My brother was diagnosed with ALS July 2017 by one doctor. Another doctor thinks it could be multifocal motor neuropathy. He has taken several ivig infusion treatments. He took standard Lyme test it was negative. He took the igenex Lyme test and he got 4 1/2 bands positive . The doctor who is a infectious disease doctor said the ivig infusion treatment could have interfered with the results. Doctor wants my brother to take the igenex Lyme test over again in January 2018.Does anyone have an opinion on this.
Hi Lmgraff - welcome to our community.
Which bands were positive on the Igenex test? There are lyme 'specific' bands that only lyme will cause to be positive.
I have never heard that before - about
IVIG infusions interfering with a lyme WB test.
I think you should find a Lyme Literate Dr. (LLMD) to see your brother. Not an ID Dr. who isn't qualified.
Waiting until January when someone has ALS symptoms - is dangerous IMO. He needs to be treated for Lyme now if he does have Lyme. And with 4 bands positive - this could definitely be lyme. (I don't know which 4 they are though that your brother has)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi