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dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 3:33 PM (GMT -6)   
So I'm having a plethora of neuro/CNS symptoms, so it really doesn't surprise me that my actual spine would have some pain now.

I woke up this morning fine, took a shower, and then when I was getting dressed it started hurting.

I know it' the spine because one I can kind of tell it's coming from there. Two the pain runs right down my spine, not off the to the side or anything. And it hurts when I turn my head but especially looking down. I guess it's stretches the spine when you look down.

I've experienced a milder version of this in the past but this is the worse it's been.

That seems to be the trend, none of my symptoms are brand new but when they happen they are worse than in the past. I'm also treating lyme harder than I've ever have in the past so there may be a link there.

Has anyone experienced this as well?

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 4:14 PM (GMT -6)   
"The disease also commonly affects the neck and cervical spine, causing pain, stiffness, headache, and possible radicular symptoms"

The cervical spine is the upper spine. This is where the pain is coming from.

*sigh* get this bacteria out of me.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32521
   Posted 10/19/2017 7:28 PM (GMT -6)   
Sorry dacarte. I can relate. (again)

I've had pain around the spine area from the beginning...mine is mostly nerve pain though...it's horrible, thoracic section of the back.


Mine does cause radicular symptoms....down my left arm and hand/fingers.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 7:31 PM (GMT -6)   
Does yours hurt when you move your head especially looking down or just pulsating nerve pain?

And does the pain come and go for you like throughout the same day?

Also do you think it's a herx?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32521
   Posted 10/19/2017 7:44 PM (GMT -6)   
dacarte3 said...
Does yours hurt when you move your head especially looking down or just pulsating nerve pain?

And does the pain come and go for you like throughout the same day?

Also do you think it's a herx?


i have had off and on a stiff neck as well....and when I looked down - it would hurt, yes.


My nerve pain isn't pulsing...it is constant pain...searing pain...worse than any muscle or joint pain Ive ever had.

Mine wasn't a herx - the neck pain was there before treatment.
Same as the thoracic /arm/hand pain. There before treatment.

Yours' could be though.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 7:51 PM (GMT -6)   
Okay. So it's basically lyme meningitis happening.

I hope my CNS protocol of Pinella, Huperzine A and choline will help address these CNS inflammations.

Once again, it's "good" to know it's just lyme.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 10/19/2017 8:42 PM (GMT -6)   
the upper part of my spine hurts when I tilt my headbackwards, so opposite to you. i treated myself with diflucan to fight candida for a 10 day stretch, and funny enough, my spine pain got alot better, but when i stopped the diflucan, it came back. Not saying it's candida, but the diflucan most definitely worked towards some sort of bacteria there - some people say it is a cyst buster, I think? girlie, correct me if i am wrong please!
Registered Pharmacist in NY
Clinically diagnosed with Lyme and Bartonella Feb 2014.....Treated with abx & herbs for over 7 months. Finished treatment in Sept 2014. Healed from Lyme!! Read my success story on the forum here - http://www.healingwell.com/community/default.aspx?f=30&m=3509582

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 835
   Posted 10/19/2017 8:47 PM (GMT -6)   
dacarte3 said...
Okay. So it's basically lyme meningitis happening.

I hope my CNS protocol of Pinella, Huperzine A and choline will help address these CNS inflammations.

Once again, it's "good" to know it's just lyme.


what about getting back on ABX?

seems like Mino is the way to go here.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 8:49 PM (GMT -6)   
Lapis_29 said...
dacarte3 said...
Okay. So it's basically lyme meningitis happening.

I hope my CNS protocol of Pinella, Huperzine A and choline will help address these CNS inflammations.

Once again, it's "good" to know it's just lyme.


what about getting back on ABX?

seems like Mino is the way to go here.


I'm on multiple ABX. Plus herbal protocols. (yea I need to update my signature)

Post Edited (dacarte3) : 10/19/2017 8:52:26 PM (GMT-6)


Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 835
   Posted 10/19/2017 8:51 PM (GMT -6)   
dacarte3 said...
Lapis_29 said...
dacarte3 said...
Okay. So it's basically lyme meningitis happening.

I hope my CNS protocol of Pinella, Huperzine A and choline will help address these CNS inflammations.

Once again, it's "good" to know it's just lyme.


what about getting back on ABX?

seems like Mino is the way to go here.


I'm on multiple ABX. Plus herbal protocols.


I see, are the ones you on CNS penetrating? some are better than others at that

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/19/2017 8:55 PM (GMT -6)   
Lapis_29 said...
dacarte3 said...
Lapis_29 said...
dacarte3 said...
Okay. So it's basically lyme meningitis happening.

