I don't understand how to get the IgeneX test done.

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brongfogboy
New Member


Date Joined Jun 2015
Total Posts : 6
   Posted 8/14/2017 10:14 AM (GMT -7)   
I am going to see my primary care physician but don't understand how to get tested properly for Lyme.

Through much searching and reading on these forums it looks like the IgeneX test is the best one to go for. What is the best way to get this completed? Do I go to my primary care physician and ask him to order this test and then draw the blood etc? Or do I have to order it myself and bring it in (I assume nobody expects me to draw vials of blood myself).

Can someone please educate me on the best way to get this done? I want to get tested properly the very first time.

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1728
   Posted 8/14/2017 10:39 AM (GMT -7)   
You have pretty much answered your own question. Ask your primary care doctor if he will order the specific test. If not, (my primary care would not, they insisted on using Quest), you can order the test and have a blood draw and send it in yourself. My llmd did do testing through igenix. Many llmds rely primarily on igenix for testing

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 8/14/2017 10:47 AM (GMT -7)   
You need to order the test kit from Igenex (unless your Dr. already has a kit - if he isn't Lyme literate he most likely does not)

www.igenex.com

Give them a call, they'll send the test kit for free.

Then take it to your Dr. and he needs to sign the lab req. The best bang for your buck is the Lyme WB Igm and Igg for total of $210.

Then you get the blood drawn...either at your Dr. office...or go to a lab.
This must be done on Monday or Tuesday and sent off via Fedex right away.

Three weeks later - approximately - test results are in.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

brongfogboy
New Member


Date Joined Jun 2015
Total Posts : 6
   Posted 8/14/2017 11:05 AM (GMT -7)   
thanks for the education on this. so I'll be ordering my own igenex test. My best chance of accurate diagnosis is to order the

Lyme WB (western blot?) IGM
Igg

then I can order a blood draw at my primary care physician where they will draw the blood for me (this should be done on Monday or Tuesday) and I need to fedex it immediately after it is complete.

If anyone has any other suggestions then I'll be happy to hear.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 8/14/2017 11:08 AM (GMT -7)   
brongfogboy said...
thanks for the education on this. so I'll be ordering my own igenex test. My best chance of accurate diagnosis is to order the

Lyme WB (western blot?) IGM
Igg

then I can order a blood draw at my primary care physician where they will draw the blood for me (this should be done on Monday or Tuesday) and I need to fedex it immediately after it is complete.

If anyone has any other suggestions then I'll be happy to hear.


Yes Lyme WB IgM and IgG

I believe the test numbers on the sheet are # 188 and 189.

There are instructions on how to do the blood draw. I believe for those two test, it needs to be 'spun'.
The lab tech should know what to do.

Yes early in the week - as it needs to get to Fedex before they close for the week-end - or its' sitting for a couple more days.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 152
   Posted 8/14/2017 11:14 AM (GMT -7)   
I don't know what part of the country you are in, but if you live within driving distance of Igenex it is a whole lot easier to go directly to them. They do the draw, and you'll have results sooner because there is not the wait for the test kit and the time sending it back.
Quest Elisa Lyme positive 2/2017
Igenex Lyme WB igm positive 3/2017
Quest Ehrlichia positive 3/2017
Igenex Bartonella positive 4/2017
CD57 result 30 in 4/2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 8/14/2017 11:21 AM (GMT -7)   
mareish said...
I don't know what part of the country you are in, but if you live within driving distance of Igenex it is a whole lot easier to go directly to them. They do the draw, and you'll have results sooner because there is not the wait for the test kit and the time sending it back.


Really, mareish? I never knew that they did blood draws there.

Wow, thanks for this information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 152
   Posted 8/14/2017 11:25 AM (GMT -7)   
Yes, they do. I went there to speed up the process and was there for a total of about 15 minutes. No appointment is needed, but it is probably a good idea to check in with them first.

Good luck!
Quest Elisa Lyme positive 2/2017
Igenex Lyme WB igm positive 3/2017
Quest Ehrlichia positive 3/2017
Igenex Bartonella positive 4/2017
CD57 result 30 in 4/2017

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 152
   Posted 8/14/2017 11:29 AM (GMT -7)   
Brongfogboy - I forgot to add that you need to take with you to Igenex the lab requisition form signed by your physician.

The form can easily be downloaded/printed from the Igenex website.
Quest Elisa Lyme positive 2/2017
Igenex Lyme WB igm positive 3/2017
Quest Ehrlichia positive 3/2017
Igenex Bartonella positive 4/2017
CD57 result 30 in 4/2017

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 152
   Posted 8/14/2017 2:41 PM (GMT -7)   
Girlie, I was in desperate need of possible answers and could not stand the thought of having to order the kit, wait to receive the kit, go to lab for draw, mail back kit, wait for time it takes to do test, etc, so I called Igenex and asked if they can do the draw. Answer was a beautiful, "yes".

I was the only one there for a draw. No wait of any kind except for the filling out of a couple of forms. Too easy.

Takes 12 to 14 days for results, and results are send to doc who signed lab requisition form.
Quest Elisa Lyme positive 2/2017
Igenex Lyme WB igm positive 3/2017
Quest Ehrlichia positive 3/2017
Igenex Bartonella positive 4/2017
CD57 result 30 in 4/2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 8/14/2017 2:45 PM (GMT -7)   
mareish said...
Girlie, I was in desperate need of possible answers and could not stand the thought of having to order the kit, wait to receive the kit, go to lab for draw, mail back kit, wait for time it takes to do test, etc, so I called Igenex and asked if they can do the draw. Answer was a beautiful, "yes".

I was the only one there for a draw. No wait of any kind except for the filling out of a couple of forms. Too easy.

Takes 12 to 14 days for results, and results are send to doc who signed lab requisition form.


Wonderful!

It does make sense - they are a lab after all.

And yes, sooner results - no delay with waiting for the kit - and FedEx to return the sample!

Learn something new everyday here! yeah
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4435
   Posted 8/14/2017 3:10 PM (GMT -7)   
consider the dna connexions test , no doc needed

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 152
   Posted 8/14/2017 3:45 PM (GMT -7)   
For subsequent Igenex tests I have gone to Bioreference Lab. They do the draw for Igenex and send it directly. No need for Igenex kit. Still need the doc's signature, though.

Perhaps other labs provide the same service?
Quest Elisa Lyme positive 2/2017
Igenex Lyme WB igm positive 3/2017
Quest Ehrlichia positive 3/2017
Igenex Bartonella positive 4/2017
CD57 result 30 in 4/2017

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2041
   Posted 8/14/2017 8:33 PM (GMT -7)   
Just a FYI. I have found it much more difficult the past couple of years to do an outside kit like Igenex at local places around here. My GPs clinic has cracked down and will no longer do outside kits (they are a large corporate company). Quest use to do them, but they also cracked down and refuse now. The last time I had to do an outside kit, I finally found a lab that would do it but had to travel a bit.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2041
   Posted 8/14/2017 8:37 PM (GMT -7)   
Fortunately, there are some options for Lyme testing. We have personally done iGenex, Advanced Labs, and iSpot. I switched from IGenex to Advanced Labs because I needed a more definitive answer to make sure we were going down the right path.

DNA Connexions is also gaining popularity on this board. They had a presentation on the recent Chronic Lyme Disease Summit 2.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9121
   Posted 8/14/2017 8:38 PM (GMT -7)   
UPS has overnight shipping and I think it is less costly, last time I checked.
____________

Good Article

philsguy10
New Member


Date Joined Jul 2017
Total Posts : 13
   Posted 8/15/2017 7:03 AM (GMT -7)   
How long does it take Igenex to ship the kit? I put in my request two weeks ago and haven't received anything.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9121
   Posted 8/15/2017 7:49 AM (GMT -7)   
philsguy10 said...
How long does it take Igenex to ship the kit? I put in my request two weeks ago and haven't received anything.


