scoliosis and Lyme?

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Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 9/30/2017 12:14 PM (GMT -6)   
Ok, so in the years leading up to my final diagnosis of Lyme & co. I was told I had a heart murmur and slight scoliosis developing. This was not an issue when I was youger. Is there a possible correlation, and that that the damage that Lyme & Co is doing to my muscle and joints is causing the scoliosis? It seem like most everything that is going on has the root cause of Lyme & Co. Has anyone experienced this or has heard if it is another thing affected by the Lyme & Co.

Girlie
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Date Joined May 2014
Total Posts : 32619
   Posted 9/30/2017 12:40 PM (GMT -6)   
I have mild scoliosis in my thoracic spine now. It curves to the right.

When I first got lyme symptoms - it had affected the nerves on my left side of back (thoracic) and left arm.
My left arm was pretty much paralyzed - I couldn't move it...it was limp and numb the night it happened.

Ended up with frozen shoulder. The muscles on my left side - thoracic - around the shoulder blade atrophied very quickly.

Then I noticed my thoracic spine curving to the right (not a lot, but noticeable).

4 physios I went to said it was cervical issues....ignored my shoulder blade area completely.
Finally a year and a half ago...I found another physio who looked at my back...and said my shoulder blade (left) was stuck to my ribs. No one else would even listen to me.

We are slowly getting things back. And guess what...strange as it seems...my curve is getting better with the strengthening of my left side.

In my case it was total, sudden nerve issues on my left side...basically rendering that side useless for many months.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 9/30/2017 2:38 PM (GMT -6)   
I have a slight S curve, and used to have major back spasms, sometimes at night.
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 9/30/2017 9:41 PM (GMT -6)   
Very interesting. It's was just a thought that popped inmy head today when I was getting a massage since my neck and upper back muscles are hard as rocks. I have heard it may be due to the Lyme feasting on the necessary manganese that's in our muscles and tendons. Is any one on Manganese supplementation ?

astroman
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Date Joined Mar 2014
Total Posts : 4879
   Posted 10/1/2017 10:02 AM (GMT -6)   
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 10/1/2017 11:41 AM (GMT -6)   
astroman said...
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.


I've read a few times that lyme likes Manganese...sometimes people get it confused with Magnesium
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

MAF249
Regular Member


Date Joined Jan 2017
Total Posts : 119
   Posted 10/1/2017 11:49 AM (GMT -6)   
I think the idea is that since the lyme uses the Manganese from our bodies that we would be low on it. supplementing manganese would in theory replace what the lyme is taking from us. Another thought is that if it causes the bacteria to replicate more that would make any antibiotics more effective. antibiotics work on bacteria that is replicating and the problem with borrelia is that it replicates slowly.

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 10/1/2017 12:13 PM (GMT -6)   
I am already doing Magnesium supplements but don't noticing it helping any. It was the Manganese that I was referring to. Wonder if supplementing with the Manganese would draw them out more and make it more feasible for our other herbs, medicines, treatments to destroy at least some of them? I have heard that the lyme & Co feast on Manganese which is essential to our muscle and when we get low it weakens weak areas even further. So basically the curvature and frozen muscles/ joints we are experiencing "might not" have occurred if it were for the infection.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 10/1/2017 12:32 PM (GMT -6)   
Girlie said...
astroman said...
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.


I've read a few times that lyme likes Manganese...sometimes people get it confused with Magnesium


Its been said and quoted right here many times, I think the whole online health community gets these two confused quite often.

For those taking magnesium, remember it needs to end in "ate" for it magnesium be absorbed. Magnesium "oxide" will not help with muscles or nervous system.

I know nothing about the forms of manganese- its seldom mentioned. The Pure encapsulations multi I take has 2 mg of manganese citrate. I might try more just separate mang citrate, but my spectrocell innercellular blood test ($400) show good levels with this multi vit in me.

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 10/1/2017 4:13 PM (GMT -6)   
I just found this information fellow Lymies:

"Recent study came out that Lyme is the only living organism that lives off manganese rather than iron. In order for the bacterium to survive in our bodies it consumes manganese. So, what are consequences of having a low level of manganese in the body:
Infertility
Impaired glucose metabolism
Diseases of the skeletal structure, and impaired growth
Pancreatic dysfunction
Elevated blood pressure
Atherosclerosis
Reduced protein metabolism
Reduced immune function
Ataxia
Selenium deficiency
Depressed activity of mammary glands in nursing mothers
Mitochondrial abnormalities

Scoliosis can be caused by nutritional imbalances; such as a lack of manganese."

