Dramatic Improvement After Using Cyst/Biofilm Buster?

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NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/12/2017 7:41 AM (GMT -7)   
I'm curious.. Has anyone seen any quick improvment after using GSE, Stevia, Xylotol, Lactoferrin, Serrepeptase, etc?

I havent added anything like that in quite yet becuase I have been working hard at getting the full Buhner Protocol added with my antibiotics, but I am almost there and ready to add these in.

I am just hopeful that it will give me more improvement. I have been treating for exactly 6 months now and have been stuck at around 50% with my main symptom still being brain fog/ lightheaded/ "out of it" feeling. I also have weak legs, sometimes out of breath feeling, heart isn't as bad as it was but still pounds and is irregular every once in awhile, and anxious feeling.

Just fyi I am taking the following:
Minocycline
Biaxin
Nystatin
Cats Claw - 15 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 15 drops 2x a day
Japanese Knotweed - 30 drops 2x a day
Eleuthero - 20 drops 2x a day
Activated charcoal in the middle of the night
probiotics
vit D, C
Alka Seltzer Gold in the afternoon

If anyone sees anything wrong with my protocol or any suggestions based on my symptoms then please let me know.

Thank you!!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9015
   Posted 9/12/2017 9:08 AM (GMT -7)   
Breathing problems, I did cordyceps and NAC. My Mom has lung disease and NAC was recommended by her doctor too.
Heart probs, I did hawthorn and motherwort.

But just remember to go low and slow and we are all different, so what worked for me, may not work for you. Guinea pig again.....
____________

Good Article

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/12/2017 10:14 AM (GMT -7)   
I haven't had dramatic, quick improvement with any of my protocols.


You do need to add in both a cyst buster and biofilm buster...while you're taking abx.
I have never felt any difference on them...but they are necessary.

You could be stuck because you haven't treated the co-infections. Lyme rarely travels alone.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/12/2017 10:52 AM (GMT -7)   
Girlie said...
I haven't had dramatic, quick improvement with any of my protocols.


You do need to add in both a cyst buster and biofilm buster...while you're taking abx.
I have never felt any difference on them...but they are necessary.

You could be stuck because you haven't treated the co-infections. Lyme rarely travels alone.


What do you use for both Cysts and Biofilms? And what is your dosage? I am treating babesia with cryptolepis although not sure if that is what I have or if its bart or what. I know I do have mychoplasma Pnemoniae and my chlamydia pnemoniae was positive IgG.

PeteZa, thank you! I do take hawthorn for my heart, I forgot to add that.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/12/2017 11:05 AM (GMT -7)   
For cysts I did take it twice daily for two days per week.

I stopped taking it for awhile and now am back on but only twice a week for one week in my 4 week cycle.



For biofilms - i took Serrapeptase...but have switched to Xylitol and Lactoferrin - I take them for one week (daily) in my 4 week cycle.

The lactoferrin is 500 mg and the Xylitol is 2 tsp. (I started the xylitol at a lower dose and gradually increased it)

The Tinidazole is 500 mg twice daily (on the two days I take it)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/12/2017 12:38 PM (GMT -7)   
Girlie said...
For cysts I did take it twice daily for two days per week.

I stopped taking it for awhile and now am back on but only twice a week for one week in my 4 week cycle.



For biofilms - i took Serrapeptase...but have switched to Xylitol and Lactoferrin - I take them for one week (daily) in my 4 week cycle.

The lactoferrin is 500 mg and the Xylitol is 2 tsp. (I started the xylitol at a lower dose and gradually increased it)

The Tinidazole is 500 mg twice daily (on the two days I take it)


Thank you! I'll talk to my LLMD about Tinidazole. She never talks about cysts which concerns me. Even when I asked her if we are going to address that she changed the subject. Is there anything natural for cysts that works well?

And do you take the lactoferrin and xylitol together at the same time as antibiotics on the week you take it?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/12/2017 12:42 PM (GMT -7)   
The only non-pharma cyst buster that I'm aware of is Grapefruit Seed Extract.


Others may have more suggestions.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/12/2017 12:42 PM (GMT -7)   
I take the Lactoferrin and Xylitol first thing in the morning.

Then I take my antibiotics and then eat breakfast.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1227
   Posted 9/13/2017 4:06 PM (GMT -7)   
Girlie said...
For cysts I did take it twice daily for two days per week.

For biofilms - i took Serrapeptase...but have switched to Xylitol and Lactoferrin - I take them for one week (daily) in my 4 week cycle.

The lactoferrin is 500 mg and the Xylitol is 2 tsp. (I started the xylitol at a lower dose and gradually increased it)

The Tinidazole is 500 mg twice daily (on the two days I take it)


I did the same as Girlie outlined here. I have only now added lactoferrin and cut back on the Xylitol as my bacterial loads seem low now.

I still like Xylitol for mouth and nose rinse and think everyone should give it a go (slowly like Girlie indicated).

I think I averted an growing Babesia population early as I was waking at odd hours with night sweats for a while but Tinidazole stopped that in its tracks.

Fluconazole helped lots and probably with Borellia as well.

Bart is my last hurdle but its lurking and not prominent.

Borellia is likely still in my knee that I can tell but tolerable. Other disseminated oral spirochetes are likely a problem with me and at minimum still inflame my gums now and again.

Mystery thing still in lungs but manifests as a density the size of a quarter in the upper left lung. Its currently no longer painful and intermittent as a sometimes symptom rather than a constant. This is also mostly in check. Biaxin helped most with this invader.
AUG14:Mold Sick.FALL16:Clinical Bart/Borellia/Yeast
NOV16:Lung Pain. JAN17:Morg Scalp (resolved)
FEB17: Pupils, throat glow UV light.
Rx: Abx Break, Probiotic Rebuild, FLZ q72hr
Sup: Ozone, Magnets, Dental implants removed
Proto:Modified Klinghardt
Tx: self

Post Edited (ChickenArise) : 9/13/2017 11:31:12 PM (GMT-6)


gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 867
   Posted 9/13/2017 4:20 PM (GMT -7)   
Unfortunately, I don't think there's much quick improvement with Lyme disease, unless you just got LD like a month ago. Then you might notice a dramatic improvement.

If you have chronic Lyme, you will notice dramatic non-improvement from herxhemier reaction if you begin killing spirochetes quickly with abx, but not a dramatic improvement unfortunately. I guess some people who have tried hyperthermia have noticed a reasonably quick improvement, but I haven't had the $$ to afford that personally.

BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 355
   Posted 9/13/2017 5:00 PM (GMT -7)   
Just visited a new LLMD (well known) today who said he doesn't think serrapeptase, nattokinase, etc works for biofilms. Because biofilms are polysaccharides, but serra. eats protein.

I have done serrapeptase and lumbrokinase and noticed a bit of a herx, so it does SOMETHING. Just not biofilms.
Lyme and Babesia acquired in April 2016

*twitch twitch*

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/14/2017 10:30 AM (GMT -7)   
gfields said...
Unfortunately, I don't think there's much quick improvement with Lyme disease, unless you just got LD like a month ago. Then you might notice a dramatic improvement.

If you have chronic Lyme, you will notice dramatic non-improvement from herxhemier reaction if you begin killing spirochetes quickly with abx, but not a dramatic improvement unfortunately. I guess some people who have tried hyperthermia have noticed a reasonably quick improvement, but I haven't had the $$ to afford that personally.


I understand this.. I have been treating chronic Lyme for going on 7 months. I just was wondering if breaking up biofilms will get me over another hump that I cannot break right now.

I would not do hyperthermia treatment, I have only seen one success story and there lots of risks involved. Hopefully one of these days though, someone comes out with something that can be affordable and easily accessible with high success rates.

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/14/2017 12:01 PM (GMT -7)   
ChickenArise said...
Girlie said...
For cysts I did take it twice daily for two days per week.

For biofilms - i took Serrapeptase...but have switched to Xylitol and Lactoferrin - I take them for one week (daily) in my 4 week cycle.

The lactoferrin is 500 mg and the Xylitol is 2 tsp. (I started the xylitol at a lower dose and gradually increased it)

The Tinidazole is 500 mg twice daily (on the two days I take it)


I did the same as Girlie outlined here. I have only now added lactoferrin and cut back on the Xylitol as my bacterial loads seem low now.

I still like Xylitol for mouth and nose rinse and think everyone should give it a go (slowly like Girlie indicated).

I think I averted an growing Babesia population early as I was waking at odd hours with night sweats for a while but Tinidazole stopped that in its tracks.

Fluconazole helped lots and probably with Borellia as well.

Bart is my last hurdle but its lurking and not prominent.

Borellia is likely still in my knee that I can tell but tolerable. Other disseminated oral spirochetes are likely a problem with me and at minimum still inflame my gums now and again.

Mystery thing still in lungs but manifests as a density the size of a quarter in the upper left lung. Its currently no longer painful and intermittent as a sometimes symptom rather than a constant. This is also mostly in check. Biaxin helped most with this invader.


Thank you so much for all the info!

My llmd wants me to start Xylitol and Lactoferrin so I will be doing that soon. I just have been going downhill it seems lately. Last night I just felt very anxious and weak and light headed and my heart was pounding. I felt like I had just run 5 miles and could hardly walk.

This is after having a month or so of feeling about 60% better. Well enough to go out and take walks around the city. I have been increasing my Buhner herbs verrryy slowly so I have no idea why I just crashed like I did and now feel terrible. It is so scary...

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2000
   Posted 9/14/2017 2:27 PM (GMT -7)   
NicHostetler said...
I'm curious.. Has anyone seen any quick improvment after using GSE, Stevia, Xylotol, Lactoferrin, Serrepeptase, etc?

I havent added anything like that in quite yet becuase I have been working hard at getting the full Buhner Protocol added with my antibiotics, but I am almost there and ready to add these in.

I am just hopeful that it will give me more improvement. I have been treating for exactly 6 months now and have been stuck at around 50% with my main symptom still being brain fog/ lightheaded/ "out of it" feeling. I also have weak legs, sometimes out of breath feeling, heart isn't as bad as it was but still pounds and is irregular every once in awhile, and anxious feeling.

Just fyi I am taking the following:
Minocycline
Biaxin
Nystatin
Cats Claw - 15 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 15 drops 2x a day
Japanese Knotweed - 30 drops 2x a day
Eleuthero - 20 drops 2x a day
Activated charcoal in the middle of the night
probiotics
vit D, C
Alka Seltzer Gold in the afternoon

If anyone sees anything wrong with my protocol or any suggestions based on my symptoms then please let me know.

Thank you!!


Here is my experience/opinion/perspective:

GSE: I don't trust it, so we haven't used this one yet.
Stevia: We have used this, and we notice no benefit at all from using it. We tried it daily for several weeks for a trial. It did nothing (good or bad) for any of us.
Xylitol : I don't trust this one either, and I'm concerned about its toxicity. So, we haven't done this one either.
NAC: We've tried this mostly with Kid#1, and I can't say we saw anything from it. : |
Serrepeptase: I was thinking of trying his one at some point.

Good luck!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/14/2017 2:36 PM (GMT -7)   
I don't expect to see/feel improvement from the cyst/biofilm buster...we are always treating either herbally or with antibiotics at the same time...so not sure how to attribute the change to the cyst/biofilm buster.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/15/2017 5:46 AM (GMT -7)   
Girlie said...
I don't expect to see/feel improvement from the cyst/biofilm buster...we are always treating either herbally or with antibiotics at the same time...so not sure how to attribute the change to the cyst/biofilm buster.


If we are breaking up the biofilms/cysts and therefore able to knock out more of the borellia with the antibiotics and herbs, wouldnt that help us see improvement?

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2128
   Posted 9/15/2017 6:10 AM (GMT -7)   
My doctor said Lauricidin & stevia for biofilm. I add the stevia to coffee and tried it plain sublingual for awhile with no effect. I take a scoop of lauricidin once a day and again don't notice a thing.

I don't take anything for cysts but thought herbs hit all forms.

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/15/2017 6:14 AM (GMT -7)   
1 scoop and dont feel anything?! Wow..

I can only take about 15 pellets and it makes my brain fog gets really bad. No idea why it has this affect on me unless its hitting yeast or something..
Very sick starting around 07/2016
Started treatment 03/2017
Currently taking:
Minocycline
Biaxin
Nystatin
Cats Claw - 15 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 15 drops 2x a day
Japanese Knotweed - 30 drops 2x a day
Eleuthero - 20 drops 2x a day

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2128
   Posted 9/15/2017 6:44 AM (GMT -7)   
Maybe viruses...

I get a lot of side effects from abx but seem to tolerate natural stuff really well.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2000
   Posted 9/15/2017 7:35 AM (GMT -7)   
OMG on the lauricidin. I gave it to Kid#3 and me, and NOTHING. I battle chronic yeast issues for years, and I've knocked it back (but I still think I have low level issues with it). But it did nothing for me. I went up to half a scoop quickly.... NOTHING!
For Kid#3, noticed nothing too!

I give Kid#1 monolaurin in pills, and again, NOTHING!

Kid#2 is very responsive to monolaurin/Lysine-Extra for virals though. He is the only one he reacts to it.

Such a puzzle!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 317
   Posted 9/15/2017 7:38 AM (GMT -7)   
1000Daisies said...
OMG on the lauricidin. I gave it to Kid#3 and me, and NOTHING. I battle chronic yeast issues for years, and I've knocked it back (but I still think I have low level issues with it). But it did nothing for me. I went up to half a scoop quickly.... NOTHING!
For Kid#3, noticed nothing too!

I give Kid#1 monolaurin in pills, and again, NOTHING!

Kid#2 is very responsive to monolaurin/Lysine-Extra for virals though. He is the only one he reacts to it.

Such a puzzle!


So interesting!!! I have been taking lauricidin for months and dont think it has attributed to any reason i am seeing any improvement.

I tested positive for mychoplasma though and maybe that is why I react to it? ughhh such a puzzle indeed.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/15/2017 10:13 AM (GMT -7)   
NicHostetler said...
Girlie said...
I don't expect to see/feel improvement from the cyst/biofilm buster...we are always treating either herbally or with antibiotics at the same time...so not sure how to attribute the change to the cyst/biofilm buster.


If we are breaking up the biofilms/cysts and therefore able to knock out more of the borellia with the antibiotics and herbs, wouldnt that help us see improvement?


I guess if you've stalled out on treatment and then the only change you make is adding in a biofilm or cyst buster...then maybe yes.
If you're changing anything else...then no.

But here's an example why you may not know for sure:

You're on antibiotics for two months - with no change for the better or worse. Then you add in a cyst buster.
A couple of weeks later you have an improvement.
You don't know if you wouldn't have improved anyway...as this may have already happened...you may have done enough killing with the abx by that time for an improvement to happen.

I guess if you're treating for many months...with no change whatsoever ...and then add in a cyst buster...and a few weeks later ...or month later...you have an improvement...you can be somewhat confident that it's the cyst buster

But, the cyst buster/biofilms dissolvers can also make you feel worse...it's releasing more spirochetes into your blood stream.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 9/15/2017 11:17:02 AM (GMT-6)


insomniaaa
Regular Member


Date Joined Apr 2017
Total Posts : 22
   Posted 9/15/2017 11:30 AM (GMT -7)   
Girlie said...
The only non-pharma cyst buster that I'm aware of is Grapefruit Seed Extract.


Others may have more suggestions.

Thanks for the suggestion Girlie.

I believe artemisia annua is another natural cyst buster. Just my 2 cents.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27355
   Posted 9/15/2017 11:37 AM (GMT -7)   
Insomniaa said...
Girlie said...
The only non-pharma cyst buster that I'm aware of is Grapefruit Seed Extract.


Others may have more suggestions.

Thanks for the suggestion Girlie.

I believe artemisia annua is another natural cyst buster. Just my 2 cents.


Really? Not heard of that.

I know it's an herb for Babesia, though.


The other thing that busts cysts...is stopping treatment for awhile.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6095
   Posted 9/15/2017 11:01 PM (GMT -7)   
Hi NicHostetler -

First, 6 mos. isn't that long for treatment so being "stuck" is pretty common, unfortunately. Takes awhile to process through all the possibilities for what you should be treating, find the right treatment in the right combination in the right doses with the right support and sequence, etc. I'm exhausted just typing it.

I had my first gigantic move forward in my progress with my treatment when I started busting biofilms. I have been on a couple of antibiofilms for a couple of years but when I started Beyhond Balance BFM-1 I hit the jackpot--and absolutely crashed. Took me 3 months to recover, get back on it - I cycled through that process 3 times before I could work up to an optimal dose.

The second gigantic leap I made in my treatment was with PURE Cholestyramine.

It's pretty important to start any antibiofilm very carefully, slowly, and gently work your way up, detox thoroughly and a good binder is also important.

Good luck!

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!
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