11 yr old with lyme

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Ohiomom3
New Member


Date Joined Jul 2017
Total Posts : 4
   Posted 7/16/2017 6:53 AM (GMT -7)   
Hi. My son, 11 yrs old, was just diagnosed with Lyme. We suspect he was bitten 4-5 weeks ago. His symptoms started June 29 with facial paralysis on one side. We all thought it was Bell's Palsy since there were no other symptoms. Then 10 days later the paralysis spread to the other side, he was very tired, and had joint pain. The doctor ordered a blood test and Lyme was confirmed. The doctor prescribed amoxicillin. I have been researching natural ways to fight this. Part of my problem is everything I find is for chronic Lyme. Since we caught this early, I'm wondering if my plan of defense should be different. So here are my questions:

My plan was to keep him on the abx with a probiotic twice a day, then a parasite cleanse, followed by Buhner's protocol. But is that overkill since it was caught early? Has anyone caught their Lyme early and been successful and not developing chronic symptoms? Growing up my family never used herbal remedies, so it's hard to not give him the amoxicillin even though I know it isn't good for his body. He also has candida. So I would need to get rid of that but not sure of the best way.

I'm so overwhelmed with all of the research. My brain is so tired of thinking about all of this.

Thanks for the help.

WV Mike
Regular Member


Date Joined May 2017
Total Posts : 204
   Posted 7/16/2017 7:19 AM (GMT -7)   
Im very sorry your son has to go through this. I am glad it was caught early. There are people on here that are very knowledgable and can answer all of your questions, i'm not one. i am wishing you and your son well and a speedy recovery for him. Are you working with a llmd? I keep hearing good stuff about one in the columbus area. Good luck.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9015
   Posted 7/16/2017 8:33 AM (GMT -7)   
I caught mine somewhat early. I did a month of antibiotics but they made me so very sick to my stomach I had to stop. I did Buhner's protocol and a couple of Beyond Balance herbal combinations and I healed over a year ago.

As for the Candida - boy that is going to be hard for an 11 year old to give up sugars. Sugar is in just about everything, even Ketchup! Elimination of sugar, alcohol and refined carbohydrates (breads, cookies, etc) is a must. These items are contributing to the growth of the candida in his system.

One of the best helpful food is fermented foods. Sauerkraut, kefir, kimchi, etc. Most 11 yr olds I know don't like those.

Without a healthy gut, I don't think he will heal very fast at all. A lot of our healthy comes from our gut (immune system). This is the first place I would start to get him healthy.

Gosh, good luck. We do have parents on this forum and their children have lyme. It just breaks my heart. They will be around and hopefully give you some helpful ideas.

Post Edited (PeteZa) : 7/16/2017 9:53:52 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27379
   Posted 7/16/2017 8:47 AM (GMT -7)   
Welcome Ohiomom!

4-5 weeks is still early - but you need to treat it now and don't let up until all symptoms are gone. And then continue for several more weeks.
Antibiotics are known to be effective when caught early.
Adding herbals to the antibiotics is a good plan.

What is his dosage of amoxy?

I urge you to find a LLMD and schedule an appt - if the symptoms don't resolve you will have that backup plan.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 7/16/2017 9:50:47 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27379
   Posted 7/16/2017 8:54 AM (GMT -7)   
Here are the Lyme Treatment Guidelines - you can check the amoxy dosage and treatment duration.

If you need help calculating the dose - post on this thread and I can help.

www.lymenet.org/BurrGuide200810.pdf
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2000
   Posted 7/16/2017 9:03 AM (GMT -7)   
Ohiomom3 said...
Hi. My son, 11 yrs old, was just diagnosed with Lyme. We suspect he was bitten 4-5 weeks ago. His symptoms started June 29 with facial paralysis on one side. We all thought it was Bell's Palsy since there were no other symptoms. Then 10 days later the paralysis spread to the other side, he was very tired, and had joint pain. The doctor ordered a blood test and Lyme was confirmed. The doctor prescribed amoxicillin. I have been researching natural ways to fight this. Part of my problem is everything I find is for chronic Lyme. Since we caught this early, I'm wondering if my plan of defense should be different. So here are my questions:

My plan was to keep him on the abx with a probiotic twice a day, then a parasite cleanse, followed by Buhner's protocol. But is that overkill since it was caught early? Has anyone caught their Lyme early and been successful and not developing chronic symptoms? Growing up my family never used herbal remedies, so it's hard to not give him the amoxicillin even though I know it isn't good for his body. He also has candida. So I would need to get rid of that but not sure of the best way.

