Inflated stomach -part 2-

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 7/30/2017 12:30 AM (GMT -6)   
Hi,

I'm making a part 2 of my thread, because I have new questions ;)


I have seen a doctor, and he prescribed me this time an ANTIacid, lol. Before that I have tried to take ACID. turn
I have tried for 2 weeks, but it didn't work either. Maybe it's even worse, I don't know.

So, he want's that I do a gastroscopy.
What I'm thinking is that maybe I have H pylori.

Do somebody know if that can be chronic, like from childhood, with Lyme?

A crazy thing is that since a long time maybe 5/6 years I have pain in a spot in my stomach. And at some point I have took artemisinin for 1/2 weeks, I don't remember. And the pain went away for like 1 year before coming back! I never understood why, but I have seen in some studies, that artemisinin is strongly effective against H pylori!!
So maybe the artemisinin destroyed partially the H pylori that I had.

Maybe I will pay myself, without doctor prescription, a H pylori breath test. Because I don't know why, but he refused to prescribe me that.
And for my part, I don't want that somebody put a tube inside me, and I don't want to go in a hospital if I can avoid....

Inflated Stomach Part 1

www.healingwell.com/community/default.aspx?f=30&m=3858590

Post Edited By Moderator (Girlie) : 7/30/2017 1:04:46 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 7/30/2017 2:02 AM (GMT -6)   
newuser posted in the Part 1 thread:

"hollsya said...
Yes, I've had the stomach extension but I have gallbladder issues. I sometimes would bloat from just drinking a glass of water. It could be candida/fungus, but my bloating started up right when I had a lyme flare-up so I think mine is from the lyme."


Sounds similar to my situation. I get belly swelling, distention n drinking water. Have you identified the real cause? any improvement gut?


Healrom - I have the same issue, gut distention swelling, IBS ever since this Lyme thing started a few years back. I successfully treated SIBO, fungal. I think I am clear of those now. But the distention doesn't go away. I recently read that Lyme coinfections/viruses can cause gut issues, mycoplasma pn. And obvious are parasites. I am starting a treatment soon for this, I am looking forward to resolving this gut issue after treating these viruses.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 7/30/2017 2:06 AM (GMT -6)   
Thank you Girlie.

I have added a link too.

hollsya
Regular Member


Date Joined May 2017
Total Posts : 56
   Posted 7/31/2017 12:45 PM (GMT -6)   
I just had an endoscopy. The doctor took biopsies, to check for h. pylori and other stuff, and I bled so much from the procedure that I am now anemic and have to get iron through an iv. There is a blood test for h. pylori, I would get that first before I had a procedure done.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 7/31/2017 12:54 PM (GMT -6)   
Isn't there also a breath test now for h pylori?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 7/31/2017 5:10 PM (GMT -6)   
Sorry to hear such a bad experience hollsya.

I hope that your test will give at least usefull answers to you problems.

Girlie, yes there is a breath test. It's the thing that I wanted to do. But in my country the doctors don't want to give the test in first place. They want that we do gastroscopy first!

It's the breath test that I wanted to do, but in fact it needs a doctor prescription to buy the reactives needed to do the test...
So impossible for me...

Maybe I will try the serology. But they are not all good. Some are under 60% sensivity. It's almost like flipping a coin, nice tests... rolleyes
I'm angry because all of that...

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 7/31/2017 5:21 PM (GMT -6)   
Also, do you have documents about mycoplasma pneumoniae causing digestive issues?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 7/31/2017 5:21 PM (GMT -6)   
Healrom said...


Girlie, yes there is a breath test. It's the thing that I wanted to do. But in my country the doctors don't want to give the test in first place. They want that we do gastroscopy first!

It's the breath test that I wanted to do, but in fact it needs a doctor prescription to buy the reactives needed to do the test...
So impossible for me...

Maybe I will try the serology. But they are not all good. Some are under 60% sensivity. It's almost like flipping a coin, nice tests... rolleyes
I'm angry because all of that...


Geez - you'd think they'd do the least invasive procedure first.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 7/31/2017 5:32 PM (GMT -6)   
Yes, there are official recommandations that tells to do a gastroscopy first.
I'm sure it's again business related. Maybe the guys that do the recommandations are gastroenterologists...

It's a nonsense because the breath test is more sensitive than the biopsy cultivaton of tissues done with the gastroscopy...

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 7/31/2017 5:43 PM (GMT -6)   
Healrom said...
Yes, there are official recommandations that tells to do a gastroscopy first.
I'm sure it's again business related. Maybe the guys that do the recommandations are gastroenterologists...

It's a nonsense because the breath test is more sensitive than the biopsy cultivaton of tissues done with the gastroscopy...


