Couldn't these things also be caused by Lyme and Co?
YES. There is a lot of overlap between Lyme & Co and y/f overgrowth, mold, thyroid, GI distress, heavy metals and MANY other body system failures. It is VERY difficult to "unwind" in order to know what you're dealing with. And if you're like most of us, you are likely dealing with more than just one issue.
Take a deep breath. The conversation is overwhelming and probably more than a little confusing right now because we're trying to draw the right information out of you so that we have a clearer picture of what is going on with you so that we can help you break all this down and move forward.
And we can help you do that too. You're not alone, you're not the first, and while your journey has been miserable and unproductive and costly (in many ways), it's not all that different than many of us here. We have been there, have also been scared and confused and very sick, but we have learned a lot and many of us are HEALING. We're here to help you learn from our experiences so that you can get on a path to healing.
To be very blunt, this is not going to be easy. But you can make good progress if you take things one step at a time and do it methodically. It's best if you can get someone to help you get organized who is there with you - a friend? family member? neighbor? church member? Are there any hospice-type resources in your area?
Should I try to find a functional medicine doc or naturopath? There are very few of those where I live as well.
YES. I think this kind of partnership can help you get the antifungal meds you need and also get a proper thyroid dx. You will save yourself time and money if you educate yourself a little bit between now and your appt - we'll help you.
And, while you're waiting to see someone, there are a few additional things that YOU can do on your own to prepare your body and get started.
So - let's start the conversation over. I'll bring over pieces from my previous posts and place everything here so it's a little better organized. Week 1
First - schedule an appt with a naturopath/functional doctor. Be specific about
why you're interested in working with them - you want to address GI, yeast/fungal, mold and thyroid issues. This is a pretty common group of problems presented to them. Obviously, it's their role to "officially" diagnose you but this short list lets them know you have some general understanding of what your symptoms are that suggests what is going on.
GI focus is something you can do in a straight-forward way on your own and can eliminate a few sx AND likely reveal more information for you to then use to figure out next steps. These are also steps you can and should start TODAY:
Regardless of what your official diagnoses might be, you won't make much progress with any treatment without a very healthy GI and immune system (since 70% of our immune system lives in the mucosal lining of our GI and the GI needs to properly absorb nutrition and meds and support). Almost all of us need to clean shop in order to get started. Use this time to make some progress.
Here is the GI post I already linked to:/www.healingwell.com/community/default.aspx?f=30&m=3935751&g=3937567#m3937567
If that link doesn't work - try this one and look for my post:/www.healingwell.com/community/default.aspx?f=30&m=3935751
I cleaned up my diet a lot , infact I don't eat much anymore because I have no appetite lately. Feeling like your brain and whole sense of self is gone will do that to you too.
You won't heal from anything if you aren't feeding your body. You have to fight through the lack of appetite
- it's likely caused by all the disruption going on in your GI and the y/f overgrowth also likes to hijack shut down appetite.
Set a timer to remind you to eat 5 times a day - small portions. Eating less but more frequently will place less demand on your GI to process a huge meal all at once, help you absorb nutrients better, help balance blood sugar, smaller meals are easier to manage if you're struggling with appetite, and also keep you focused on a a more complex schedule once you start adding in more components of teratment.
Follow the information in that post above for what to eat and what you cannot eat - in order to get started.
Also, go ahead and try applying a nice coat of the coconut oil on your face and arms after you shower. This isn't going to eliminate much of the overgrowth but might help reduce some symptoms.
Also - NOW is the time to start detoxing your GI, which is also absolutely critical in order to heal GI and get the y/f overgrowth under control and remediate any mold in the body.
Start with some modified citrus pectin (MCP). Start taking tiny doses - like 1/4 teaspoon once/day. If you don't have any serious issues, take the same dose twice a day... and then slowly increase each dose over time. Rules also include: ALWAYS drink a lot of water before, during and after your doses. And ALWAYS take the binders 2 hours away from ingesting anything else except water - or the binder will drag it out instead of the toxins.
