Thank You so much for your response! Thanks for answering my question. It makes me feel better that this is how the med works.
That's interesting that you don't have the mold gene, but that you have the Lyme one. Is that why you had the MMP9 tested?
I totally understand why you are treating yourself due to your test results and being positive for MARCoNS.
Thank You for sharing your test results. I'm still trying to learn what these abbreviations all mean. lol!
Like you said, that Lyme creates biotoxin illness and so does mold. It is very confusing on what symptoms are from what illness.
I have also come into contact with mold through my life and who knows how many times I came into contact without knowing it. I guess that I wonder, who hasn't come into contact with any mold?
No, I haven't had a neuroquant MRI done. I have had regular MRI's in the past when I was sick and looking for answers.
I had to look up what a neuroquant MRI was. Lol! I'm still a little confused. Please correct me if I'm wrong, but from what I understand, it compares sections of my brain to normal control brains? I wonder what they considered "normal ". Obviously not my brain! Lol!
This would have been interesting to have done when I was stuttering everyday or when I would loose my ability to talk. I wonder what they would have found. One time I went to the ER when I was unable to talk. They did a CT of my head, and of course said everything looks good. They were also trying to diagnose me with MS at this time. UGH!
If you decide to have this done please keep us updated on your results!
I also hope that you make progress on this med!
Awe! Thank You for the best wishes and getting back to full health! This has been such a long journey. I would have never thought in a million years that it would be so difficult to get better.
Thank You so much!!
Misdiagnosed for 27 years. Below is my first thread.www.healingwell.com/community/default.aspx?f=30&m=3509506
Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms
Lyme Disease is a real MTHFR!!!