PCP Received Igenx Results/ Lyme, Mold Or Both?

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Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 11/3/2017 4:50 PM (GMT -6)   
Feeling so confused and frustrated at the moment.

First off, I'm really fed up with my pcp. I've come to her with some very serious symptoms and last time we spoke, I told her of my Lyme concerns and I told her I ordered an Igenx test and asked if she would sign off on it. She had never heard of it but agreed to sign the forms for it but said she doesn't think it's Lyme based on neg western blot.

I've been waiting for weeks to receive my results. I didn't know they were going to send her a copy and not me. I've already seen an LLMD and he personally doesn't care for Igenx tests. He thinks they are a money making outfit more or less. He makes his clinical diagnosis based on past history and symptoms. I was diagnosed in 2005 originally , clinically by my reg doc at the tine based on symptoms. But they were completely different back then and after a month or two of antibiotics she declared I was "cured."


Anyway my pcp office called me today. Her receptionist, not my actual doc mind you. It seems she can't ever call and talk to her own patients. The receptionist said the doc received my results but didn't know how to interpret them. From what the receptionist told me, it looks like I need a recheck but my doc has never seen or heard of Igenx lab or how to read the results.

This is all driving me crazy because while I do believe I have Lyme or Co, there's also an equal possibility that I'm suffering from mold toxicity. And my new Llmd, seems pretty old school and wouldn't listen to my mold exposure story. I slept feet away from a moldy ac and surrounding insulation for over a year. I know it had to have some effect, esp if I do have Lyme. Which I'm not 100 sure of anymore. I have been treating for 3 weeks now and I want to make sure I'm treating the right thing here! Is it Lyme or Mold? Or both? Every Lyme test I've taken over the years has been negative even though I supposedly had it once before. I just want to know what is making me sick for sure! In my case, it could be one , the other or both and if mold is going to keep me from getting well, I need to know that too and find a doc willing to listen and treat that.

I know the symptoms for both are similar. And since it's Friday, my doc left the office without having anyone call me back with results like I had asked ( must be nice to be able to work then go enjoy your weekend). I've been sick for so long that I can't work and staying at families house which I know still has mold present in some form. Even though I got rid of the ac.

I can't move out either because I can barely function cognitively these last months and about 50 other symptoms. My brain won't work at all among other things.. So if it is mold or it's making me worse, there's no where to go. I would be homeless and all my savings is gone from trying to find out what's wrong with me. All wasted money. And finding a mold literate doc where I live is next to impossible. Hard enough to find an LLMD. And if it's lyme or mold, whatever it is is making me so anxious lately and trying to figure this out is driving me nuts!

So receptionist ended by texting my doc and said she'll call Monday and I can pick up the copy of the test results and I can take then to my Lyme doc, who didn't even order the test to begin with. I did for my own piece of mind. Yeah, right. Why wouldn't Igenx send my results to me? I thought that's how it worked.

Is there an inexpensive test I cAn take to see if mold exposure is involved? I suspect both but none of these docs are listening to me and there's not many choices here at all.

So frustrated and annoyed. All I want is my brain and my life back and to know EXACTLY what's wrong with me already! And I've been on two antibiotics and I think I've been herxing here and there but not positive about that either.

Anyone have any help or advice? I've been barely hanging on and just kept telling myself I'd have solid answers soon but that doesn't seem to be the case!

I know this may all sound a little confusing so feel free to ask any questions. My brain isn't working right sad

Thanks for listening everyone.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 11/3/2017 4:57 PM (GMT -6)   
I was just becoming more confident of the lyme and Bart diagnosis I received too. Now the doubts are back and more confused then ever.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2548
   Posted 11/3/2017 5:50 PM (GMT -6)   
Shoemaker's site lists some blood tests that can indicate mold. For example, msh, vip, vegf, tgf-beta, mmp9, etc. Haveyou done HLA gene test? It can tell if you genetically may have issue with mold. My insurance covered most all of these tests.