I hope my CNS protocol of Pinella, Huperzine A and choline will help address these CNS inflammations.

Once again, it's "good" to know it's just lyme.


what about getting back on ABX?

seems like Mino is the way to go here.


I'm on multiple ABX. Plus herbal protocols.


I see, are the ones you on CNS penetrating? some are better than others at that


I'm not too knowledgeable of abx so I don't know. I'm taking doxy and flagyl.

And then I'm taking Buhner herbs (antibacterial, immune modulating, cytokine reducing, detoxing, organ support, CNS).

I mean I'm going hard. If lyme takes me down and I can definitely say I went down swinging for sure.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 835
   Posted 10/19/2017 8:57 PM (GMT -6)   
Somebody said...
Minocycline is the most lipid-soluble of the tetracycline-class antibiotics, giving it the greatest penetration into the prostate and brain, but also the greatest amount of central nervous system (CNS)

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 835
   Posted 10/20/2017 10:33 AM (GMT -6)   
check out this thread

http://www.healingwell.com/community/default.aspx?f=30&m=3930703&g=3930757#m3930757

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/20/2017 11:07 AM (GMT -6)   
^^^

Yea but that's where flagyl is allegedly supposed to come in. To help bust round bodies. That's why I'm on both.

I have an appointment with my LLMD next month we are supposed to add a 3rd abx.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 835
   Posted 10/20/2017 11:09 AM (GMT -6)   
dacarte3 said...
^^^

Yea but that's where flagyl is allegedly supposed to come in. To help bust round bodies. That's why I'm on both.

I have an appointment with my LLMD next month we are supposed to add a 3rd abx.


but arnt you on doxy?

also, the low levels are key. high enough to kill. not high enough to induce round bodies.

something to think about

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 10/20/2017 11:27 AM (GMT -6)   
Lapis_29 said...
dacarte3 said...
^^^

Yea but that's where flagyl is allegedly supposed to come in. To help bust round bodies. That's why I'm on both.

I have an appointment with my LLMD next month we are supposed to add a 3rd abx.


but arnt you on doxy?

also, the low levels are key. high enough to kill. not high enough to induce round bodies.

something to think about


The doxy + flagyl combo in theory is supposed work synergistically together. Doxy is a bacterial static for the most part, so it stops the spread of the bacteria, it has the potential to kill it when it's not in cyst form when it's trying to reproduce. And then for the ones that turn into cyst the flagyl is allegedly supposed to have a good ability to bust cyst.

So I'm not seeing how this is "not good". Also a 3rd abx is on it's way next month, as the game plan is to continue to build the ABX treatment plan.

I'll bring up my most troubling symptoms (CNS) to my LLMD next month and let her know the next abx should be something that best addresses this issue.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32521
   Posted 10/20/2017 11:39 AM (GMT -6)   
Doxy is still a good antibiotic for lyme and co's treatment.

Many LLMD's are still prescribing it with good results.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 53
   Posted 1/10/2018 7:17 PM (GMT -6)   
This sounds like me! Has anyone had a MRI? Mine showed herniation c4-c7 and mod stenosis between a couple of those w/vertigo and dizziness everyday since early Aug. Back in vestibular PT w/emphasis on more neck mobility (downward ROM very limited). The neck pain feels like I've been in a car crash and intense (like wind knocked out of me but not short of breath - I know that doesn't make sense). Looking down is the worst even tho PT has given me some ROM.

I haven't done heavy doses of abx - only herbal protocol, but am willing to try at this point. Anyone had luck w/ any special herbals, pemf, or ozone?

Just turned 44 and have two young kids at home. Otherwise, I'd give up. The pain is horrible and has greatly limited life. Natural, drug-free childbirth was less painful. Cannot plan anything for travel or even to volunteer at kids' school b/c it's so limiting. Reminded myself of that by volunteering for an hour today and paying for it all day long.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 1/10/2018 7:34 PM (GMT -6)   
bleepitybleep said...
This sounds like me! Has anyone had a MRI? Mine showed herniation c4-c7 and mod stenosis between a couple of those w/vertigo and dizziness everyday since early Aug. Back in vestibular PT w/emphasis on more neck mobility (downward ROM very limited). The neck pain feels like I've been in a car crash and intense (like wind knocked out of me but not short of breath - I know that doesn't make sense). Looking down is the worst even tho PT has given me some ROM.

I haven't done heavy doses of abx - only herbal protocol, but am willing to try at this point. Anyone had luck w/ any special herbals, pemf, or ozone?

Just turned 44 and have two young kids at home. Otherwise, I'd give up. The pain is horrible and has greatly limited life. Natural, drug-free childbirth was less painful. Cannot plan anything for travel or even to volunteer at kids' school b/c it's so limiting. Reminded myself of that by volunteering for an hour today and paying for it all day long.


Since posting this, this symptom went away. It took a few days. Out of fear I got a few other things checked out that could have caused this and all clear in those areas.

Since this post this symptoms plus all others I was experiencing has either completely went away or very greatly reduced.

I just kept treating with a ABX a little bit longer since this post and a plethora of herbs (which I still take now). The plethora of herbs also includes CNS herbs.

So knock on wood that I don't regress and keep improving.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32521
   Posted 1/10/2018 7:41 PM (GMT -6)   
bleepitybleep said...
This sounds like me! Has anyone had a MRI? Mine showed herniation c4-c7 and mod stenosis between a couple of those w/vertigo and dizziness everyday since early Aug. Back in vestibular PT w/emphasis on more neck mobility (downward ROM very limited). The neck pain feels like I've been in a car crash and intense (like wind knocked out of me but not short of breath - I know that doesn't make sense). Looking down is the worst even tho PT has given me some ROM.

I haven't done heavy doses of abx - only herbal protocol, but am willing to try at this point. Anyone had luck w/ any special herbals, pemf, or ozone?

Just turned 44 and have two young kids at home. Otherwise, I'd give up. The pain is horrible and has greatly limited life. Natural, drug-free childbirth was less painful. Cannot plan anything for travel or even to volunteer at kids' school b/c it's so limiting. Reminded myself of that by volunteering for an hour today and paying for it all day long.


Ive had several MRI's.
I'm hoping Dr. J. will have a good look at my brain mri.


Re: herbals. Many here are doing Buhner's herbs. Some like Cowden, Byron White, Beyond Balance...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1499
   Posted 1/10/2018 10:13 PM (GMT -6)   
How can you be certain its not the muscle? The back muscles fooled me into thinking I had a problem in the thoracic area of the spine. It felt like a pinched nerve too.

Increasing Magnesium intake relieved the inflammation temporarily but it helped me to know it was the muscles all along. It was an improvement that I could live with and still use Magnesium as it helps.

This and the fact that I had no structural issue in a thoracic MRI was the only way I could even tell the difference between muscle, nerve, and spine pain.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT (for now): www.tinyurl.com/CHIARISE
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32521
   Posted 1/10/2018 10:25 PM (GMT -6)   
ChickenArise said...
How can you be certain its not the muscle? The back muscles fooled me into thinking I had a problem in the thoracic area of the spine. It felt like a pinched nerve too.

Increasing Magnesium intake relieved the inflammation temporarily but it helped me to know it was the muscles all along. It was an improvement that I could live with and still use Magnesium as it helps.

This and the fact that I had no structural issue in a thoracic MRI was the only way I could even tell the difference between muscle, nerve, and spine pain.


For me, it's nerve pain...and my muscles atrophied really quickly on my upper left side.
Lyme (or bart?) had hit my nerves...and that's what caused the quick muscle atrophy. (It happened so quickly - wasn't from lack of use)

I have read its the myelin sheath that gets damaged.

I also take magnesium.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1499
   Posted 1/10/2018 11:05 PM (GMT -6)   
Girlie said...
ChickenArise said...
How can you be certain its not the muscle? The back muscles fooled me into thinking I had a problem in the thoracic area of the spine. It felt like a pinched nerve too.

Increasing Magnesium intake relieved the inflammation temporarily but it helped me to know it was the muscles all along. It was an improvement that I could live with and still use Magnesium as it helps.

This and the fact that I had no structural issue in a thoracic MRI was the only way I could even tell the difference between muscle, nerve, and spine pain.


For me, it's nerve pain...and my muscles atrophied really quickly on my upper left side.
Lyme (or bart?) had hit my nerves...and that's what caused the quick muscle atrophy. (It happened so quickly - wasn't from lack of use)

I have read its the myelin sheath that gets damaged.

I also take magnesium.


I could totally see that. My muscles also atrophied. Gabapentin used to work for me. But in order for it to continue I was going to have to go up to 1200mg per day from 900mg so I weaned off of it instead. The pain isn't worse though its better. Go figure.

The magnesium isn't the 100% solution I once thought it was. The pain came back even at high regular dosing of Mg, which is why I still use Kratom. Its likely a combination of nerve and muscle. But I cannot be absolutely sure about anything anymore.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: https://www.youtube.com/channel/UCeMUo-o1gblpCFXRf02Ar1A
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "
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