Rifaximin and Lyme

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Warrant
Regular Member


Date Joined Apr 2017
Total Posts : 25
   Posted 9/30/2017 5:44 AM (GMT -6)   
Hi,

Anyone has experience with Rifaximin in treating Lyme? I can not find much information as it doesn't seem to be prescribed often for Lyme so I am looking for some insights here.

My doctor believes that most people with Lyme have gut issues and this is the most important part of the immune system. He also did a stool analysis and it showed (mild) dysbiosis. Therefore he prescribes Rifaximin + lots of probiotics to heal the gut. (+ herbs, vitamins etc to fight the lyme).


Thanks!

Post Edited (Warrant) : 9/30/2017 1:18:15 PM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 9/30/2017 12:54 PM (GMT -6)   
Warrant - when I first read the title to this thread, I thought you had spelled Rifampin incorrectly.


I would want to try to treat my gut issues without an antibiotic first since the stool analysis showed only MILD dysbiosis.

Do you have diarrhea..or other indications that you would need an antibiotic to 'fix' it?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Warrant
Regular Member


Date Joined Apr 2017
Total Posts : 25
   Posted 9/30/2017 2:14 PM (GMT -6)   
Girlie said...
Warrant - when I first read the title to this thread, I thought you had spelled Rifampin incorrectly.


I would want to try to treat my gut issues without an antibiotic first since the stool analysis showed only MILD dysbiosis.

Do you have diarrhea..or other indications that you would need an antibiotic to 'fix' it?

Thank you for the reply. No I don't have diarrhea or anything like that, that's why I am uncomfortable going on this antibiotic for long term.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 9/30/2017 2:46 PM (GMT -6)   
I would feel the same as you.

I think you should just focus on natural gut healers...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

herbalwhiz
Regular Member


Date Joined Jul 2017
Total Posts : 31
   Posted 10/2/2017 1:10 PM (GMT -6)   
I developed a C-DIF infection following a course of Rifaxamin several years ago. It was horrible. They say it only stays in the gut and is not systemic, but even now I have a hard time grappling with that concept. So just a word of warning, I would steer clear of Rifaxamin.

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 410
   Posted 10/2/2017 9:26 PM (GMT -6)   
Herbalwhiz- how long had you been in antibiotics before c diff appeared? Was it long term?

herbalwhiz
Regular Member


Date Joined Jul 2017
Total Posts : 31
   Posted 10/3/2017 11:05 PM (GMT -6)   
I was put on a short course of Rifaximin that lasted several weeks. It was prescribed for SIBO, not Lyme. I think the c-diff showed up about two weeks after that. I had not been on any other antibiotics at that time, nor have I taken any since.

DocKR
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/30/2018 7:44 AM (GMT -6)   
Hello,

I appreciate your question - "Has anyone had experience using rifaximin (Xifaxan) for Lyme?"

I am an integrative/functional family medicine physician and my daughters have struggled with small intestinal bacterial overgrowth (SIBO) and Lyme for several years.

Because we had such DRASTIC improvement within 2 days using rifaximin for SIBO when my daughter was 8 yrs old, I assumed most of her (their) issues (abdominal pain,insomnia, feeling sick) were from the SIBO. As is common with SIBO, she gets recurrences, and each time it is more difficult to treat, and doesn't respond to previous treatments that worked in the past (rifaximin first, then Neem Plus and Allimax).

Then we discovered they had Lyme, and it was suggested that the abdominal pain was a Lyme neuropathy, similar to Bell's Palsy or Trigeminal neuralgia from Lyme. We are working on treating that, with success in one child, and ongoing struggles for the other.

I keep thinking back to how QUICKLY she responded with the treatments for SIBO, but now I wonder, were those treatments really treating the Lyme, and now the Lyme has become resistant to the treatments, as it so often does given that it is a "stealth pathogen"? (or the treatments hit both the SIBO and the Lyme?)

So my question is this: does Xifaxan (rifaximin) kill Lyme?
If indeed it does, perhaps one should stay on Xifaxan much longer, in combo with other treatments to target this stealth pathogen.
I will do a more in depth literature search, but as of this posting, I am not finding anything.

In Health,
A Doctor on a Journey . . .
I

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 1/30/2018 11:51 PM (GMT -6)   
Welcome, DocKR

I've not seen Rifaxmin prescribed for Lyme and co's...but I believe it is in the same class as Rifampin and Rifabutin...which are often used (paired with a second antibiotic) to treat the coinfection Bartonella

Gut issues are common with Lyme and co's, so treating the infections may also help with the SIBO.

Have your daughters been to a LLMD? If not, that's what I suggest.

If you need help finding a LLMD..that takes Peds cases...you can start a new thread: "Looking for LLMD in ________" and fill in the blank.

You can email me...I may have some Peds LLMD's listed.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 15, 2018 6:37 AM (GMT -6)
There are a total of 2,992,817 posts in 327,992 threads.
View Active Threads


Who's Online
This forum has 161206 registered members. Please welcome our newest member, Prakash33.
270 Guest(s), 7 Registered Member(s) are currently online.  Details
tickbite666, 18yearsandcounting, sierraDon, Prakash33, kat0823, Union98, Grand River Guy