I guess there are false negatives with the breath test...but I would assume a positive means you have it...so why not do it first - and then if necessary do the gastroscopy.... probably just a regular Dr. office visit to do the breath test.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

newuser22
Regular Member


Date Joined Jun 2017
Total Posts : 67
   Posted 7/31/2017 5:59 PM (GMT -6)   
diaryoflymegirl.blogspot.com/2012/06/mycoplasma-often-overlooked-in-chronic.html

Summary

In chronic Lyme disease, it is often difficult to know which infections are actually responsible for the persistence of illness. However, in general terms, chronic intracellular infections that change the metabolism of cells and suppress mitochondrial and other functions will lead to patients remaining in a chronically ill state. Dr. Nicolson believes that these infections must be aggressively treated. "Similar to chronic Lyme disease, the current CDC or IDSA recommendations for short-term treatment of chronic infections are simply inadequate," he says.
Dr. Nicolson has found that there is a hierarchy of symptoms that resolve relatively quickly and those that resolve more slowly when treating Mycoplasma. Gut-associated phenomenon such as Irritable Bowel Syndrome (IBS) often resolve quickly. Other systemic signs and symptoms can resolve in an intermediate period of time from many weeks to many months. Symptoms associated with the central and peripheral nervous systems such as neuropathy and pain often resolve much more slowly. Skin sensitivity and burning sensations may take much longer to resolve. Mycoplasma infections do invade nerves, and nerve-related symptoms are among the more difficult to resolve.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 8/2/2017 11:14 PM (GMT -6)   
Thank you newuser22.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 8/2/2017 11:18 PM (GMT -6)   
Girlie said...

I guess there are false negatives with the breath test...but I would assume a positive means you have it...so why not do it first - and then if necessary do the gastroscopy.... probably just a regular Dr. office visit to do the breath test.


No, I have called some doctors and they tell that the biopsy needs to be done first...
The reason is that in the official recommandations it is stated that the breath test should only be used for the confirmation of the elimination of the infection.
Even if it can detect H pylori with more accuracy than the biopsy...
And without prescription, you can't have the drugs used to do the test.


So finally I've done the serology. The problem is that some test are pretty accurate, and other are very bad. So I'm waiting to see.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 8/9/2017 2:51 AM (GMT -6)   
I've had my test results : negative.

And it's a german test, pretty acurate. So it's probably not helicobacter that I have.

I had already ordered the products, because my mother have an helicobacter. And I tried two of it: probiotic and cranberry.
And I had a crazy reaction.
It's not a Lyme herx, I'm sure of that. But I don't know what is causing that. It's in my stomach or intestines, of that I'm sure.
But with antibiotics or lyme plants it doesn't acts on it.

i had bad reactions like that when I was doing the detox formula of traveler. I'm pretty sure that the garlic was doing it. But less powerfull.

I made tests, I'm not supposed to have Candida.
Some people tells me that I could have SIBO.
But does somebody knows what could cause massive reactions from intestines, but not triggered by antibiotics and many plants?

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 8/9/2017 3:22 AM (GMT -6)   
i know there is suffering involved and im sorry.

but looking at all these threads about inflated stomach, pain and all sorts of diagnosis ... is sometimes amusing, from my own perspective, because i remember how many misdiagnosis i've had. First there was liver cancer (yeah, imagine that), then there was h pylori, two gastroscopies later and they ruled out h pylori, then there was IBS. When they say IBS it really means they have ho fricking clue.

I had excruciating pains and gastritis, was on antacids and PPIs for months.... nothing worked.
After my lyme diagnosis i was given one month of levofloxacin and rifampin for Bartonella. And the pain went away, i was left with just severe bloating. This went away slowly by changing diet and eating coconut oil/butter, and ofc lyme treatment ...

now looking back at how retarded the GI doctors are about this disease (no offense intended) i can only laugh.

have a look at this presentation from the pinned time
/youtu.be/8Rma1co2LCQ?t=174
he talks about many interesting things but also mentions that bartonella can cause "h-pylori negative gastritis".

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 8/9/2017 12:02 PM (GMT -6)   
From my point of view, it's not very fun.

And the thing is that I don't think that I have bartonella.

Maybe the thing that I have in the stomach don't let me heal, and maybe it's what causing me much symptoms. Maybe more than Borrelia. Because treating borrelia doesn't improves me so much.

Maybe one of the things that you took for bartonella killed somthing you had inside the stomach?

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 9/3/2017 9:30 PM (GMT -6)   
hi everybody,

I come to give some news.

After my negative test for h pylori, I've bought a naso-gastric probe (a tube that goes into the stomach by the nose).
It's a little bit hardcore to do it by himself, but I succeded to do it. The goal was to take stomach acid, and to look at it with the microscope to see if I find H pylori.
I didn't find any.
But I don't know if it is possible to see it by microscope.
Anyway, I don't think that I have H pylori finally. When I put the tube I have felt that the point where I have pain is the entrance of the stomach, not inside the stomach. I think I have too much pressure, and the "valve" leaks a bit.

