Muscle Weakness

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ValentineBaby
Regular Member


Date Joined Dec 2013
Total Posts : 95
   Posted 10/16/2017 6:12 PM (GMT -6)   
Was diagnosed with Lyme in 2011. Have had muscle weakness in arms and shoulders for some time but it has gotten progressively worse. Can't hold hair dryer above head to dry hair. Have trouble folding laundry, putting on mascara, etc. Recently have noticed some issues with chewing and swallowing where muscles in jaw and throat feel "tired". Went to my rheumatologist today (lyme literate) and mentioned those issues to him. 12 vials of blood and testing for polymyositis and myasthenia gravis along with a number of other autoimmune and nuromuscular issues. He did say it could be from Lyme but wants to cover all bases. Anyone else have same or similar?

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 10/16/2017 6:21 PM (GMT -6)   
I'm experiencing the samething. Not quite to your extent though.

Even the chewing thing I experience.

We both have lyme, so not a coincidence. HOWEVER, I do believe lyme can cause other "conditions" but the root cause is lyme.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 10/16/2017 6:23 PM (GMT -6)   
have you experienced muscle reduction/loss as well?
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 10/16/2017 6:56 PM (GMT -6)   
I have this too. My muscles are pretty much gone as well. sad

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 10/16/2017 7:17 PM (GMT -6)   
Ashleyann82587 said...
I have this too. My muscles are pretty much gone as well. sad


Have you tried any muscle working exercises?

Lmgraff
Regular Member


Date Joined Oct 2017
Total Posts : 32
   Posted 10/16/2017 7:36 PM (GMT -6)   
ValentineBaby
My was diagnosed with ALS in July he has muscle weakness , muscle wasting and slurred speech.he recently took Igenex Lyme test it was positive for Lyme disease. His neurologist believes it's ALS he said if he takes antibiotics he become weaker , I trying to get him to go to LLMD because He's afraid to take the antibiotics .

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 10/16/2017 8:08 PM (GMT -6)   
try my method of treating the lyme neurotoxin which is likely the reason behind your muscles issues.

http://www.healingwell.com/community/default.aspx?f=30&m=3928795&p=1

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 10/17/2017 12:30 PM (GMT -6)   
Decarte- no..I have like zero energy. 6 weeks ago I was fit and hiking 10 miles. In a matter of 3-4 weeks my muscles are gone and I've lost 6lbs despite eating normally.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 10/17/2017 12:47 PM (GMT -6)   
Same here... heavy, weak and sore arms. Driving is sometimes a chore. It has gone away recently but starting to flare back after restarting my 2 week pulse protocol last week after a 4 week off trial period.

Thigh muscles are same only when climbing stairs. Flat ground walking seems OK.

Ashleyann82587
Regular Member


Date Joined Sep 2017
Total Posts : 205
   Posted 10/17/2017 12:56 PM (GMT -6)   
Same here! What are you taking for meds?

DWhitney
New Member


Date Joined Mar 2018
Total Posts : 2
   Posted 3/11/2018 12:22 PM (GMT -6)   
Has anyone been diagnosed with Inclusion Body Myositis, a sporadic muscle wasting disease and found that Lyme Disease was the actual cause. I have had IBM for 10 years and lost most muscle in my triceps, quadriceps and tibialis?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32624
   Posted 3/11/2018 12:48 PM (GMT -6)   
Hi DWhitney - welcome to our community.

While I was not diagnosed with the IBM - I did have muscle wasting and weakness that was rapid onset in my case.

What was the test to diagnose it? muscle biopsy?
Or do they measure inflammation.

I'm not sure my Dr. would have even tested me for that...as I had many other symptoms going on.

Do you have other symptoms, too?

Have you had lyme testing done?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

DWhitney
New Member


Date Joined Mar 2018
Total Posts : 2
   Posted 3/11/2018 12:57 PM (GMT -6)   
My IBM was diagnosed with a muscle biopsy and was very slow in progressing (years) I was diagnosed in 2007 and am still walking. I do not remember being tested for Lymes Disease but will have attest done.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32624
   Posted 3/11/2018 1:48 PM (GMT -6)   
DWhitney said...
My IBM was diagnosed with a muscle biopsy and was very slow in progressing (years) I was diagnosed in 2007 and am still walking. I do not remember being tested for Lymes Disease but will have attest done.


Make sure you test with a lab that specializes in Tickborne disease testing.

Igenex is one of the best labs (in California) You can call them and they'll send you a test kit. Then get a Dr. - any Dr. including a Chiropractor...or a ND... to sign the lab req .

The best bang for your buck is the Lyme WB IgM and IgG for $250.


They have a couple new tests that look promising: Lyme Immunoblot IgM and IgG and the the Lyme IGX Spot.
I can't remember prices for the new ones...but they do cost more.

BTW - do you have any other symptoms besides the muscle weakness/atropy? Any fatigue...brain issues (memory/cognition), have you ever found a tick on you? anything unexplainable - muscle twitches....etc.

You get the blood draw done early in the week...and Fedex to Igenex. The results are generally in 3 weeks time.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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