Ivermectin and Pin X - episode of severe Air Hunger

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/6/2017 11:33 PM (GMT -6)   
Hi Everyone!-

Just wondering if anyone else had episodes of severe air hunger while on parasite protocol?

I have done one full round of Dr K's parasite protocol. I recently just started second round. I'm currently taking Ivermectin 12 mg (3x day) and Pin X.

Today I was feeling like I wasn't getting enough oxygen off and on throughout the day. I feel dizzy and light headed. I also would see flashes of light in my vision.

Which brings me to now. I just got over a severe episode of air hunger. I had to breathe through my mouth because I felt like I wasn't getting enough oxygen through my nose. This then turned into gasping for air like a fish out of water. I had a very hard time trying to talk to my husband. I could only get one word out, gasp for air for awhile then able to get another word out. Started to get very dizzy and lightheaded. Started to get flashes of light pulsating in my vision. It felt like I was going to pass out. Then I started to sweat.

Does anyone know if Ivermectin is also used for treating Babesia? Is this why I had air hunger?

Looks like another sleepless night sad
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 6/7/2017 12:49 AM (GMT -6)   
Hi LB -

That sounds like a horrible experience - I'm so sorry. I'm not sure if Ivermectin is used to treat Babesia but it sure sounds like a babs herx. Hopefully others will be along to share insight. Hang in there - in the meantime, try to increase detoxing. And you also might want to reduce dose if you can. I also might give the LLMD a call if I were you.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32695
   Posted 6/7/2017 1:22 AM (GMT -6)   
I have read that Ivermectin is sometimes used for Babesia. Suzy Cohen lists it as a treatment.

But, I don't think it's one of the more commonly prescribed meds for Babs.


I think it's likely it caused your air hunger.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/7/2017 2:21 AM (GMT -6)   
Pirouette said...
Hi LB -

That sounds like a horrible experience - I'm so sorry. I'm not sure if Ivermectin is used to treat Babesia but it sure sounds like a babs herx. Hopefully others will be along to share insight. Hang in there - in the meantime, try to increase detoxing. And you also might want to reduce dose if you can. I also might give the LLMD a call if I were you.

-p


Hi Pirouette!-

Thank You so much for your response! I have an appointment with my LLMD in a couple of weeks. I will be sure to mention this episode to her. I almost never call my LLMD in between appointments, but I will if this continues. Or I will just try to lower my dosage like you have mentioned.

Thank You!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/7/2017 2:30 AM (GMT -6)   
Girlie said...
I have read that Ivermectin is sometimes used for Babesia. Suzy Cohen lists it as a treatment.

But, I don't think it's one of the more commonly prescribed meds for Babs.


I think it's likely it caused your air hunger.


Hi Girlie!-

Thank You for your response! Thanks for info about Suzy Cohen. I looked at her website. It makes me feel a little better that this could be a herxing for Babesia.

For me, it makes sense since I never did well for treating Babs. I had a seizure from A-BAB and Mepron was a nightmare.

Thank You!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 6/7/2017 5:54 PM (GMT -6)   
Sounds like its hitting something-not sure it matters what.
Hang in there

sebreg
Veteran Member


Date Joined Jun 2015
Total Posts : 812
   Posted 6/7/2017 6:35 PM (GMT -6)   
Ivermectin hit me like a freight train. I'm not sure what it was hitting, I was dx'd with protomyxzoa rheumatica, could've been that or maybe it was hitting another occult protozoal infection. Initially I only took 18mg once a week, then upped to twice a week. I would've never been able to do Dr K's protocol as that is a drug that hit me with some monster herxes.

Good luck! Sometimes it can be helpful to take a mini-break if the herxing gets too strong. Hopefully this will prove to be a good medication for you.

I also do wonder if it might be able to hit bacterial pathogens, even lyme? I'm iffy on that it's just a question I have I'd have to read up on it as I'm pretty clueless on that aspect.

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/7/2017 8:20 PM (GMT -6)   
magoo2 said...
Sounds like its hitting something-not sure it matters what.
Hang in there


Hi magoo2!-

Thank You for your response! Did you try Ivermectin also? Did you get any good results?

