Why are my tremors/vibrations worse in the morning upon waking?

Every morning when I wake up, as soon as I move for the first time even the slightest bit, I feel a strong surge of vibrations pulse throughout my body. I wish I could describe it better but I just don't know how.

I always have an internal vibration and tremor to some degree, 24/7. The vibrations are part of or associated with the tremor I believe. I always notice my tremor is worse when the vibration is worse. But I notice both are so much worse in the mornings. I wonder if it's because blood sugar is low upon waking.

Does anyone else have this vibration surge symptom first thing upon waking? It seems so bizarre.

Yep, Hoagie, it's sounds very much like my symptoms. And yes it reallly scared me too until I found out that I probably have Lyme disease. In fact the vibration was one of the symptoms that made me first suspect Lyme because I had never heard of anyone else but Lyme sufferers who have this.

It's so weird that it happens so strongly like this upon waking. I wonder why. I figure it must be a CNS thing but wonder what exactly is happening inside?

Manzanita2 said...
Yep, Hoagie, it's sounds very much like my symptoms. And yes it reallly scared me too until I found out that I probably have Lyme disease. In fact the vibration was one of the symptoms that made me first suspect Lyme because I had never heard of anyone else but Lyme sufferers who have this.

It's so weird that it happens so strongly like this upon waking. I wonder why. I figure it must be a CNS thing but wonder what exactly is happening inside?

It's probably off the charts while we sleep. Oh well... one of the joys of Lyme.

I don't get vibration and tremors but I get tingling and pins and needles ONLY when I'm coming out of a sleep and into that half sleep half awake stage.

The feeling I'm experiencing may be different but I think it's very interesting that it's connected to sleep and waking up.

Once again it ONLY happens in these moments never any other time.

There's something about sleep and waking up from it that makes and/or allows it to happen. Even though our symptoms are slightly different there's some kind of weird connection there.

Manzanita2 said...
Girlie, yes I have had the shivers and goosebumps when I was listening to some really awesome music or during a moving passage in a book or movie but that hasn't happened to me in relation to this illness. I mean it's not like s symptom.

The vibrations and tremor were also what made me understand there was really something wrong with me, not just that I was run down or that my arthritis was flaring up. Well, that and the heart palpitations that started at the same time.

So, I get those shivers when it's not THAT moving or awesome.

I went to the theatre with my husband and we watched that movie - Deepwater Horizon - that offshore drilling rig that exploded.
I swear I shivered from start to finish...very disturbing.

Girlie said...
So, I get those shivers when it's not THAT moving or awesome.

I don't know if I'd describe what I get as the shivers but sometimes my body will totally over-react to emotional stimulation in a similar way. I tend to get shaky and get what I call a "jittery jaw". It's kind of like my teeth are chattering, so maybe it is a bit like the shivers, come to think of it. The bizarre thing is that when this happens, it's like you say; my mind isn't all that anxious but my body will react as if it is. Like maybe my body produces too much adrenaline or something.

I don't get that symptom as much these days as I did a few years ago when I first got sick. I hope that's evidence that I'm slowly getting better. Do you still get the shivering symptom often?

Manzanita2 said...

Girlie said...
So, I get those shivers when it's not THAT moving or awesome.

I don't know if I'd describe what I get as the shivers but sometimes my body will totally over-react to emotional stimulation in a similar way. I tend to get shaky and get what I call a "jittery jaw". It's kind of like my teeth are chattering, so maybe it is a bit like the shivers, come to think of it. The bizarre thing is that when this happens, it's like you say; my mind isn't all that anxious but my body will react as if it is. Like maybe my body produces too much adrenaline or something.

I don't get that symptom as much these days as I did a few years ago when I first got sick. I hope that's evidence that I'm slowly getting better. Do you still get the shivering symptom often?

I have trouble describing it - because I'm not really cold when I get the shivers...and there's no goosebumps on my skin. It's kind of like the vibrations I get...but more intense.
Maybe it's an adrenaline rush. And, yes, my body is reacting instantly and my mind doesn't even know I should be reacting...if that makes sense.

I get the shivering more now - since Babesia treatment...

Hey hedna can you describe the internal shakes? Is it in your extremities or your chest/abdominal area? Is it like a buzzing? I get a buzzing in the places i have neuroapthy (extremities), curious if this is what youre referring to or something else

Post Edited (dcd2103) : 1/3/2021 12:58:22 PM (GMT-7)

I posted about this a while ago. For me the tremors and weakness are worse once I stand up and start walking. It's like I can't even function anymore. You'd think this would be constant having lyme and mild etc and all bt it only happens certain times for me . I've had the wierd vibrations and I found out from my nuerologist they can be types of seizures beleive it or not which is very common with lyme etc . It felt as if my body was vibrating / pulsating or buzzing from the inside out almost like my nerves were moving. My mom has lyme mold etc and has the same exact experience .takes someone to experience to actually relate to what you talking about .

My internal shivers seems to come from my CNS. Feels like something is over stimulating my brain.
It’s different than the vibrations though.

I experienced the internal cell phone sensation upon waking for a while, and my LL folks at the time characterized it as adrenal in nature. I have HPA axis dysfunction, meaning my hormonal systems are out-of-balance. Because of this, my nervous system was hyper-sensitive to the little spike in cortisol that everyone experiences first thing in the morning.

I don't think the cortisol urine test is useful for this because it only measures total cortisol, which can be normal even if a person's spikes are all at the wrong times, too high or low, etc. A saliva test taken at four different times of day, preferably for multiple days, is preferable. That said, if your body is making normal cortisol but is diverting it for other uses (for example, cortisol can be used to do the duty of reproductive hormones if your body isn't producing those) then you could have normal cortisol tests but functionally low cortisol. Additionally, not having enough cortisol makes you hypersensitive to the little bit you do produce, yielding symptoms of high cortisol! So this stuff can be confusing.

Treating HPA axis dysfunction (which is often what folks with "adrenal fatigue" are dealing with) can be straightforward: clean diet, no stimulants, good sleep, genuinely manage stress, move your body. If that's not enough, then people try herbal adaptogens (ashwagandha, eleuthero, rhodiola, etc.) depending on which works best for them. If progesterone is an issue, then you might add chaste tree. If testosterone is an issue (with supportive test results) then DHEA could be considered. Some also take adrenal glandular supplements, like Dr. Wilson's Adrenal Rebuilder. All of the relevant supplements and meds should be started very slowly.

Hope you find something helpful soon!

Good point, dcd. The sensation I am referring to was deep within my chest usually. I also occasionally felt it in my lower abdomen, also deep inside. It's been years since it's happened, but it was alarming at the time!

Gotcha, thanks guys. So this chest sensation is different than the sensation I have in my limbs. I got internal vibrations in my chest the first 2 times I transitioned into ketosis, and have read online that this is quite common, so an HPA-axis relation make sense.

I spoke w/ a pain management dr yesterday, explained my theory about how the buzzing sensation that only affects some SFN patients is an excitatory response. He acted like he'd never really heard about this buzzing sensation or considered the fact that neuropathy patients might have different types of pain. He thought about it and said that it makes total sense, and that it's probably coming from the dorsal horn which would send the signals down the legs. He said that this is a demonstrated response w/ certain injuries and very well may be whats going on in SFN. Ketamine should help it. So i'm curious to see what happens.

Post Edited (dcd2103) : 1/5/2021 10:07:41 AM (GMT-7)