Welcome to our community! I'm so glad you found us.
A Neurologist - unless they are ILADS trained - will not know how to deal with these infections, even though they may say they do. Unless they subscribe to the ILADS treatment guidelines, they will most likely following IDSA guidelines, which were removed from the National Guidelines Clearinghouse several years ago, but some doctors are still using it.
These articles will help explain it further:
ILADS vs IDSA:www.clinicaladvisor.com/controversy-continues-to-fuel-the-lyme-war/article/117160/archinte.jamanetwork.com/article.aspx?articleid=226373www.ncbi.nlm.nih.gov/pmc/articles/PMC2901226/
Steroid use is not recommended during any type of infection, and especially not with Lyme disease as it lowers the immune function, which allows the infection (which already has lowered the immune system to take hold) to spread and "dig in" even better.
Here are some more resources for finding a LLMD:
You will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread titled something like "Looking for LLMD in the (insert the nearest larger city & state)
area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You can email the Tick-Borne Disease Alliance at: firstname.lastname@example.org
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)