Thank You!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/7/2017 8:32 PM (GMT -6)   
sebreg said...
Ivermectin hit me like a freight train. I'm not sure what it was hitting, I was dx'd with protomyxzoa rheumatica, could've been that or maybe it was hitting another occult protozoal infection. Initially I only took 18mg once a week, then upped to twice a week. I would've never been able to do Dr K's protocol as that is a drug that hit me with some monster herxes.

Good luck! Sometimes it can be helpful to take a mini-break if the herxing gets too strong. Hopefully this will prove to be a good medication for you.

I also do wonder if it might be able to hit bacterial pathogens, even lyme? I'm iffy on that it's just a question I have I'd have to read up on it as I'm pretty clueless on that aspect.


Hi sebreg!-

Thank You for sharing your experience with Ivermectin. I am sorry to hear that this was a rough medicine for you also.

If you do look further into Ivermectin being able to hit bacterial pathogens, please do share with us! smile

Thank You!

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 6/7/2017 8:44 PM (GMT -6)   
Today I looked back in my daily journal. I reread my symptoms from the first time that I was on Ivermectin (January 2017).

I mentioned air hunger. My air hunger is usually me sighing a lot, with very deep breaths. I also had written about pulsating flashes of light in my vision.

I just wish that I could be able to take a medication and get relief. I'm sick if I take a break and don't take medication, and I am sick when I do take medication or herbs.

Post Edited (Little Bear (LB)) : 6/7/2017 8:47:10 PM (GMT-6)


TracyMSP
New Member


Date Joined Dec 2017
Total Posts : 1
   Posted 12/16/2017 2:56 PM (GMT -6)   
Ivermectin works wonders for me, but isn't completely kicking it back or curing it - but it may require being on it for an extended period of time.

It seems I also have co-infections, including a fungal infection, my skin hurt so badly. I was so frustrated, as I was packing up my bathroom so I ran across anti-fungal cream. I applied it and had instant relief!

I don't think I have Lyme's but my symptoms are almost identical - so it could be the same infection, but I got it from bedbugs from rental furniture from Cort after a house fire. I noticed some bull's eye bites around my ankles, upper arms and by my eye. but I hadn't been around any ticks, so I ignored it. Then I noticed small bloody areas in the seams of my sheets and I freaked out - a house fire then bedbugs in our temporary living situation?

I've been so tired, I'm anemic, I get b12 shots and it doesn't seem to help, I'm weak, I have no appetite - at all. Sometimes my eyes are so painful I can't open them, I can't drive, or see properly. It's like my eyelids are made of wax and it hurts to blink and I can't open them all the way because my eyelids get hard and waxy (not swollen).

Eventually, all my skin started to hurt, feel waxy & sting (not itch), first around my eyes, then eventually all over. My back felt like I was severely sunburned. I went to the ER and they just gave me a antihistamine tranquilizer without doing any skin exam. Worthless.

Next, I went to a dermatologist, who also never looked at my skin. He asked what shampoo I used, I said I didn't know (I'm always rotating) but I knew it was not related to my hair products. It all started shortly after I noticed the bedbug bites.

I think he got mad that I said it wasn't my shampoo causing the problem, next he told me I was delusional and I needed to see a therapist! I asked him about the rash all over my torso, and the black moles, pain and lesions all over my back. He said they were unrelated (to being delusional?).

I said, "Well you haven't even looked at my skin!" He said he didn't need to and gave me the name a therapist. A dermatologist who doesn't look at skin, ***? Apparently he's a psychic psychiatrist practicing as a dermatologist. I have a psychiatrist and I told him what occurred, he said, "You are not delusional, but that doctor is - find a better doctor." I know it's systemic and I doubt another dermatologist will help.

What type or fields of doctors have been most helpful to those suffering from Lymes?

Next, I went to my regular doctor and asked him if it was possible I had scabies (yikes!), as there was crusting along my inner eye by the bridge of my nose, and the waxy skin and pain could be Norwegian crusted scabies. It was a guess as I had no idea what was wrong or happening, and nobody and looked at or tested my skin for infection.

He just prescribed Ivermectin and permethrin lotion without doing any skin tests. The second day on the two medications, I was so cold! It seemed to be killing something all over my body where I applied the cream and whatever was dying was turning room temperature which creates a really cold feeling. Turned out I didn't have scabies, but it cured my skin pain and the lesions and blackish moles on my back and face went away.

