Rocky Mountain spotted fever

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Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 9/26/2017 8:32 AM (GMT -6)   
Anyone know about this? My IGG came back positive. IGM negative.

dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 9/26/2017 9:08 AM (GMT -6)   
Based on your most recent post, it seems like you have Borrelia, Mycoplasma, RMSF, and probably Bart.

So you are in the same boat as the vast majority of people that get lyme, the vector that transmitted it passed along multiple pathogenic microbes. This reality comes with lyme disease.

So what needs to be done is addressing these multiple pathogens. Different herbal protocols and different ABX protocols can address multiple issues at a time.

If I'm not mistaken you are new. And you are doing what every new person in lyme does and that is get overwhelmed with everything. Lyme, co-infections, thyroid, gut health, etc and the list goes on. And you are trying to scramble as fast as you can for answers so you can "fix" everything immediately.

Can't be done.

What can be done is you can fix things gradually and you can prioritize what to fix. Sometimes multiple things at once is possible.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

k07
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Date Joined Sep 2015
Total Posts : 2537
   Posted 9/26/2017 10:13 AM (GMT -6)   
I am igg positive too. I think it's the lowest possible positive number -like 1:64. I've read this can be false pos due to lyme but who knows!

What are your symptoms and are you in an area that is prevalent for rmsf? I was in NC at time.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 9/26/2017 1:05 PM (GMT -6)   
Is there a different treatment protocol for RMSF? Or can it be treated with lyme abx?

If so, then I wouldn't worry so much about RMSF specifically.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

readingmom
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/26/2017 1:14 PM (GMT -6)   
So, I am positive for it as well. But my doc is addressing the symptoms that are most bothersome right now. She referred to it as chronic RMSF.
There is an older post on here if you search the archives about it. I think Traveler was involved in the conversation and she has a lot of knowledge to share.

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 9/26/2017 2:09 PM (GMT -6)   
Yeah my RMSF was 1:64 also. I am in CT.
My bartonella,babs, and mycoplasma were negative.
Lyme IGM still positive. So clearly that darn 21 days was not enough!grrrr.
Ko7 My symptoms are: fatigue, muscle weakness,not sleeping well. These are constant symptoms. I have some abdominal discomfort but usually that comes after eating or in the am when I first get up. Intestinal gas I think. Loose stools sometimes.
Symptoms that come and go: like a wave of restlessness/anxiety tingles in my neck/head upper back muscle and bicep twinges,brain fog...but I'm also exhausted.

Post Edited (Ashleyann82587) : 9/26/2017 1:12:42 PM (GMT-6)


Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 9/26/2017 2:12 PM (GMT -6)   
Girlie- RMSF is treated with doxy

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2537
   Posted 9/26/2017 8:59 PM (GMT -6)   
There's not a lot of info on chronic rmsf. I think buhner covers it a bit in his latest book. Acute rmsf can cause death in 10% of people uf untreated. I never got the rmsf rash. Since igg is low, i feel it's either a false positive or taken care of by previous abx. I have the same low positive igg for bartonella.

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 9/27/2017 6:13 AM (GMT -6)   
I never got the rash either. As soon as I got sick, not knowing at the time if it was in fact Lyme..I did have 21 days of doxy. I was 100% better for 4 weeks. Then slightly different symptoms started up.
My labs now are showing 2 positive bands for Lyme vs 4 bands previously. But I don't think they are reliable tests anyway.
For some reason I tolerated doxy great before. I just started it again and I'm getting awful abdominal pain. Ugh.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 9/27/2017 12:25 PM (GMT -6)   
Are you sandwiching the doxy with food? You should try that - eat a few bites, take the doxy and finish your meal.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2537
   Posted 9/27/2017 12:39 PM (GMT -6)   
Ashleyann82587 said...
I never got the rash either. As soon as I got sick, not knowing at the time if it was in fact Lyme..I did have 21 days of doxy. I was 100% better for 4 weeks. Then slightly different symptoms started up.
My labs now are showing 2 positive bands for Lyme vs 4 bands previously. But I don't think they are reliable tests anyway.
For some reason I tolerated doxy great before. I just started it again and I'm getting awful abdominal pain. Ugh.


I don't think you should worry then about the rmsf. I did not have abx when I had my summer flu (which is whenni suspect being bit). I did do a month of mino about a year later for suspected rosacea on face, so maybe it helped.

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 9/27/2017 12:43 PM (GMT -6)   
Thanks Girlie- I took it this morning with no issue. Hopefully it stays that way.

Rockymcd
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 1/10/2018 12:45 AM (GMT -6)   
I was just diagnosed with RMSF in late November 2017. Since then I have been on Doxy with some improvement, however, I feel like my optimism is getting the best of me.

