Positive for Marcons

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k07
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   Posted 11/7/2017 8:40 AM (GMT -6)   
Anyone else on here? Just saw a local doc and he tested me. I have to start nasal spray. Hopefully treating this will lessen the load on immune system.

10LymeB
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   Posted 11/7/2017 8:43 AM (GMT -6)   
Yes, me too. I did a colloidal nasal spray for a month - didn't get rid of it - but it helped with the vertigo some. My LLMD had me stop the nasal spray for a few weeks and then start again. What kind of nasal spray are you using?
*42 yo - Treatment started Nov. 2016 - Bitten by mosquito in Paris 2013
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Lapis_29
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   Posted 11/7/2017 8:59 AM (GMT -6)   
I used a rife machine to great affect. cleared out asp. niger (black mold), staph aureus (theoretical cause of MARCONS), and aspergillus fumigatus from my throat and nasal passages.

my breathing passages have never been clearer in my life.

astroman
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Date Joined Mar 2014
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   Posted 11/7/2017 9:13 AM (GMT -6)   
k07 - Curious as to what symptoms you experienced that led to whatever MARCONS testing you had?

This has overlapping symptoms with so many other things (what doesn't?) biotoxinjourney.com/marcons/
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

k07
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Date Joined Sep 2015
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   Posted 11/7/2017 9:14 AM (GMT -6)   
10LymeB said...
Yes, me too. I did a colloidal nasal spray for a month - didn't get rid of it - but it helped with the vertigo some. My LLMD had me stop the nasal spray for a few weeks and then start again. What kind of nasal spray are you using?


Not sure, pharmacy is supposed to call (Hills).

I am guessing this is why I felt like I was punched in the nose for months prior to getting sick with neuro symptoms. I also have a sporatic intense itch deep in my nasal passages at night. This also started at the same time. I knew something was going on in there! My breathing is fine though. I don't have a runny or stuffy nose. I do have a very annoying humming tinnitus, some stuff in throat and also lump sensation in throat. We'll see if spray resolves any of this.

k07
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   Posted 11/7/2017 9:22 AM (GMT -6)   
astroman said...
k07 - Curious as to what symptoms you experienced that led to whatever MARCONS testing you had?

This has overlapping symptoms with so many other things (what doesn't?) biotoxinjourney.com/marcons/


I guess the fact that I haven't gotten anywhere with treatment and also the symptoms I mentioned above. I decided to see a local doc here and he felt that there must be a piece of the puzzle we are missing. My LLMD in NY did suspect marcons but never tested me but did do a trial of BEG spray. It caused insomnia so I was hesitant to continue without a positive test. With the positive test I know what I have to do now.

k07
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   Posted 11/7/2017 9:27 AM (GMT -6)   
I should add that I have a lot of facial numbness too. Inside my nose and even my gums feel numb at times.

Lapis_29
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   Posted 11/7/2017 9:29 AM (GMT -6)   
k07 said...
astroman said...
k07 - Curious as to what symptoms you experienced that led to whatever MARCONS testing you had?

This has overlapping symptoms with so many other things (what doesn't?) biotoxinjourney.com/marcons/


I guess the fact that I haven't gotten anywhere with treatment and also the symptoms I mentioned above. I decided to see a local doc here and he felt that there must be a piece of the puzzle we are missing. My LLMD in NY did suspect marcons but never tested me but did do a trial of BEG spray. It caused insomnia so I was hesitant to continue without a positive test. With the positive test I know what I have to do now.


the problem with all of these sprays and whatnot is that they dont get deep into the sinuses or the thoat where staph aureus lives.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1594670/

that study shows where the bacteria live - in the throat mainly.

astroman
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   Posted 11/7/2017 9:31 AM (GMT -6)   
So you lucked out in finding a Dr who can actually suspect/diagnose. I am totally convinced that those Drs are vary rare. Although, I'm generalizing, its from my personal experiences like so many others here.

Per your other answer, you didnt have a runny nose, which is something I'm trying to figure out.
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

k07
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Date Joined Sep 2015
Total Posts : 2502
   Posted 11/7/2017 9:44 AM (GMT -6)   
No runny nose but I think others do. I do clear my throat a lot so maybe it is just super far back in my nose. I know when they did the swab I have a bump that they had to manipulate over so maybe that is holding the junk back. I also have liquid in my ears.

I would check it out if I were you. The test is not fun but they numbed me twice so it wasn't too bad. If you are not numb it burns.

Unfortunately for us it seems we have to waste a lot of money to find the right doc. This is my 5th functional or lyme literate doc. ENT would not test me for Marcons.

k07
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Date Joined Sep 2015
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   Posted 11/7/2017 9:46 AM (GMT -6)   
One other thing is that when I developed the lump in my throat sensation I also noticed I was getting white spots on my tonsils. I was tested for strep and was negative.

Lapis - interesting about the study. I may end up having to get a rife after all.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1682
   Posted 11/7/2017 9:57 AM (GMT -6)   
I was tested for MARCONS a little over a year ago and was negative. However, some months back I started having odd pain in the back of my throat and numbness in the center of my head - up through the roof of my mouth deep into my nasal cavity. I wondered if it could be MARCONS but never got tested again. I also wondered if it could be related to heavy metals. Those symptoms have since faded. The new doc I saw last month was very surprised I tested negative. She said most of her patients have it.

I'm hesitant to get tested again b/c I have mixed feelings about the drugs used for treatment. From my understanding, Ritchie Shoemaker is the main one who started the whole MARCONS bandwagon. From what I read (it's been a while), the MARCONS often come back even after treatment, and it's possible the drugs can cause more issues.

To add to that, Stephen Buhner stated he feels the whole MARCONS issue is overblown.
buhnerhealinglyme.com/co-infections/marcons-staph-bacteria/

When I looked this up not too long ago, I found a very interesting discussion of MARCONS on another forum. Might want to take a look at this, too.
/latitudes.org/forums/topic/24160-marcons-ubiquitous-andor-worth-treating-references/

k07
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Date Joined Sep 2015
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   Posted 11/7/2017 10:11 AM (GMT -6)   
Ugh, imagine that, more controversy! I think I will still treat it just to see if anything happens.

Lapis_29
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Date Joined Sep 2017
Total Posts : 844
   Posted 11/7/2017 10:30 AM (GMT -6)   
k07 said...
Ugh, imagine that, more controversy! I think I will still treat it just to see if anything happens.


how are you going to treat it?

k07
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Date Joined Sep 2015
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   Posted 11/7/2017 11:13 AM (GMT -6)   
I just saw the script for nasal spray. It is bactroban, mucolox, gentamycin, edta. Glad it doesn't have clindamycin.

ShutterGy
Regular Member


Date Joined Nov 2014
Total Posts : 109
   Posted 11/13/2017 11:31 AM (GMT -6)   
I have been dealing with extremely heavy nasal and throat mucous for years. My old LLND diagnosed me with a fungal infection ( Tricothecene) a little over 18 months ago. She prescribed a nasal spray that contained Amphotericin B and Mupiricin. Last August I began vomiting blood on a regular basis (approximately monthly). Long story short, the continued bleeding caused me to have a stroke. The GI team at Mass General concluded that the amphotericin caused pancreatitis which caused the gastric artery to bleed. The bleeding was actually more life threatening than the stroke.

I guess I am saying is to be very careful with these anti-fungals as they can be highly toxic to the liver and pancreas. My new LLMD tested me for MARCoNS, which showed that I am resistent to eight abx. I am now on BEG spray, which is a compounded drug containing Mupericin, Gentamiacin and EDTA. He tests my liver and pancreatic numbers monthly, which have remained normal. And my nasal symptoms have greatly inproved.

I wish you all luck,
Ed

k07
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Date Joined Sep 2015
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   Posted 11/13/2017 12:23 PM (GMT -6)   
I am using the same spray. So far no issues but I'm only on day 4. I was resistant to 4 abx - I wonder if being resistant to more means a trickier infection?

How long have you been on spray? I'm supposed to do it for 6 weeks then retest. I think clearing this can only help my immune system.

Where you tested for any of the other "Shoemaker" labs, like VIP, MSH, TGF-beta, VEGF, ADH, MMP-9, HLA gene, etc? I have 3 or 4 of those that are off. I don't think I necessarily have mold illness but definitely biotoxin illness due to lyme disease.

Mister Mike
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Date Joined May 2016
Total Posts : 272
   Posted 11/13/2017 7:55 PM (GMT -6)   
k07 - I've treated a MARCoNS infection with BEG spray and as of July I am MARCoNS free (trumpets, fanfare!)

Since treating it seems I herx a lot more readily than I used too, which I assume means my immune system is a little stronger.

k07
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Date Joined Sep 2015
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   Posted 11/13/2017 8:24 PM (GMT -6)   
Mister Mike said...
k07 - I've treated a MARCoNS infection with BEG spray and as of July I am MARCoNS free (trumpets, fanfare!)

Since treating it seems I herx a lot more readily than I used too, which I assume means my immune system is a little stronger.


Great news! Have you had any improvements?

I never really noticeably herxed before so fingers crossed!

Little Bear (LB)
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Date Joined Oct 2015
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   Posted 11/14/2017 10:12 PM (GMT -6)   
Hi k07!-

I was tested for mold. I have 1-3-53 mold sensitivity pattern. My MSH is too low and my TGF-beta 1 is too high. My doctor says that these are cardinal symptoms of a damaged immune system and explains my relapsing.

I used Cholestyramine powder for a month. Then I saw my doctor for a nasal swab for MARCoNS.

I had lab work for: HLA Dr by PCR, MSH, VIP, TGF beta1, and Leptin. I had these tests done before I started the Cholestyramine.

Today, I started my nasal spray. My spray has: EDTA Disodium+ Gentamicin + Mupirocin.

I am pretty new to all this mold stuff. I have learned a little, but there is sooo much more to learn. It is like trying to learn another language. Lol!

I hope that this mold thing is the missing piece for my Lyme puzzle.

I hope that you have improvements with your symptoms from the nasal spray.

Question: Is the spray supposed to drain into your throat? I can feel it in my sinuses and when it drains into my throat, it tastes disgusting and burns.

Best Wishes!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

Post Edited (Little Bear (LB)) : 11/15/2017 6:24:53 AM (GMT-7)


1000Daisies
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Date Joined Apr 2016
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   Posted 11/15/2017 3:08 PM (GMT -6)   
ShutterGy said...
I have been dealing with extremely heavy nasal and throat mucous for years. My old LLND diagnosed me with a fungal infection ( Tricothecene) a little over 18 months ago. She prescribed a nasal spray that contained Amphotericin B and Mupiricin. Last August I began vomiting blood on a regular basis (approximately monthly). Long story short, the continued bleeding caused me to have a stroke. The GI team at Mass General concluded that the amphotericin caused pancreatitis which caused the gastric artery to bleed. The bleeding was actually more life threatening than the stroke.

I guess I am saying is to be very careful with these anti-fungals as they can be highly toxic to the liver and pancreas. My new LLMD tested me for MARCoNS, which showed that I am resistent to eight abx. I am now on BEG spray, which is a compounded drug containing Mupericin, Gentamiacin and EDTA. He tests my liver and pancreatic numbers monthly, which have remained normal. And my nasal symptoms have greatly inproved.

I wish you all luck,
Ed


Wow, that's quite the story/experience. Thanks for sharing. Very scary indeed.
I have a supposedly uncommon non-candida yeast strain where diflucan/generic diflucan is not effective for. My regular GP said he won't prescribe the other antifungals for me (like amp B) because they are very harsh medications. He told me to go herbal instead. I appreciate his caution in not prescribing these medicines to me. The side effects do indeed seem extremely concerning.
So sorry you went through all of that.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

k07
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Date Joined Sep 2015
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   Posted 11/15/2017 5:48 PM (GMT -6)   
Little Bear (LB) said...
Hi k07!-

I was tested for mold. I have 1-3-53 mold sensitivity pattern. My MSH is too low and my TGF-beta 1 is too high. My doctor says that these are cardinal symptoms of a damaged immune system and explains my relapsing.

I used Cholestyramine powder for a month. Then I saw my doctor for a nasal swab for MARCoNS.

I had lab work for: HLA Dr by PCR, MSH, VIP, TGF beta1, and Leptin. I had these tests done before I started the Cholestyramine.

Today, I started my nasal spray. My spray has: EDTA Disodium+ Gentamicin + Mupirocin.

I am pretty new to all this mold stuff. I have learned a little, but there is sooo much more to learn. It is like trying to learn another language. Lol!

I hope that this mold thing is the missing piece for my Lyme puzzle.

I hope that you have improvements with your symptoms from the nasal spray.

Question: Is the spray supposed to drain into your throat? I can feel it in my sinuses and when it drains into my throat, it tastes disgusting and burns.

Best Wishes!


Hi Little Bear! I sometimes feel the spray in my throat. I am not sure if I'm always squirting it up there good enough though!

I do not have the mold gene, I have the lyme one. But, some of my Shoemaker tests are off. Mine are as follows if you'd like to compare:
HLA 15-5-61
ADH <.8 (Low)
MMP-9 470 (high according to Shoemaker range)
TGF Beta 4180 (high according to Shoemaker range)
VIP <16.8 (Low)
VEGF 91 (slightly above Shoemaker range)
Positive MARCoNs

My MSH wasn't horrible (a few years ago) at like 40 and I think my leptin was ok too. I did have a slightly high Gliotoxin on realtime labs urine test. However, I know lyme creates biotoxin illness just like mold so I'm wondering if it is all lyme or possible a mix of both. We did/do have water damage at a little cottage that we spend summers at. This summer I found black mold there so it could be playing a part in my illness. Did you have neuroquant MRI done? I hope to have it done. It sounds like VIP at the last stage of Shoemaker protocol can really help reset the HPA axis. I'm hopeful that it will get me over the hump!

Best wishes to you and I hope this will get you back to full health! Please keep me updated on how you do!

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 272
   Posted 11/15/2017 8:04 PM (GMT -6)   
Hey LB! Yes, the spray will drain into your throat and yes it'll burn too. Also, don't be surprised if your nose bleeds. All of the above are normal and actually means it is likely working!

K07 - Haven't seen any significant improvements that I can attribute to MARCoNS going buh-bye, but I do feel I have more energy and "more like myself" in general.

Little Bear (LB)
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Date Joined Oct 2015
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   Posted 11/15/2017 9:48 PM (GMT -6)   
Hi k07!-

Thank You so much for your response! Thanks for answering my question. It makes me feel better that this is how the med works.

That's interesting that you don't have the mold gene, but that you have the Lyme one. Is that why you had the MMP9 tested?

I totally understand why you are treating yourself due to your test results and being positive for MARCoNS.

Thank You for sharing your test results. I'm still trying to learn what these abbreviations all mean. lol!

Like you said, that Lyme creates biotoxin illness and so does mold. It is very confusing on what symptoms are from what illness.

I have also come into contact with mold through my life and who knows how many times I came into contact without knowing it. I guess that I wonder, who hasn't come into contact with any mold?

No, I haven't had a neuroquant MRI done. I have had regular MRI's in the past when I was sick and looking for answers.

I had to look up what a neuroquant MRI was. Lol! I'm still a little confused. Please correct me if I'm wrong, but from what I understand, it compares sections of my brain to normal control brains? I wonder what they considered "normal ". Obviously not my brain! Lol!

This would have been interesting to have done when I was stuttering everyday or when I would loose my ability to talk. I wonder what they would have found. One time I went to the ER when I was unable to talk. They did a CT of my head, and of course said everything looks good. They were also trying to diagnose me with MS at this time. UGH!

If you decide to have this done please keep us updated on your results!

I also hope that you make progress on this med!

Awe! Thank You for the best wishes and getting back to full health! This has been such a long journey. I would have never thought in a million years that it would be so difficult to get better.

Thank You so much!!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 626
   Posted 11/15/2017 9:56 PM (GMT -6)   
Mister Mike said...
Hey LB! Yes, the spray will drain into your throat and yes it'll burn too. Also, don't be surprised if your nose bleeds. All of the above are normal and actually means it is likely working!

K07 - Haven't seen any significant improvements that I can attribute to MARCoNS going buh-bye, but I do feel I have more energy and "more like myself" in general.


Hi Mister Mike!-

Thank You for your response!

Oh, nose bleeds also! This just keeps getting more exciting!

Thank you for taking the time to answer my question also. It does help to know that other people have/had same symptoms while using the spray.

Thank You!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!
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