I didn't have any side effects, but I wasn't on a long enough dose of the Ivermectin, because it keeps slowly coming back about two weeks after I stop taking it. My eyes, throat and sinuses are also severely affected and painful. I was later put on an antifungal (Terbinafine) - and wow, I experienced a major Hex response!

Gram positive anti-biotics made all my symptoms much more severe (so I know it's not a gram positive infection). Gram negative antibiotics worked really well for about a week, then flatlined. It seems I need to be a combination of Ivermectin, Gram Negative Antibiotics and an antifungal for several months.

The Ivermectin was an accidental finding, but it's been my saving grace and keeping my symptoms at bay, and the skin pain goes away completely. The antifungal creams also help with my skin. But that's it - all other creams and lotions hurt. And I need a doctor who's not afraid of microscope! I've not been tested for anything, no smears, just various drugs thrown at me to try. I need to know what's wrong and treat it appropriately. Suggestions?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32695
   Posted 12/16/2017 3:29 PM (GMT -6)   
Hi Tracy, welcome to our community!

I quickly read through your post (sorry...I only have a bit of time right now)

It's possible that the bedbugs infected you with lyme disease.
If you had bullseye rashes - that is diagnostic for lyme disease.



My suggestion is you find a Lyme Literate Dr. (LLMD) for an evaluation. Did you take a picture of the rash?

We can help you find a LLMD - start a new thread: "Looking for LLMD in/near____" and fill in the blank

You can also email me and I may have options for your location.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/16/2017 4:36 PM (GMT -6)   
TracyMSP are you in the United States? I ask because you referred to Norwegian scabies.

We have labs that you can test in the US and there is a lab that is generally used in the UK.

My advice is to get tested for lyme if you suspect it.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 12/16/2017 6:02 PM (GMT -6)   
LB- yes I took ivermectin It hit something hard. My doc just said parasites- we did 12 mg 4 times a day for three weeks at a time. Glad to have the big dieoff and be done with it

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 12/16/2017 7:29 PM (GMT -6)   
for anti-parasitical treatment Dr. J in DC uses Ivermectin or Alinia. Both will hit babesia in fact there are several articles i've run across that said the way to treat babesia and similar protozoa is with antithelmetics which both of these are part of (not anti-malarials).

for what its worth my wife got her liver and spleen back to normal doing 6 months of focused babesia treatment using malarone and super artemisinin took me 9 months using mepron, super artemisinin/zhang artemisiae-2, cryptolepis and enula.

key to beating babesia is persistence and consistency. it can take many months sometimes 12-18 months to clear it.

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1135
   Posted 12/16/2017 7:30 PM (GMT -6)   
magoo2 said...
LB- yes I took ivermectin It hit something hard. My doc just said parasites- we did 12 mg 4 times a day for three weeks at a time. Glad to have the big dieoff and be done with it


Thanks for that information. I didn't realize that Ivermectin was to be used for so long. In an e-mail exchange with a Naturopath (I'm not under his care, it was just a casual conversation), we were discussing parasites. He suggested the following for me:

"Parasites can easily be killed by Ivermectin. The UN has said that very safe med has saved millions of human lives in the tropics. As usual, US medicine wants you to need several meds and many office visits to get rid of an infestation. If you go to www.jeffersequine.com, you can get the livestock / pet Ivermectin that’s exactly the same as the human medication. Drink or inject 1 ml per 100 pounds of weight. In 2 days, 97% of all parasites will be dead. In two weeks, repeat the therapy to get the remaining 3% that just hatched. That gets done once a year. We use the same Ivermectin on ourselves that we use on our horses, goats, and dogs."
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 12:05 PM (GMT -6)
There are a total of 2,975,077 posts in 326,239 threads.
View Active Threads


Who's Online
This forum has 161327 registered members. Please welcome our newest member, jmack1.
415 Guest(s), 11 Registered Member(s) are currently online.  Details
Balladeer, hennaheather, Jasperilla, spouse21, Redwing57, Healing98, Minnesota, Ticsic, SharonZ, dabiri07815, BOB 46