What is very weird is that I'm now sure that it's not Lyme that gives me much of my symptoms.
It's another thing. And what I'm sur is that it's in the digestive system. It may be a very bad thing because it gives me very bad reactions.
It's not a fungus I think (negative tests, and the antifungal does me nothing)
I don't think worms either because I had tests too, and no result. Also I've tested myself with my microscope.

So, does somebody know if there is a list of known coinfections that are intestinal?
Like bacteria, protozoa, etc?
Or if something is frequent with Lyme.

Also I've tested artemisinin, and it seems to be doing something on this thing. My intestines "reacts".
And I've retested the cranberry, and it seems ultra powerful on this thing! I'm stunned, it's not supposed to be a very powerfull plant, and I don't understand what is happening.
The essential oils that I bough also for H pylori in fact does nothing on it (manuka and carrott seed oil)

Also since I'm taking artemisine or cranberry, I'm stressed. I'm close to panick attacks. And my tolerance to exercise is very lowered. If I walk too much, I feel the urge to go to toilets and I feel very bad. Also I don't know why it is possible, but this thing seems to be linked to breath problems. All that is crazy... rolleyes

Post Edited (Healrom) : 9/4/2017 1:20:52 AM (GMT-6)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5092
   Posted 9/3/2017 9:42 PM (GMT -6)   
I did not read all of this (its long).

But..Candida will cause a bloated stomach. I had that many times, and the gastro Drs said thats impossible. Well they were wrong (well thats funny!). Sometimes you get white oral thrush from it to.

Candida feeds on breads, gluten, sweets, carbs. Eliminate those for a few weeks and if you feel bettet - that might be the cause. If candida goes into the blood there are antibody blood tests for it too - from "Normal" labs - not the weird ones were use to.

A leaky LES valve will also make you feel full. Gerd can make this valve leak. D-limonine from Jarrow can heal this valve. Drs dont know this.
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 9/4/2017 2:23 AM (GMT -6)   
Maybe I should have made my message shorter.
No it's not candida for me.
A long time ago I tested a restriction diet for 2 month I guess, but I didn't have results.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 9/4/2017 2:26 AM (GMT -6)   
In short, what I would like to know is if there are lists of common intestinal coinfection with Lyme?

But not candida, I don't have that.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5092
   Posted 9/4/2017 12:04 PM (GMT -6)   
There are other yeasts like, but diferent from candida. Someone here was posting a lot about it this spring. I dont remember the name of it or the poster.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 12/20/2017 4:20 PM (GMT -6)   
Nobody knows which infections could occur inside the intestines, -other than candida or any fungus- ?

And it's complicated and long to explain, but I know that it isn't Lyme. It's not bartonella either because I dont think I have this disease, and anti bartonella plants doesn't improves my digestive sysmptoms.

I have tried neem powder for SIBO, but it isn't effective on me. I'm trying now goldenseal for SIBO too, but it doesn't seem effective neither.

When a doctor gave me anti acid, it worsened a lot, also. After like 2 weeks.
And i had bad reaction by taking garlic when fasted, at 2 cloves. Not Lyme reactions. I had also reactions with a probiotic, but in the end it doesn't improves my digestion.

I'm getting short of ideas here.

insomniaaa
Regular Member


Date Joined Apr 2017
Total Posts : 173
   Posted 12/20/2017 5:38 PM (GMT -6)   
Try yersinia or similar

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16562
   Posted 12/20/2017 7:47 PM (GMT -6)   
Have you had stool tests? Stool tests should be able to tell if there's some sort of pathogen. They could also run a calprotectin and check for inflammation in the stool. A lot of things can cause bloating. I think stool test + calprotectin is a relatively easy way to at least eliminate a few things. It's not going to diagnose you with anything, but you will at least know it's not c difficile or campylobacter, or something along those lines. Unfortunately sometimes these things can get diagnosed as IBS, which can be frustrating, but it may be the case - especially if bloating is the only symptom & you're clear of inflammation and pathogens.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 12/21/2017 2:28 AM (GMT -6)   
Thank's for your answers.

Yes i had a stool test. They tested for candida and fungi. And also for salmonella, shigella, campylobacter, yersinia, staph aureaus. All was negative.
They didn't tested for C difficile.

A strange thing, is that there are a few days, my digestion improved dramatically. Also for one night, I was feeling my belly, and all the area, like if the nerves had been "reconnected".
It corresponds at the time when I started goldenseal. But now it doesn't work anymore.
Also I lifted a heavy thing, and i overwhelmed my capacity. Then my back was really painfull and I tried some exercises to decompress the spine. So i thought that it could be that. But it doesn't work anymore neither!
I know it's almost sci-fi what i'm telling, it's driving me nuts.
New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, August 18, 2018 2:42 PM (GMT -6)
There are a total of 2,994,145 posts in 328,109 threads.
View Active Threads


Who's Online
This forum has 161260 registered members. Please welcome our newest member, MrLouies.
278 Guest(s), 5 Registered Member(s) are currently online.  Details
notsosicklygirl, suppwife, quincy, ldog, Bchia