I'm so overwhelmed with all of the research. My brain is so tired of thinking about all of this.

Thanks for the help.


So sorry for your struggles.

You say you suspect it was 4-5 weeks ago, but did you see a tick? Did you see a tick and get antibiotics right away? Or was treatment delayed because you don't know when the tick (or whatever) bite was and you treated after symptoms started?
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6120
   Posted 7/16/2017 9:15 AM (GMT -7)   
Hi Ohiomom -

I'm so glad you found us here. You have a lot of good responses to your post already.

Please see the "New to Lyme?" thread at the top of the page - has invaluable info for you as you and your son are starting on your Lyme journey. Sounds like you've already done a lot of research and your son has the holy grail - a positive test. AND seems you caught it early but I am also interested in your responses to 1000Daisies's questions - just to be sure.

I really like the protocol you've laid out. I hope you're going to get him on a detox protocol, as well - a lot of good info in the thread I mentioned and all over this forum to help you with detoxing.

The yeast/fungal overgrowth could be quite problematic if you don't nip it soon. Honestly, I would focus on that first and then resume treatment. Here is more info on y/f overgrowth - please let us know if you have questions:

Y/FO post in the "New to Lyme?" thread:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

Glad you're here - let us know how you are both doing.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Ohiomom3
New Member


Date Joined Jul 2017
Total Posts : 4
   Posted 7/16/2017 9:44 AM (GMT -7)   
Thank you for all of the replies!

Here is the tick story. My son, Lucas, was at church camp. When he got home he had forgotten all about the tick so he said nothing. When we got the Lyme diagnosis, his friend at church told me that one evening while taking a shower Lucas found what he thought was a tick. It was around his groin and he didn't want anyone to look at it. It was midnight so the camp counselor decided to let it go and call the nurse in the morning to have it removed. When Lucas got up the tick was gone. My husband has looked at the spot and doesn't see anything. So diagnosis was delayed for about 4 weeks.

He is on 7.5 ml amoxicillin 3x/day. He has a white tongue and jock itch which I believe is candida.

I am going to look into the LLMDs in my area.

Thanks again for the help! Any other advise is welcome!!

Post Edited (Ohiomom3) : 7/16/2017 10:50:32 AM (GMT-6)


k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2130
   Posted 7/16/2017 10:04 AM (GMT -7)   
I know it's hard, but try to cut out or down sugar and carbs. Also, make sure he's on a really good probiotic and rotate with a few different ones. I like garden of life chewable for kids from whole foods (refrigerated).

Since it sounds like candida is an issue he may need a systemic antifungal.

I hope he knocks this out and can be done with this!

Ohiomom3
New Member


Date Joined Jul 2017
Total Posts : 4
   Posted 7/16/2017 10:09 AM (GMT -7)   
Thank you. I will definitely rotate his probiotic. I am going to look into getting a better one. The one we have is good but probably need a better one given the circumstances.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27379
   Posted 7/16/2017 10:17 AM (GMT -7)   
What does 7.5 ml equal in mg of amoxy?
Is there information on the bottle?


For finding a LLMD - you can post a new thread on here: "Looking for LLMD for child in/near_____"

You can also send me an email and I will check my list for LLMD's . But, you may need to call them and ask if they treat children.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6120
   Posted 7/16/2017 10:19 AM (GMT -7)   
Unfortunately, the probiotic won't do much for the yeast/fungal overgrowth. It's better at prevention. You'll want to talk w/ the MD about an antifungal Rx (lots of info in the tread I posted) the best is a PURE Nystatin powder - he can take it orally (coats his tongue - pills can't do that) and his throat and it can also be made into a paste or the jock itch.

But he will ALSO need to eliminate all sugar and simple carbs (white bread, white pasta, white rice, white potatoes) until he's off the abx. Otherwise, even the antifungal won't work.

The yeast/fungal issue can be tougher to manage than the Lyme & co - so the sooner it's addressed, the easier his Lyme & Co treatment will be.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 320
   Posted 7/16/2017 8:01 PM (GMT -7)   
Hi Ohiomom.

