Occipital or trigeminal neuralgia?

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 162
   Posted 9/13/2017 1:43 PM (GMT -7)   
Does anyone else have occipital or trigeminal neuralgia? Nervecpain that moves around head, face and neck every day, with different intensity?

ChickenArise
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Date Joined Nov 2015
Total Posts : 1227
   Posted 9/13/2017 4:20 PM (GMT -7)   
The closest I had was crawling sensations in that area but it was annoying and scary more than painful. I believe my sensation was all Bart.

I only chimed in to bump you up in hopes that you get an answer.
AUG14:Mold Sick.FALL16:Clinical Bart/Borellia/Yeast
NOV16:Lung Pain. JAN17:Morg Scalp (resolved)
FEB17: Pupils, throat glow UV light.
Rx: Abx Break, Probiotic Rebuild, FLZ q72hr
Sup: Ozone, Magnets, Dental implants removed
Proto:Modified Klinghardt
Tx: self

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 162
   Posted 9/13/2017 4:39 PM (GMT -7)   
Thanks ChickenArise! It doesn't seem to be a symptom many have, I googled it and found some old posts where they talked about it. I feel like I'm in a horrific nightmare and just wish I'd wake up!!

jrpsf
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Date Joined Aug 2014
Total Posts : 1646
   Posted 9/13/2017 6:30 PM (GMT -7)   
Tony-I deal with it.

Since you say that it's moving I'm going to guess that you are dealing with some form of inflammation based Thoracic outlet syndrome. www.doctorellis.com/ianatomy.php

If you carry things with your arms out stretched or reach for things above shoulder height this adds strain which will add to the inflammation. The more inflammation, the more pressure gets put on the muscles and nerves in the thoracic outlet. Feel the top of your trapezius muscle (top of your shoulder) on the side that your having the most pain. My guess is that it is rock hard which is not normal. Try alternating heat and ice on that area and on your upper back. I'd also recommend getting a theracane. You can purchase one through Amazon. Both astroman and myself have had success with trigger point release. You should be able to find someone in your area doing trigger point release massage/therapy. It should hurt like holy heck and then feel oh so much better.

Feel free to email me if you have any questions. I was diagnosed with TOS at 19, 55 now.

You need to get blood flowing properly. Imo it's restricted and that's the cause of the major pain.

Janet

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 162
   Posted 9/13/2017 10:05 PM (GMT -7)   
Wow! Thanks Janet! Yes my left trapezius is super tight. The odd thing is these headaches go away and then come back out of no where! When they come back they last for weeks 24/7. It seems that getting my top second back infected molar set this cycle off and it is so intense! I have prescription meds that I'm rather scared to try but I know if things don't get better I'll have to try it (amitryptiline is the one recommended). Do you think OC is a Lyme symptom or maybe the Lyme aggravates it. I used to have headaches that would happen once every other month or so but since having my atlas adjusted 2 years ago it sent me into 3 months of non stop pain! I just hope this round doesn't last so long. I will look into trigger point therapy and get that device you talked about. Thanks so much!

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1646
   Posted 9/13/2017 11:34 PM (GMT -7)   
tonyaraven said...
Wow! Thanks Janet! Yes my left trapezius is super tight. The odd thing is these headaches go away and then come back out of no where! When they come back they last for weeks 24/7. It seems that getting my top second back infected molar set this cycle off and it is so intense! I have prescription meds that I'm rather scared to try but I know if things don't get better I'll have to try it (amitryptiline is the one recommended). Do you think OC is a Lyme symptom or maybe the Lyme aggravates it. I used to have headaches that would happen once every other month or so but since having my atlas adjusted 2 years ago it sent me into 3 months of non stop pain! I just hope this round doesn't last so long. I will look into trigger point therapy and get that device you talked about. Thanks so much!


tony or tonya? If it's the latter the headaches once every other month could be hormone related. Very common in women.
TMJ or any bite related tension can easily occur when you have dental work done on your back teeth. Go back to your dentist and have him check your bite. A mouthguard may make all the difference for you. It's very likely that with the stress and pain of Lyme you are either grinding or clenching your teeth when you sleep. This is hard to explain but you can stand in front of a mirror and slowly open your mouth as wide as possible and close it very slowly. When you do this watch yourself and it's likely you will see your jaw weave quickly back and forth to one side. If it does that (you'll know it if you see it) open your mouth as wide as you can again but this time place your hand gently against your cheek and jaw exerting slight pressure and slowly close it. If it's out of whack it will but it back in. Repeat with your hand on the other cheek. You'll learn to know when it feels out or that the pain and headache is from being out of alignment.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4403
   Posted 9/13/2017 11:52 PM (GMT -7)   
it was bad like eyesocket being torn bad ...bvt to the dome and face has resolved it for me

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 162
   Posted 9/14/2017 5:59 AM (GMT -7)   
It's Tonya and I wish I could blame it on hormones! But when I get these headaches they don't leave!! The last few times I've had them they've last over a month every day constant with different intensities. When I first got then it was after I had my atlas adjusted (I didn't know I had Lyme and this alternative practionner told me my atlas was off) I believe he injured my occipital nerve because two hours after the adjustment it was like I went into shock! I was madly shaking, dizzy and nauseous! Then 3 months of horrible head and neck pain! It seems like every time I think it's gone and I get a break something else will set if off! This time it is SO bad! So much nervy pain going from my upper back into my head and over into my nose! Head will feel like it's in a vice and sometimes travels down my spine! I wish I could just remove my head and get some relief!!!! I'll check my bite and see and so desperate for anything to help! Both trigeminal and occipital neuralgia are known as suicide headaches and I so understand why! I can't imagine going on like this! It's taking so much out of me! Sorry I just realized I repeated the whole atlas thing...I can not think straight either!
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