The interesting thing about whole situation is that I believe my infection happened when I was 17 or 18 years old. I am 38 now. My symptoms included the high fever, lymph nodes were swollen everywhere, and a faint rash on my abdomen. I slept almost non stop for a week or so. Trying to be a tough guy I did not go to the doctor until week two of my symptoms. They examined me and said my spleen was enlarged and diagnosed it as mono. There was no testing to done to confirm this.

I really have never felt the same since. I am now 38 years old. Through the last 20 years I have suffered from fatigue. It seemed to go in waves. Sometimes it was extreme and others it was tolerable but still a struggle day to day. I had many follow up visits to try to find out what is going on through the years. Like many of you I heard the standard your just depressed or your not getting enough sleep and taking care of yourself.

In 2015 I took a new job. The training for that position was in another state and lasted 3 weeks. 2 weeks before going to the training my wife gave birth to our 3rd child. Needless to say, the training was intense. Knowing that she was at home on her own with a newborn and 2 kids did not help and I had an extremely difficult time sleeping. Some nights I did not sleep at all and at best I was able to get 4 hours of sleep.

When that occurred, I believe, my immune system function fell off the table and the RMSF was able to gain some considerable ground. After that, as time past the fatigue, outright exhaustion, and inability to just barely hang on to a functioning life was getting harder to do. I was having spells that sleeping for 2 -4 days straight. If not for my wife I'm not sure how things would have went.

I finally had enough and made a commitment to myself and my family to find out what was wrong with me come hell or high water. 2 years later, after 8 specialists and every test known to the medical community I finally locked myself down and began researching everything and eliminating what was known. I zeroed in a TBD and took the CDC codes for a full panel of testing to my physician and asked that she run the tests.

1 week later I had a positive diagnoses of 1:256 for RMSF. I have not seen the results from the doxy treatment that I was hoping for yet. There is a ton of information that can be found about the early symptoms of RMSF. Early diagnoses and the such.... But there is very little about the fatigue and exhaustion that can happen long term. I am in the midwest. Almost in the center of the RMSF country and yet, there are not any physicians that know anything about the subject. The ones that do, are not accepting new patients.

With 250k plus cases reported every year, how in the hell is that possible?

My questions for anyone on this forum that can give me some answers are:

1). Has anyone else had RMSF that was not treated after the infection and are now suffering from chronic fatigue and exhaustion.?

2). Has anyone been successfully treated for this? If so, what did you do?

3). Is it possible that a long regiment of doxy will eradicate the RMSF from my system?

4). Can retesting IGG show if progress is being made? My physician told me that it would not and that my antibody profile would always be there and show the same thing as the initial test, is that true?

Like probably everyone on this forum I am at my wits end and I am desperate for relief, energy, and answers. Please respond if you have experienced this or have any information that can help.

Thank you in advance.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2537
   Posted 1/10/2018 7:15 AM (GMT -6)   
I think you need to go to an LLMD for proper care and testing.

Stephen Buhner does list herbs in his second book that you could add. I was not treated initially either. Still not entirely sure if mine is a true positive but it consistently shows up and is prevalent in NC. I got very ill in the summer of 2010 with what I described as feeling like meningitis. High fever, crushing head pain, throat swelling/pain, light intolerance. Tough girl didn’t go to the doc either.

I did have major fatigue. I was falling asleep waiting to pick my kids up from school. It has gotten better but it does tend to have periods of flare up. Do you have any other symptoms?

I have cycled through many antibiotic combos so I can’t tell you what worked (or if it even did). Are you sure you don’t have lyme as well? I was negative on the standard elisa but positive on c6 elisa. You may want to explore an IGeneX test (western blot). Being that you are chronic, doxy will not cut it.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 394
   Posted 1/10/2018 10:08 AM (GMT -6)   
Rockymcd- Welcome.

I agree with k07. Please make an appt with an LLMD. I am in the Midwest too. It is frustrating how so many of the doctors around here do not understand tick borne infections.

Testing is sooooo bad at detecting these infections. I think most of us that are affected by tick borne infections have more than just one pathogen to deal with.


People here can help you find an LLMD. You might get more views if you start a new thread with something like "Need an LLMD near [your state]"

Not sure what state you are in, but I am pretty happy with my LLMD in Missouri

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 1/10/2018 1:03 PM (GMT -6)   
Hi Rocky - welcome!

I think (as the others' have posted) that you should see a LLMD for proper treatment.

I doubt if doxy alone will eradicate what's in your system. Ticks carry other diseases...and you most likely have lyme and/or the other co-infections.

No, you need more than doxycycline.

Retesting will not let you know if you've made progress, unfortunately.

In addition to posting a new topic requesting a LLMD here on the forum, you can also contact me and I will see what I have listed for your area...and send you some options.

We do encourage new members to read through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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