So it appears the loss of manganese due to Lyme affects multiple areas. I thought this was really interesting information. Most of the list is not a surprise. Will have to explore this further.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 10/1/2017 4:32 PM (GMT -6)   
More like , what does lyme NOT do to the body.

Funny people dont supplement with it more. I know unlike magnessium, manganese in high levels is not good, so just dont over do it.

Might be wise to ones levels for reference.

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 10/1/2017 4:35 PM (GMT -6)   
I have a few of those racket balls that my Chiro recommended I use to roll on. And this great long solid foam tube it does wonders too. Not sure, perhaps the info above could have been mixed up with Magnesium. Hard for those to get to my neck. Will have to check this out more and what I can find to help.

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 85
   Posted 10/2/2017 10:25 AM (GMT -6)   
Thanks for the Info fellow Lymies. We are like green snow flakes. No two of us are alike!

notafanofbugs
New Member


Date Joined Nov 2013
Total Posts : 9
   Posted 4/20/2018 8:10 AM (GMT -6)   
I had an appointment with my massage therapist this week who told me to look up scoliosis and essential oils as she had heard that it could be caused by a virus. One search led to another and then I ended up here and saw the comment about heart murmur and slight scoliosis. Wow is all that I can say. My Lyme & Co. story involves a heart murmur and slight scoliosis as well - both diagnosed around age 12-ish. I'm 50 now. Just diagnosed 5 years ago. No prior doctor had ever heard my heart murmur until then. I never put all of this together. The pieces of the puzzle...amazing.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/20/2018 11:36 AM (GMT -6)   
How is your treatment going notafanofbugs?


You had mentioned going on a Maintenance protocol...is that where you're at now?

EDIT: I don't think you've been back to your LLMD since you talked about going on the Mtce protocol.


I wonder how the LLMD determines what is active infection vs time to heal needed.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 4/20/2018 12:18:48 PM (GMT-6)


notafanofbugs
New Member


Date Joined Nov 2013
Total Posts : 9
   Posted 4/20/2018 1:16 PM (GMT -6)   
Hi Girlie -

I made the decision to totally pull myself off of antibiotic treatment.

Having been on abx for nearly five years, my body has had enough. I've just had extensive BW (far beyond my monthly safety labs) done by a local practitioner to get a "new" picture I've been on Cymbalta for two weeks now and I am seeing much relief in lower back and torso pain. I am doing okay, but only time will tell. I am much better physically and mentally without the side effects from the antibiotics. I'm staying off abx unless something drastic resurfaces. (At least that is my plan now).

Trying to keep gut health happy and will continue with my supplements.

I question what you stated as well - how do they know what is active...it seems like it is just a guessing game since symptoms are sporadic. I'm just going to gamble and see what happens. Not schedule to go see LLMD until summer. May change - push out date to give me more time.

Hope you are doing well!

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 458
   Posted 5/31/2018 9:13 AM (GMT -6)   
Interesting thread. I went to a chiropractor yesterday and found out I have scoliosis and more nerve damage than I realized. Girlie, I could have written a lot of your post at the top of this thread, left side damage and all -- just to a lesser degree.

So you go to physical therapy for treatment? Wondering if chiropractor or PT is the way to go.
"This too shall pass. It might pass like a kidney stone, but it will pass."

Lyme, babesia, mycoplasma pneumonia. Diagnosed May 2017. Neuro symptoms began September 2017. Treating 11 months so far.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 5/31/2018 11:19 AM (GMT -6)   
I see an upper cervical chiro - have for many years (prelyme)

I don’t particularly get any relief from the adjustments - but I go every couple months to keep things aligned.

My current PT is wonderful - she is the fifth one (or is it 6th?) I’ve been to.
She acknowledged the left side atrophy and shoulder blade dysfunction and each appt she works on my trouble spots.
I’ve been to several who just gave me exercises to do - and I didn’t improve at all.

I stopped going last year - went through a low time and was feeling sorry for myself - I really should start going again.

(I burst into tears once while there and was so embarrassed - I thought it might happen again when I was feeling “low” so just kept putting it off)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Mind body spirit
Regular Member


Date Joined Jun 2018
Total Posts : 50
   Posted 6/10/2018 2:31 PM (GMT -6)   
Enzymes and egosque method of spinal care
Dx2010 headaches, stroke, bells palsey, trigeminal neuralgia. abx, av. more ticks. Seizures, fog, bedridden. Stage 4 w 10 coinfections. 30 days iv rochephin. Buhner+, parasite cleanse, cacao for mg and energy, enzymes, Vit c, ozone water, fire cider. sugar, wheat, grain, dairy free. Probiotics, kambo, magnets, dry brush, sauna, cold showers, walking, advaita meditation, egosque method. Emf
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