I also lost my voice from lyme. Although, I did have so so many other symptoms. Dr J in DC has never had a patient lose their voice before me. I was shocked to hear that. However, under his care, I got it back in 6 weeks of treatment under his care, after losing it for 4 months. Yeah!!!
I also sounded like I was breathing in helium...a whispery helium....that is when I could get a sound out.
I can't imagine if my career revolved around my voice what horror that would be. For me, losing my voice was horrific because it showed me how many people have no patience for a person with a disability. When I would write things down on paper to communicate with say a cashier, or a receptionist in the dr office, I was met with hostility. Over and over again, day after day. It got to the point that I did not leave the house alone and would allow my husband to speak for me in public. I actually had a receptionist in a dr office yell at me in front of other patients, " I cannot understand you. I have no time to read notes from anyone! Just go and sit down!!" When I left after the appt was over, I needed to make a follow up appt, but she would not help me. She told me someone else would have to call and schedule that appt for me because she was certainly not going to deal with someone who could not talk to her. I cried for the rest of the day....for the loss of my independence. One time, and only one time did I ever have anyone be kind to me and patient. This was in a grocery store and I could not locate an item, during the Thanksgiving rush of food shopping. I wrote down what I was looking for and handed the note to a teenage employee who was so kind and gracious and did not act as if I was a thorn in his side and in fact acted as if nothing was out of the ordinary. He told me exactly where to find the item and took me right to it. I wanted to call his parents and tell them they did a great job with her son!
Losing your voice doesn't sound like much. I was in no pain. But emotionally it was very hard. Not being able to communicate was extremely challenging mentally. I have been given a glimpse into a deaf person or mute person's life. (I also have moderate hearing loss from lyme...which made it so much more difficult) It isn't fun.
I can say that Dr J was very concerned that it may not come back and certainly not without quick intervention. He understood without me telling him, how life changing it is to not be able to communicate. He was very concerned for the long term repercussions of that.
This disease is horrible. As is any other disease other people live with. If I have learned anything from this experience it is that everyone has a story even when they look totally happy and secure. Everyone has something that is difficult in their lives...we all need to be kind to one another. A person's actions toward another can make or break their outlook on life.
I thank God everyday for this board and the kind people who are on here, dealing with their own he** that reach out to help one another!
joee - that is unbelievable...wow...so sorry that you experienced that.
Yay for Dr. J!!!
I've had hoarseness several times with this disease...and even that was hard enough to deal with because my voice wasn't loud. But, no voice...and then to have that reaction...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi