My apologies as well for this hijack! Easier to answer Girlie's question here, but if you want any more information about
pineal cysts just let me know, and you might find the following information helpful when looking at your MRI.
No images - I just have the report.
Interesting the intracranial hypertension is coming up now. I just started thinking about that because when I went on the Babs treatment - with Mepron and mino...the pressure in my head behind my eyes got really bad.
I had been on mino for a long time...and had read it can cause that especially after long-term use...so I switched to Ceftin.
The head pressure is much better. (just a few weeks later) Hard to know if I was herxing with the mepron and Mino....and would have resolved anyway...OR was it the mino making it worse.
So, with treatment - when the intracranial hypertension completely resolves...will the stalk go back to where it should be? Or does it matter if its deviated to the left.
is IV abx treatment recommended?
I did have the pulsatile tinnitus...but it's pretty much gone now...since Babs treatment. Occasionally I have it - but very minor compared to before.
This MRI was done at the end of 2013 though after I tested high in cortisol. I had the dexamethasone suppression test done which ruled out an adrenal issue.
I requested an mri at that point to look at my pituitary gland.
That's all that was found.
Good news about
your pulsatile tinnitus being gone. I'm not a doctor so I'm obviously not qualified to make any diagnoses, but I'll share my thoughts on pituitary gland/intracranial hypertension below:
When the radiologist says the pituitary stalk is deviated to the "left", I'm assuming they mean literally to the left, as in closer to the left side of your head. This is NOT what's normally seen with intracranial hypertension (IH).
With IH, the cerebrospinal fluid (CSF) is under greater pressure, and often herniates into the sella turcica (the bony space that houses the pituitary gland). As CSF pushes against the pituitary gland, over time, the gland shrinks and the pituitary stalk is pushed posteriorly (towards the back of your head). Check out this image of a normal pituitary gland:/c1.staticflickr.com/5/4379/37074602066_0b275a4b70_b.jpg
Now look at this empty sella:/c1.staticflickr.com/5/4380/37074602486_35084ef864_o.jpg
You can't see the stalk in the first image, but it runs through the middle of the sella. Notice how in the second image the stalk has been pushed back in the sella? Now, is it possible that a doctor looks at this, and explains it to you as "your pituitary stalk has deviated right" (or left depending on the orientation of the MRI), when really, it's deviated posteriorly? Maybe. You can't really know unless you see the MRI. An easy solution to this problem would be to go to the hospital where you got the MRI and request the images on a disk (if they ask, say you're getting a copy for a doctor). They keep them on file for several years.
Anyway, I'm not suggesting you have any of this, I just brought it up because I know IH often presents with pulsatile tinnitus (among other symptoms like headaches, vision problems, weakness, numbness in extremities, and hormonal issues if the pituitary gland is affected enough), and your mention of a deviated pituitary stalk piqued my interest. It might also be helpful for BeatingthisBeast, if looking for signs of IH on MRI.
Post Edited (Mustard Seed) : 9/16/2017 12:43:49 PM (GMT-6)