM-1 and has really increased since starting the cistus tea... so while I'm not struggling broadly like you did I am also wondering if it is stirring up more infection or finally treating it and that's why some psoriasis-like sx are showing up as a result?

I posted about the weird skin issues on the palms of my hands awhile back in another thread - First, I get this weird raised, tough but smooth and blister-like area with tiny little bubble-like areas with a little red dot like a blood blister. They're sensitive and a little itchy. Then it quickly goes away and instead the area becomes red and a little dry and flakey. Very raw. Fingertips are raw, red and wrinkly.

I've never had prominent autoimmune sx (other than GI leaky gut, which are very different but in its own category of crazy) - if any at all. LLMD thought this might be psoriasis but I don't know. Word is still out on whether or not psoriasis is truly autoimmune or fungal in nature? I really don't know - haven't looked into it really. The sx are quite strange though.

But clearly tied to starting the bioflim busting. My hands are getting worse, not better. It's not a horrible set of sx so I'm going to keep going with it to see how far this gets... My intuition tells me the antibiofilms are trying to push something out - skin is largest organ. I sure hope I don't regret this!

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 6/5/2017 10:10 AM (GMT -6)   
Well, that sounds too much like what I get that doctors have called psoriasis. Although those little blister like things usually don't go away for me unless I 'take action'. They continue to "form up" and then the itching really gets maddening. I'll rub my hands/feet on anything and everything I can, even in my sleep.

What usually turns this around for me is taking Align probiotic (B. infantis) - one or two doses for 30 days, which is another little conformation that it's likely psoriasis, as B. infantis has been clinically tested to help most psoriasis sufferers.
/www.ncbi.nlm.nih.gov/pubmed/23842110

www.medicalnewstoday.com/articles/264719.php


I don't remember my psoriasis flaring during the time that I was using the cistus tea - but I was pretty miserable with the herxing, I wasn't able to stay on the cistus tea for long (~3 weeks) - and I may just not remember it even if it was there!

For what it's worth - I also have crazy GI issues that baffle most docs, and the B. infantis helped at that point. If I use it other than during those times when my psoriasis hits, I don't notice any benefits.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/5/2017 10:51 AM (GMT -6)   
Thanks... so while I don't do probiotics right now, I think it's pretty interesting that you get benefit from them and that might clue me into seeking relief through GI means... or understanding cause through GI so that is helpful - thanks.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 6/5/2017 10:54 AM (GMT -6)   
Oh, you're in one of your 'off times' with probiotics? That's funny - I'm back on them again! LOL! We seem to be opposites right now.

If that's psoriasis, it definitely has to do with the GI. Not sure just what the actual imbalance is, but I bet you will figure it out!! smile
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)
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