I have a now 11 year old who has been sick with Lyme and co infections. My biggest word of caution to you is to find an LLMD immediately and get your son tested for the co-infections right away. Me and two of my three kids were bit last August on a hiking trip. My youngest is doing great and will be stopping meds shortly. He tested positive for lyme, Bartonella and Babesia. We have been treating all three infections all along. My daughter, however, tested positive initially for only Lyme and Babesia. She was functioning ok for most of the school year and became very very ill when they took her off doxycycline in April as summer was coming and the doctor didn't want her on doxy due to possible sun reactions. We had her retested for co-infections because she became so sick and it turns out she had Bartonella all along and we didn't know it.

Rarely does someone get sick with only lyme these days. Feel free to email me privately and we can connect that way. Its been a long road and Id love to share my knowledge if it could help you.

Ohiomom3
New Member


Date Joined Jul 2017
Total Posts : 4
   Posted 7/17/2017 4:53 AM (GMT -7)   
Thank you. I'm sorry you have two kids going through this, plus yourself. It's heartbreaking. I didn't realize all of the problems that came with Lyme. My son now has jaundice. Prople don't realize that giving him a few doses of amoxicillin isn't going to fix things.

yancync
Regular Member


Date Joined Nov 2015
Total Posts : 470
   Posted 7/17/2017 5:32 AM (GMT -7)   
Hi OhioMom,

Gosh sorry you are joining our group here. Lots of good advice here. I would consider milk thistle asap for liver support. Also, you should have the doctor test kidney and liver function - CBC would do it. It could be your son isn't tolerating the amoxycillin. Our son couldn't handle doxy so has been on minocycline which has been fine. Our LLMD always runs a CBC for patients starting a new round of antibiotics.

I started a website for parents. See link below. I agree the learning curve is steep and exhausting which is why I started my website!

I second the comments to find an LLMD as soon as possible. It sounds like your son, if he is to do some antibiotics/anti-malerials, would be better off pulsing them - say 3 days a week as it is often gentler on the system. There are LLMDs who use this method. Finding a pediatric LLMD takes patience. While 4 weeks of infection is relatively short, it is a full life cycle for Lyme and means there was time for co-infections to take root. A LLMD would wisely advise more than 1 month of antibiotics.

I suggest reading Burrascano's document carefully and learn all the co-infection symptoms from perusing various websites. Also be sure and start a simple spreadsheet and track how he feels each day, if he has fever, and what symptoms are there or have left as they can come and go. Nothing is too insignificant to record especially if you've also seen it on a weblist somewhere. This helps identify co-infections for which testing is mostly unreliable.

Healing the gut if it is not well, is key. I guess I missed your remark about candida but that will need to be addressed and you can support all treatment with herbs if you choose to go the pharma route initially. I would try a pharma antifungal so you can hit all at once if possible but it will depend on his reactions. Be aware that things get worse before they get better symptom-wise, often by weeks/months, not days. I don't mean to alarm you but I do think it helps to be aware and think about how you will discuss with your DS.

Hope this helps. Best wishes and come back and ask your questions - we are happy to provide support and input so you can continue to gather info on this.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

Jinna
Veteran Member


Date Joined May 2017
Total Posts : 692
   Posted 7/17/2017 5:46 PM (GMT -7)   
I second the posts on coinfection treatments.

My daughter was 2 when she was first bitten.
5 weeks of amoxy given from the day we found the tick did nothing for her, she only got worse, with bad gut symptoms, arthritis etc.

I suspect coinfections (amoxy gets none of the coinfections).


Either find a LLMD or look into Babesia and bartonella herbs (the 2 most common coinfections).
Most ticks are rarely contaminated only with Borrelia.

If he's got thrush, it's bad sign and I would avoid antibiotics and go herbs and homeopathics.
But that's us, because we had the experience already.

Watch out for nutrition problems (allergy, intolerance, bad absorption).
It's not only sugars that feed candida, but also carbs.

A couple of probiotics will not fight candida easily, specially if the body is on antibiotics.

My daughter had arthritis, neuro and GI tract symptoms.
she's fully healed (but needed coinfection treatments, with herbs and other approaches than drugs).

I hope he'll have less pain. It's not fun. Give him binders and organ support supplements to ease herxes, like many are suggesting here!
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