The MCP will help remove the toxins and debris from your GI from the abx treatment, and from yeast/fungal overgrowth, is likely to remove mold toxins and will likely help reduce the neuro-psych issues that result from all these neurotoxins getting into the brain! It was probably the most important part of my protocol. This is why you need to start very slowly - you can herx from the binders if you go too quickly. A little herxing is OK but you don't want a lot of herxing. Too much herxing - stop for a day and then restart with a lower dose.Week 2
Now that you have some GI healing and detoxing underway and are still waiting for your appt, use week 2 to read through these posts again, take each category of your likely diagnoses and learn as much as you can and jot down questions for you appointment.
Please bookmark or copy and paste these posts into an email to yourself or into a Word or text document so that you can keep track of the information.
Get ready for your appt by listing your symptoms in the following categories - bring a copy of this to your appt to have them make a copy for your records. Use a scale from 1-5 to indicate how severe they are, how frequent they are (don't worry about
getting things in the right category - just get it down on paper). You will need to try to update this daily so that you can keep track of your sx. There is a nice sx spreadsheet in the "New to Lyme?" thread at the top of the page that you can download and use if you like spreadsheets.
Buy a planner - the ones on sale right now are only for 2018 but use the "notes" sections for the remainder of 2017. Use it to document your protocol - what you take/how much/when. Use it to document your daily symptoms. Weeks 3 - 5
It's not entirely necessary to have cut-and-dry diagnosis of y/f overgrowth or mold or thyroid to get started. I can almost guarantee you that a functional specialist will clinically diagnose you with at least the first two - you've shared enough info that most people on the forum could do it. So try focusing your energy less on absolute diagnoses at this point and refocus on preparing your body to take the next steps towards healing. A few things will likely bring some relief, too.
With your GI in a little less chaos and healing underway, start making some progress for addressing the yeast/fungus.
The other sx you describe (the flesh-colored and red bumps) are also classic signs of yeast/fungal overgrowth and demodex issues (because they sometimes go hand-in-hand). Often, if you get the y/f under control, the demodex becomes less of a problem.
Hopefully you've had your appt by now and can get some Rx antifungals - you will need to start the antifungal process slowly and methodically but eventually work up to optimal antifungal and binder doses in order to hit the y/f hard and fast.
I forgot to actually link to the yeast/fungal information in the previous post - it includes a LOT of information but also explains y/f symptoms and how to treat them. Try to read through this BEFORE your appt so that you'll know what to ask for.
All the sx you're experiencing is exactly what I experienced on my face, chest, arms. That's why I'm certain y/f is one of your challenges.
Y/FO post in the "New to Lyme?" thread:www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275Week 6
Once you have reduced your yeast/fungal overgrowth and have managed the die off pretty well without a lot of additional sx or significant herxing, then it's time to start making progress on the mold.
You probably already have a good start with the mold after being on the MCP binder for a few wks. The following website has a lot more info on mold and can help you identify remaining symptoms and treatments:www.survivingmold.com
Also, I ask if the fungal infection can be caused by mold exposure because I think that's what I may be dealing with here with or instead of lyme.
NO, it is not likely that y/f is CAUSED by mold but there is some relationship, IMO. But also, anything that challenges your immune system and can dominate it will allow other opportunistic pathogens to also get a foothold and cause problems. This is one reason why many of us are dealing with multiple causes of our sx.
Your ND or integrated doc will likely start supporting thyroid and adrenals, explore heavy metals and other things that might pop up in her evaluation.
And once you have made progress with the above issues, you can move forward with Lyme & Co tx... I think you're a good candidate for herbal protocols. No need to go back to abx if you don't want to. You can also try other remedies like RIFE and IR sauna, etc. You'll have time to investigate all this after your brain is working a little better!
Hope this is helpful...