Loss of sense of smell - anosmia

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clunkytrain
New Member


Date Joined Aug 2017
Total Posts : 17
   Posted 11/10/2017 3:38 AM (GMT -7)   
Since I contracted lyme in '09 my sense of smell has deteriorated to about 20% functioning. Is this something that anyone else here has experienced and if so did it get better with treatment?

I take zinc every day so I know it's not a zinc deficiency.

It started before I started taking the buhner herbs (which I know can cause this symptom) so I know it's not those.

The fact that it's sometimes linked with dementia scares me a little but I figure at my age (29) and with all my other lyme symptoms it's likely to just be something else caused by these nasty infections right?

I asked my GP about it but with all my other weird symptoms he just shrugged it off sad

As always any info you all can provide would be greatly appreciated! Thanks!

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 78
   Posted 11/10/2017 6:04 AM (GMT -7)   
I can't speak to the Lyme affecting my sense of smell BUT I can speak to anosmia. I lost my sense of smell back 20 years ago. It is crazy to think that I have no clue what my husband, kids or dogs smell like - perhaps that is a good thing ;)

The oddest thing is however if someone uses an essential oil I can sometimes get a faint scent for a quick bit. I know this doesn't solve your problem but you should try testing some essential oils with your sniffer and see if you can experience smell more intensely. I know those brief seconds of detecting the sense of something makes me extremely happy smile

Have a wonderful day.

Peppermint Tea

clunkytrain
New Member


Date Joined Aug 2017
Total Posts : 17
   Posted 11/10/2017 7:28 AM (GMT -7)   
Thanks! I still get really strong smells too like perfume and stuff. If you google this symptom it makes it sound like you're going to lose your mind within a couple of years so it's good to know that's not the case for everyone!
Bitten in '09. Progressive worsening fatigue, cognitive dysfunction, IBS, MS-like symptoms, depression, anxiety, derealization, joint/muscle/bone pain, headaches, heart issues, POTS

Diagosed w/ lyme and coinfections (bart and babs) in March '17.

Started Buhner's protocol June '17. Currently taking:

Japanese Knotweed, Cat's Claw, Andrographis, Cryptolepis, Sida Acuta, Houttuynia, Red Root

gabybee
Regular Member


Date Joined Nov 2015
Total Posts : 155
   Posted 11/10/2017 7:36 AM (GMT -7)   
I have lost my sense of smell also, treating Candida has helped me regain some of it, and I suspect the rest will come when I've treated lyme successfully. I'm also hard of hearing
22 years old, symptoms started in 2013 and was diagnosed in 2015
HHV6/EBV
Lyme
Bartonella
MTHFR
ecoli+klebsiella
Candida

Treating with multiple vitamins + Supplements, Byron white formulas, and bee venom therapy.

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 78
   Posted 11/10/2017 9:36 AM (GMT -7)   
Clunkytrain - my husband might disagree with me and say I have already lost my mind but hey. ;)

Yes. I have read a ton on anosmia and have read the same. With Alzheimers in my family tree, that worry is in the back of my head.

I thought my anosmia was brought on by nasal polyps. So, a few years ago, I had them removed. They said the outcome of a return of smell was 50/50. Unfortunately, it didn't work. But hey, at least I can see, hear, walk, think, .....

Sorry you are fighting the same Lyme & anosmia battle as me. Hang in there. We got this.

Warmly -

PeppermintTeasmile

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 79
   Posted 11/10/2017 1:11 PM (GMT -7)   
So weird I have lost my sense of smell amost completely also. I always worry I stink and can't smell it. Or I worry I will be in a natural gas leak and not smell it. I never considered it being related to infections, but maybe that is the case.

I did have a couple days ago where I could smell. I could smell my shampoo and could smell the air outside. It was shocking as most days for the last couple years I have been unable to smell anything.

It was super sad to me that I couldn't smell the ocean air when we got to Florida last year. I remember loving that smell.

I am glad to hear I am not the only one.

RUSS504
Regular Member


Date Joined Dec 2015
Total Posts : 35
   Posted 11/10/2017 1:20 PM (GMT -7)   
I lost my sense of taste and smell and also had phantom smells. This was before I knew I had Lyme. I went to a doctor in Washington DC for 3 treatments and he cured me. This has been 3 years ago and I can still smell and taste. The straw that broke the camels back so to speak was when my water in the shower or rain water would make me vomit! Also the sense that you smell smoke and think your house is on fire every night was enough for me!! You can email me if you want the doctor's address. I will warn you it is very expensive, but I'm still glad I did it. And, of course their is no guarantee that it will work.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 79
   Posted 11/10/2017 1:41 PM (GMT -7)   
I used to get some of those phantom smells of smoke specifically too. Now I smell literally almost nothing.

I am currently working with dr C and have done pretty well so far. Are you from the kc area too?

clunkytrain
New Member


Date Joined Aug 2017
Total Posts : 17
   Posted 11/11/2017 12:42 AM (GMT -7)   
Gabybee - I have lost a little of my hearing also. I will try some candida treatment to see if that helps things. Thanks!
Bitten in '09. Progressive worsening fatigue, cognitive dysfunction, IBS, MS-like symptoms, depression, anxiety, derealization, joint/muscle/bone pain, headaches, heart issues, POTS

Diagosed w/ lyme and coinfections (bart and babs) in March '17.

Started Buhner's protocol June '17. Currently taking:

Japanese Knotweed, