Ivermectin works wonders for me, but isn't completely kicking it back or curing it - but it may require being on it for an extended period of time.
It seems I also have co-infections, including a fungal infection, my skin hurt so badly. I was so frustrated, as I was packing up my bathroom so I ran across anti-fungal cream. I applied it and had instant relief!
I don't think I have Lyme's but my symptoms are almost identical - so it could be the same infection, but I got it from bedbugs from rental furniture from Cort after a house fire. I noticed some bull's eye bites around my ankles, upper arms and by my eye. but I hadn't been around any ticks, so I ignored it. Then I noticed small bloody areas in the seams of my sheets and I freaked out - a house fire then bedbugs in our temporary living situation?
I've been so tired, I'm anemic, I get b12 shots and it doesn't seem to help, I'm weak, I have no appetite - at all. Sometimes my eyes are so painful I can't open them, I can't drive, or see properly. It's like my eyelids are made of wax and it hurts to blink and I can't open them all the way because my eyelids get hard and waxy (not swollen).
Eventually, all my skin started to hurt, feel waxy & sting (not itch), first around my eyes, then eventually all over. My back felt like I was severely sunburned. I went to the ER and they just gave me a antihistamine tranquilizer without doing any skin exam. Worthless.
Next, I went to a dermatologist, who also never looked at my skin. He asked what shampoo I used, I said I didn't know (I'm always rotating) but I knew it was not related to my hair products. It all started shortly after I noticed the bedbug bites.
I think he got mad that I said it wasn't my shampoo causing the problem, next he told me I was delusional and I needed to see a therapist! I asked him about the rash all over my torso, and the black moles, pain and lesions all over my back. He said they were unrelated (to being delusional?).
I said, "Well you haven't even looked at my skin!" He said he didn't need to and gave me the name a therapist. A dermatologist who doesn't look at skin, ***? Apparently he's a psychic psychiatrist practicing as a dermatologist. I have a psychiatrist and I told him what occurred, he said, "You are not delusional, but that doctor is - find a better doctor." I know it's systemic and I doubt another dermatologist will help.
What type or fields of doctors have been most helpful to those suffering from Lymes?
Next, I went to my regular doctor and asked him if it was possible I had scabies (yikes!), as there was crusting along my inner eye by the bridge of my nose, and the waxy skin and pain could be Norwegian crusted scabies. It was a guess as I had no idea what was wrong or happening, and nobody and looked at or tested my skin for infection.
He just prescribed Ivermectin and permethrin lotion without doing any skin tests. The second day on the two medications, I was so cold! It seemed to be killing something all over my body where I applied the cream and whatever was dying was turning room temperature which creates a really cold feeling. Turned out I didn't have scabies, but it cured my skin pain and the lesions and blackish moles on my back and face went away.
I didn't have any side effects, but I wasn't on a long enough dose of the Ivermectin, because it keeps slowly coming back about two weeks after I stop taking it. My eyes, throat and sinuses are also severely affected and painful. I was later put on an antifungal (Terbinafine) - and wow, I experienced a major Hex response!
Gram positive anti-biotics made all my symptoms much more severe (so I know it's not a gram positive infection). Gram negative antibiotics worked really well for about a week, then flatlined. It seems I need to be a combination of Ivermectin, Gram Negative Antibiotics and an antifungal for several months.
The Ivermectin was an accidental finding, but it's been my saving grace and keeping my symptoms at bay, and the skin pain goes away completely. The antifungal creams also help with my skin. But that's it - all other creams and lotions hurt. And I need a doctor who's not afraid of microscope! I've not been tested for anything, no smears, just various drugs thrown at me to try. I need to know what's wrong and treat it appropriately. Suggestions?