I would give them a call and track the order:

Igenexx - http://www.igenex.com/
795 San Antonio Rd, Palo Alto, CA 94303, USA
US: (800) 832-3200
International: +1 (650) 424-1191
Email: customerservice@igenex.com

mudshark
Regular Member


Date Joined Aug 2017
Total Posts : 52
   Posted 8/15/2017 11:12 AM (GMT -7)   
I just ordered a kit from IGenex and will hopefully be able to get my primary doc to sign the form. I received an order confirmation, so we'll see how long it takes to receive the kit.

Lmgraff
Regular Member


Date Joined Oct 2017
Total Posts : 32
   Posted 10/6/2017 8:51 AM (GMT -7)   
My brother was diagnosed with ALS July 2017 by one doctor. Another doctor thinks it could be multifocal motor neuropathy. He has taken several ivig infusion treatments. He took standard Lyme test it was negative. He took the igenex Lyme test and he got 4 1/2 bands positive . The doctor who is a infectious disease doctor said the ivig infusion treatment could have interfered with the results. Doctor wants my brother to take the igenex Lyme test over again in January 2018.Does anyone have an opinion on this.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 115
   Posted 10/6/2017 10:26 AM (GMT -7)   
LMGraff you should start a new thread so more people will see it. I had 4 bands on my Igenex IGG. On the report it said negative, but I am treating with my LLMD anyway.

I read through the long, long CDC study where they talked about band count and pattern. They had a chart that listed specificty to Lyme. I think 2 bands were like 40%, 3 bands were 80%, 4 bands were 100%, and 5 bands were 100%. I will try to find the PDF study.

I think you should pursue additional opinons

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 10/6/2017 2:35 PM (GMT -7)   
Lmgraff said...
My brother was diagnosed with ALS July 2017 by one doctor. Another doctor thinks it could be multifocal motor neuropathy. He has taken several ivig infusion treatments. He took standard Lyme test it was negative. He took the igenex Lyme test and he got 4 1/2 bands positive . The doctor who is a infectious disease doctor said the ivig infusion treatment could have interfered with the results. Doctor wants my brother to take the igenex Lyme test over again in January 2018.Does anyone have an opinion on this.


Hi Lmgraff - welcome to our community.

Which bands were positive on the Igenex test? There are lyme 'specific' bands that only lyme will cause to be positive.

I have never heard that before - about IVIG infusions interfering with a lyme WB test.

I think you should find a Lyme Literate Dr. (LLMD) to see your brother. Not an ID Dr. who isn't qualified.

Waiting until January when someone has ALS symptoms - is dangerous IMO. He needs to be treated for Lyme now if he does have Lyme. And with 4 bands positive - this could definitely be lyme. (I don't know which 4 they are though that your brother has)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Lmgraff
Regular Member


Date Joined Oct 2017
Total Posts : 32
   Posted 10/6/2017 4:50 PM (GMT -7)   
Hi Girlie
I new to this site and I can't figure out how to reply directly to a post post . Please let me know how I can do that.
Thanks

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27832
   Posted 10/6/2017 5:01 PM (GMT -7)   
You can just post and mention the person's name in the post that you are replying to.


Or you can click on one of the 'tools' - upper right hand side of the person's post...that looks like a cartoon bubble - (white box with an exclamation mark in it) - and it will bring up what the person said into a new post. (If you hover over it, it says "quote this post"

Then underneath it, you can post your reply.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Lmgraff
Regular Member


Date Joined Oct 2017
Total Posts : 32
   Posted 10/6/2017 6:09 PM (GMT -7)   
Girlie
I'm not sure if my brother got a copy of igenex Lyme test results,if not I'll tell him to get it and I will post results. The infection disease doctor wants to send him to LLMD. The ID doctor said the results came out in a grey area and meds were going to make him weaker,he wants to talk to the ALS about the results . So that's where things are righ now.
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