Thank you Alyeska,
I've heard the "rather have cancer" thing from more than one person, too. One time from a woman who has experienced both, and knows what she's talking about
! I think part of it is that there is so much sympathy for cancer out there, and people really don't understand how devastating Lyme can really be.
Yes, small progress has been made. It's so hard to explain to people who haven't been there, but it's like my brain loses the ability to take in the positive aspects of what's going on around me when I'm at a certain point in this illness. Like I'm physically incapable of feeling the good aspects, and my brain forces me to stay stuck on all of the challenges. Maybe some of you understand what I'm talking about
? But it's absolutely exhausting! Add to that the fact that the disease messes up my sleep patterns [waking time for me this morning was 3:30 a.m.
], and I'm amazed sometimes that I'm still standing, never mind running a household and functioning at two jobs. We who are dealing with this stuff are MUCH stronger than people give us credit for. I was raised in a dysfunctional household with a parent who attempted to destroy my self-confidence. But this disease is teaching me that I'm really incredibly strong and deserving of respect and admiration. We all need to remember/realize that about
Probably sick for more than 20 years. Crashed in Aug. of 2013. Completing 12 months of treatment as of Aug. 2014, and feeling much better! Have taken a wide variety of antibiotics, antiparasitics and herbals for blood-diagnosed Babesia, Erlichia and Anaplasma, and suspected Bart and Lyme.
Bitten by two ticks in March of 2016, which seems to have set off a new infection.