www.survivingmold.com/diagnosis/lab-tests

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2548
   Posted 11/3/2017 5:52 PM (GMT -6)   
Also I believe if you call IGeneX they will mail you a copy. But by then you will have results from doc.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 882
   Posted 11/3/2017 5:54 PM (GMT -6)   
free vision test for mold exposure

http://www.survivingmold.com/store1/online-screening-test

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 882
   Posted 11/3/2017 5:55 PM (GMT -6)   
what has worked for me for mold is reduced glutathione capsules, citrus pectin, and now I am experimenting with nebulizing H2O2

also google 'mold + cholestryramine'

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1780
   Posted 11/3/2017 6:13 PM (GMT -6)   
I had the shoemaker tests done, nothing stood out to my llmd.
My basement had water damage that was repaired but nevertheless it was damp for a while. And I am not getting better. I am waiting the results of the urine test that was sent to realtime labs. So far insurance has covered all tests
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast & leaky gut.Restart Buhner for BBB.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2548
   Posted 11/3/2017 6:23 PM (GMT -6)   
Lapis_29 said...
free vision test for mold exposure

http://www.survivingmold.com/store1/online-screening-test


I took this test at home and failed. Took last week at practitioner and passed. My symptoms have not changed. The practitioner did not use test on computer but instead used an eye patch and test was attached to a pole that i held against chin. This made sure I was at the proper distance.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 11/4/2017 8:48 AM (GMT -6)   
I failed VCS test a while ago. ERMI test is not that much but can only compare indoor environment vs outdoor.

I often wonder if its all Mold or if Bart is at play. It is likely both since it took Doxycycline to make my eyes white again even if only temporarily.

Many different treatments were effective for different aspects of the toxicity. Modified Citrus Pectin is recommended for mold poisoning but its only one piece of the puzzle.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT (for now): www.tinyurl.com/CHIARISE
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
"Give me the material that I can to apply critical thinking or blind faith to. I'm all about the possibilities!"
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WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2023
   Posted 11/4/2017 9:34 AM (GMT -6)   
ChickenArise said...
I failed VCS test a while ago. ERMI test is not that much but can only compare indoor environment vs outdoor.

I often wonder if its all Mold or if Bart is at play. It is likely both since it took Doxycycline to make my eyes white again even if only temporarily.

Many different treatments were effective for different aspects of the toxicity. Modified Citrus Pectin is recommended for mold poisoning but its only one piece of the puzzle.


Air sample tests can only compare outside to inside levels of mold. ERMI test is the best test for your indoor environment and well worth the money IMO, especially if you know there has been or currently is a moisture or mold problem.
--------------
Mergirl,

I know you're confused and frustrated. You are where I was a year ago. In all honesty, I believe it's possible to treat all of this on your own without a doctor. All those tests really aren't necessary. There is plenty you can do on your own to deal with the mold, the Lyme, and the coinfections. If I had known a year ago what I know now, I would have done things a lot differently. If you want to know more, just tell me.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 11/4/2017 12:47 PM (GMT -6)   
Thank you everyone. Really appreciate this support during a very confusing, frustrating time. I'm really at a loss right now.


k07,


Thanks for the info and link. But how do I find a doc who will order the blood tests? I know there are no Shoemarker docs in my state. Maybe in the surrounding states but I have no support, can't drive in my current condition and I'm sure if I did find one, there's probably a long wait. Also, I'm on disability. So I currently have medicare. I will be getting a supplement plan to see if that will help me out with some of this stuff but I'm not sure if they would cover any tests like that. Either insurance. So no, I haven't done the HLA test. I cannot find a doc here that knows about both of these things. My new LLMD, the only one around here doesn't seem to want to hear my mold concerns.


WalkingbyFaith,

Thanks to you too. This is frustrating and seems like an impossible one for me. This isn't my house. I live with one very stubborn family member who doesn't want to hear there may be mold in the house either and the reason ( or at least part of the reason. maybe?) That I'm sick. She is not going to have any kind of testing done and I can't afford it. I'm completely wiped out from medical bills these past 6 years I've been here so I currently have nothing saved and no where else at all I can go. I was hoping that the Lyme diagnosis would explain everything but I have close to 50 symptoms. but as more questions come up, more confusion arises.

For instance, I posted on another thread that when I blew my nose the other day, there was a little blood mixed in with the mucous. This has happened before but only occasionally and someone responded that this is a MOLD symptom, not Lyme and Co. Which again, all I have is a clinical diagnosis from the only LLMD around. I was hoping the Igenx test might indicate something either way but so far, it doesn't sound like it's the case. I feel like I have early onset ALZ and I'm only 39, plus so many other symptoms. As I type this the brain fog is horrific. I can list them if it would help anyone help me to further sort this out. Also, I called my new LLMD one day to complain of red, burning eyes. I had just started abx the day or two before but I had gotten this symptom before. This is another one that comes and goes. His response that this wasn't a lyme symptom. My eyes are always red and blood shot lately. Supposedly, I've had Lyme for many years but I never had these problems before. Last year, I was feeling like crap physicaly with severe chronic pain and headaches that was diagnosed as fibro and cfs. Now , a year later the pain is better but I look and feel like I'm dying. Dark circles, can't sleep at allll, eyelashes falling out, burning eyes, ringing ears, blurred vision, heart palps. etc etc etc. My fear is the LLMD is making the diagnosis because I told him I was clinically diagnosed before.But even that was a whole confusing situaton where my pcp diagnosed based on symptoms, treated and then after I improved said, oh , it prob wasn't Lyme. Huh? Back then my symptoms were much more "lyme" like too. Now they are all over the place. Its like my personality, memory, everything is gone. I'm constantly in a haze .

So what can I do to deal with all of this on my own? Esp since I can't move yet. I figured at least if I'm treating lyme now ( if indeed I have it) Then eventually I would feel better, get my mind back again and save up as much as I can to move out and start working again and get my own place, hopefully mold free. How do I know if it's lyme, mold or both? Then there was a question about my Thyroid levels as well. Saw two endos so far and they say it's in range but I know there's a similar problem with their testing and diagnosis standards. I posted on another thread about that as well.

So now, I don't know exactly whats wrong with me or how to help myself. I'm SO Confused. And I don't want to be on ABX and keep destroying my already sensitive gut if this is really mold toxicity and not Lyme..and I don't know if this is from the exposure from the moldy air conditioner that I got rid of in Sep, that I had been sleeping next to for months, or the mold that's probably around the house somewhere or a combo of those things too.

See how confusing this all is?

What can I do? I'm so desperate. I thought my new LLMD would look at all of this but he just zeroed in on my symptoms and my past clinical diagnosis. Never found a rash or tick back then either.

Sorry this is so long and for all the mistakes. I'm feeling pretty desperate at the moment. I know it doesn't sound like it but I actually used to be pretty smart and well spoken. sad Please help if you can. Again, I can list my symptoms if it would help anyone help me sort this out. There are a lot though.

..

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 11/4/2017 12:58 PM (GMT -6)   
Hi Lapis,


Thanks, I did take the online VCS test and did fail. My vision was always perfect up until the last year, Thats when the episodes of blurring, redness, etc started.The results were that it said I did have some kind of mycotoxins or Lyme but it couldn't tell me which. This was even before I saw the LLMD and was still going nuts then trying to figure this all out.

and how would I get a doc to prescribe the cholestryramine. My pcp won't and my llmd won't even listen to my mold exposure concerns. And would that even help if I am still being exposed? I just know nothing for sure here at all. I feel like I'm going to lose my mind soon.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 11/4/2017 1:00 PM (GMT -6)   
Hi Chickenarise,

Thank you. This Modified Citrus Pectin, is it something I can get and take on my own. Even with antibiotics and other supps?

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/18/2018 7:19 AM (GMT -6)   
Hi everyone,

So I'm revisiting this thread as there has been some recent developments and still looking for some answers a couple of months later.

First, as some of you may or may not know, I did end up testing positive for Lyme through Igenx after my original post. Been treating for a little over 3 months now.

However, I still strongly believe now more then ever that something else or a few things have caused my final crash. For 3 months now the brain fog, cognitive problems, etc have been horrific. I did end up getting a worsening of a lot of my symptoms which now a few seem to be improving slightly.

However the feeling out of it, memory loss etc is still present most of the time. Tinnitus, etc.

I'm still believing that due to my past and current possible exposure that mold is a big issue for me. The doc's I'm seeing still aren't listening to this especially my current Llmd. I have no choice but to stick with him right now because of my location and my financial situation which is very very dire. I'm now having problems affording food and supplements.

Still living in relatives house because it's still my only option. Recently, some part of the ceiling plaster fell down revealing water stains on the ceiling. This is the same location of the house where I put one of those home mold testing kits a few months ago and some green and white looking mold grew in it. I never sent it in for testing because then I was diagnosed for sure with lyme and I honestly didn't have the 40 bucks even to spend on it when I needed it for meds, herbs, food, etc.

A roofer was called holes in the roof were found and patched up but the plaster has yet to be fixed and don't know when that will happen. My family member does not understand how this could be potentially making me sicker and honestly can't afford to do much about it right now herself. Her priority was to patch job the roof before we get more snow and rain.

I know I had undiagnosed lyme for many years but something caused things to become much more Neuro the last couple of years. This correlates with the roof issue and finding out I was sleeping next to a moldy a.c. over the summer after getting dizzy, even more spacey, etc which had dark colored mold in it. There were other factors too around the same time like a bad reaction to steroids in which I was never the same after before I found out I had lyme. The doc's I was seeing for answers nearly killed me giving me meds to "help ". I believe now my thyroid is also a problem.

I'm trying to save up to see a naturopath but it's taking me much longer then I've wanted.

So for the last few months, I invested in a hepa air purifier for my bedroom and I try to stay in there as much as possible with it. But this is also the same room where I found the moldy a.c. of course that's gone and cleaned around it as best as I could. There's no visible mold but I know that doesn't mean it's not there.

Got a hepa filter for the kitchen , waiting for that to arrive. Also have an essential oil defuser I'm starting to use in both the bedroom and kitchen. I believe the water damage on the roof is more extensive however.

For mold that s probably in my body, been using modified citrus although some days it's hard to fit in it so it was kind of sporatic, recently though I try to take it once a day and doing activated charcoal at night. I believe some of the mold is in my gut but without a doc's opinion I'm only guessing. Definitely has had an affect on my brain and that's what scares me the most.

I feel very anxious and trapped here. I can't leave without money, nowhere to go, etc. I'm so worried I won't get better living in this house. I need a chance here, I need help and no one around me to help.

I still can't remember things or function and when I take my and the fog gets even worse. My llmd told me it's still early for me and I'll get better but again, he's not listening to the situation with the environment I'm living in. He just says mold is everywhere and that's the end of that.

Please anyone, someone, can you help? Maybe I'm just expecting to recover from all of this too quickly? I'm trying to piece everything together. Just came from a sleep study last night because there's definitely issues there though don't know yet if it's caused by these illnesses.

I tried to see if i felt any difference at the study lab in how I feel but only one night. My brain fog was so severe last night I almost canceled and bad while I was there too. Little better there this morning but that s not unusual for me lately.

Walkingbyfaith, if you are still out there and should see this can you tell me how you got through this? I noticed that you mentioned before that you could give me some advice. I'd appreciate it so much. ( I forgot I had even made this thread. I'm scared)

Please can someone help? I'm trying to stay calm but next to impossible lately.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/18/2018 7:23 AM (GMT -6)   
Btw, as far as taking the mold tests. I only have Medicare now since I'm on disability and couldn't afford to pay out of pocket for my other insurance. Anyone know if Medicare would cover? Thanks.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 1/19/2018 5:37 AM (GMT -6)   
Hi Meregirl,
I would call Medicare and see if mold testing is covered. I would also call your local housing authority to see if they can get you on a housing program since you are on disability and the mold issue where you live now.

It is worth a try.

Try to search this website that might offer some financial help too:

/lymelightfoundation.org/about-lyme/resources-adults-lyme-disease/


I'm glad you have had some improvement and I hope they continue.

Don't give up and remember we are here to talk to.

Take care,Jo

Post Edited (goshawk) : 1/19/2018 3:42:13 AM (GMT-7)


Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/19/2018 8:38 AM (GMT -6)   
having issues due to mold is a very tricky area to figure out.

bringing in a mold testing company is a waste of time i spent over $4,000 for useless information. the tests only tell you levels and type it doesn't tell you whether they are impacting your health or not. the whole industry is one giant scam.

if you were to ever bring someone in it should be an industrial hygenist. these guys have to get advanced degrees in college to properly evaluate whether mold species in your house will affect human health and most work in the commercial/industrial sector which is where the 'professionals' work.

also doing the mycotoxin testing is also spotty in that if you have levels in your body is it because your body is effectively clearing them or are they backing up? another useless $800 i spent.

i find most people who chase down mold issues are in fact wrong and its something else especially when you have lyme and co-infections. candida is a problem also for those treating with antibiotics in that it produces gliotoxins as a byproduct.

if you want to try an inexpensive way to clear potential mold toxins in your body, try the weight loss supplement Alli its over the counter. does same thing as welchol and cholestyramine but cheaper and OTC.

mold toxins hit the intestinal tract and go right back into circulation unless they bind to fat. that's what these drugs do they prevent your body from absorbing some fat and leaves it in liquid form. the mold binds to these fat molecules and you expel it via your stool.

eat some fat cause that's what will bind to the mold toxins.

its worth a try if you're out of ideas it can't hurt you as all it does is prevent some of the fat in what you eat from being absorbed by your body. you do get some orange oily type discharge in your stools cause that's the unprocessed fat but along with that are mold toxins attached to it.

i'd take a pill 2x/day with fatty food for a few weeks and see if it helps. once again can't hurt you as its primarily a weight loss supplement but the mechanism of action helps to clear mold toxins.

note if you have a problem in your house this won't fix that but if you have mold toxins in your body it will help clear them.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2023
   Posted 1/19/2018 8:55 AM (GMT -6)   
Mergirl said...
Btw, as far as taking the mold tests. I only have Medicare now since I'm on disability and couldn't afford to pay out of pocket for my other insurance. Anyone know if Medicare would cover? Thanks.


My mother has Medicare as she is retired and Social Security age. Medicare did pay for her test through Realtime Labs. When we got tested, the only insurance that covered it was Medicare and Tricare.

BTW, I replied to your other post last night.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2023
   Posted 1/19/2018 9:05 AM (GMT -6)   
Alli is a weight loss supplement and does have side effects. I would recommend thoroughly researching it before trying. If you're underweight, it could cause you to lose more weight.

Rikky said: "i find most people who chase down mold issues are in fact wrong and its something else".

While there probably are more than one "something elses" in the picture, I will have to disagree that mold is probably not it. In your case, Mergirl, I think you have ample evidence that it is. Mold is serious business for many and should not be underestimated, especially if you have one of the susceptible HLA-DR genetic haplotypes. Most people have never had the genetic test done, so they assume they don't have it. You're born with your genes, but how and when certain genes are activated depends on environmental exposures (most of which we are unconsciously aware of) combined with the state of the immune system (which we are largely unaware of until it fails and we spiral downward in a state of chronic systemic dysfunction).

Post Edited (WalkingbyFaith) : 1/19/2018 7:26:53 AM (GMT-7)


Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/19/2018 3:08 PM (GMT -6)   
i've met a ton of people with tick borne infections who thought they had mold holding them back and i can think of 1 or 2 where it was actually a problem. anecdotal yes but my point is don't hang your hat on it for too long if you can't get solid near irrefutable evidence its a major thing holding you back.

yes alli can not be good if you're underweight. it also sucks with that yucky orange oily discharge!

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/19/2018 4:29 PM (GMT -6)   
goshawk said...
Hi Meregirl,
I would call Medicare and see if mold testing is covered. I would also call your local housing authority to see if they can get you on a housing program since you are on disability and the mold issue where you live now.

It is worth a try.

Try to search this website that might offer some financial help too:

/lymelightfoundation.org/about-lyme/resources-adults-lyme-disease/


I'm glad you have had some improvement and I hope they continue.

Don't give up and remember we are here to talk to.

Take care,Jo



Thank you, Jo. I'll look into both of these things. I doubt medicare will cover mold testing but like you said, it's worth a try.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/19/2018 4:33 PM (GMT -6)   
WalkingbyFaith said...
Mergirl said...
Btw, as far as taking the mold tests. I only have Medicare now since I'm on disability and couldn't afford to pay out of pocket for my other insurance. Anyone know if Medicare would cover? Thanks.


My mother has Medicare as she is retired and Social Security age. Medicare did pay for her test through Realtime Labs. When we got tested, the only insurance that covered it was Medicare and Tricare.

BTW, I replied to your other post last night.



Thanks Walkingby,


Just responded to your post on my other thread. I made a new one since I didn't think anyone would see this one and then I forgot to check off "notify" I guess.

My new name should be Zombiegirl.

That's good to know that medicare covered the test. In full? IS this a test than that I can order myself?

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/19/2018 4:38 PM (GMT -6)   
Rikky1 said...
having issues due to mold is a very tricky area to figure out.

bringing in a mold testing company is a waste of time i spent over $4,000 for useless information. the tests only tell you levels and type it doesn't tell you whether they are impacting your health or not. the whole industry is one giant scam.

if you were to ever bring someone in it should be an industrial hygenist. these guys have to get advanced degrees in college to properly evaluate whether mold species in your house will affect human health and most work in the commercial/industrial sector which is where the 'professionals' work.

also doing the mycotoxin testing is also spotty in that if you have levels in your body is it because your body is effectively clearing them or are they backing up? another useless $800 i spent.

i find most people who chase down mold issues are in fact wrong and its something else especially when you have lyme and co-infections. candida is a problem also for those treating with antibiotics in that it produces gliotoxins as a byproduct.

if you want to try an inexpensive way to clear potential mold toxins in your body, try the weight loss supplement Alli its over the counter. does same thing as welchol and cholestyramine but cheaper and OTC.

mold toxins hit the intestinal tract and go right back into circulation unless they bind to fat. that's what these drugs do they prevent your body from absorbing some fat and leaves it in liquid form. the mold binds to these fat molecules and you expel it via your stool.

eat some fat cause that's what will bind to the mold toxins.

its worth a try if you're out of ideas it can't hurt you as all it does is prevent some of the fat in what you eat from being absorbed by your body. you do get some orange oily type discharge in your stools cause that's the unprocessed fat but along with that are mold toxins attached to it.

i'd take a pill 2x/day with fatty food for a few weeks and see if it helps. once again can't hurt you as its primarily a weight loss supplement but the mechanism of action helps to clear mold toxins.

note if you have a problem in your house this won't fix that but if you have mold toxins in your body it will help clear them.



Thanks Rikky. I appreciate it.

You mentioned eating Fatty foods? Some suggestions of healthy fat? I need to expand my diet a little. Been essentially eating the same things for the last few months and I'm not eating enough I don't think either.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/19/2018 4:40 PM (GMT -6)   
Rikky1 said...
having issues due to mold is a very tricky area to figure out.

bringing in a mold testing company is a waste of time i spent over $4,000 for useless information. the tests only tell you levels and type it doesn't tell you whether they are impacting your health or not. the whole industry is one giant scam.

if you were to ever bring someone in it should be an industrial hygenist. these guys have to get advanced degrees in college to properly evaluate whether mold species in your house will affect human health and most work in the commercial/industrial sector which is where the 'professionals' work.

also doing the mycotoxin testing is also spotty in that if you have levels in your body is it because your body is effectively clearing them or are they backing up? another useless $800 i spent.

i find most people who chase down mold issues are in fact wrong and its something else especially when you have lyme and co-infections. candida is a problem also for those treating with antibiotics in that it produces gliotoxins as a byproduct.

if you want to try an inexpensive way to clear potential mold toxins in your body, try the weight loss supplement Alli its over the counter. does same thing as welchol and cholestyramine but cheaper and OTC.

mold toxins hit the intestinal tract and go right back into circulation unless they bind to fat. that's what these drugs do they prevent your body from absorbing some fat and leaves it in liquid form. the mold binds to these fat molecules and you expel it via your stool.

eat some fat cause that's what will bind to the mold toxins.

its worth a try if you're out of ideas it can't hurt you as all it does is prevent some of the fat in what you eat from being absorbed by your body. you do get some orange oily type discharge in your stools cause that's the unprocessed fat but along with that are mold toxins attached to it.

i'd take a pill 2x/day with fatty food for a few weeks and see if it helps. once again can't hurt you as its primarily a weight loss supplement but the mechanism of action helps to clear mold toxins.

note if you have a problem in your house this won't fix that but if you have mold toxins in your body it will help clear them.



Also, any suggestions where to purchase alli? I'm going to look into it a little more, or try to anyway. Research is not my strong point lately for sure.

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 205
   Posted 1/19/2018 4:54 PM (GMT -6)   
WalkingbyFaith said...
Alli is a weight loss supplement and does have side effects. I would recommend thoroughly researching it before trying. If you're underweight, it could cause you to lose more weight.

Rikky said: "i find most people who chase down mold issues are in fact wrong and its something else".

While there probably are more than one "something elses" in the picture, I will have to disagree that mold is probably not it. In your case, Mergirl, I think you have ample evidence that it is. Mold is serious business for many and should not be underestimated, especially if you have one of the susceptible HLA-DR genetic haplotypes. Most people have never had the genetic test done, so they assume they don't have it. You're born with your genes, but how and when certain genes are activated depends on environmental exposures (most of which we are unconsciously aware of) combined with the state of the immune system (which we are largely unaware of until it fails and we spiral downward in a state of chronic systemic dysfunction).



Thanks for this Walking by.

I wouldn't say I'm underweight but I lost ALOT of weight earlier this year within months. Another clue something was seriously wrong. I'm still losing though but mainly I think because I'm not eating enough, eating the same things and eating mostly vegetables and nuts.

I'm basically afraid to eat. And I don't know what to eat really. I know to stay away from sugar, gluten, caffiene, alcohol, etc and have been doing that for quite a while. But then I try to eat things like quiona and then read grains can have mold in them. Don't eat fruit because I'm worried about candida. Someone else buys the chicken I eat and since it's not organic, I end up not eating it because I'm scared.

I don't know. I'm so upset and worried lately that most of the time I don't even feel like eating but I know I have to. I don't enjoy food at all like I used to. I don't even crave the things I use to.

I read suggestions all the time on forums like this to eat organic. Well, I do what I can esp with the vegetables but what if you can't afford to eat all organic and the market you have to go to every week because you have to be brought there by family, doesn't have a lot of organic options?

I'm not asking you these things specifically to you, more thinking out loud here. Then, there's also the fact that the water damage is in the kitchen above the stove so I don't even want to go in there unless I have to and I do have to to eat at all. Cooking, that's been a challenge too because I'm so brain fogged all the time that I can't organize things or get creative.

So yea, maybe that weight loss thing may not be for me. Right now I'm average weight for my size and height but this has been the slimmest I have been in years. All of a sudden within 3 months last spring I lost over 50 lbs after my steriod crash. This all leads me to believe my issues are lyme and co, mold and adrenal fatigue and I'm sure heavy metals, etc. I tried to get my doc to help me with adrenal fatigue after I got sick from the prednisone they gave me but she didn't want to hear it. Then when Lyme came up, she didn't want to hear it about that either. She still doesn't trust my Igenex test so now I need a new pcp and no shape to go searching either. Unbelievable.

Anyway, sorry for the ramble. Just don't know what to do about all this. I feel so mentally slow and helpless.
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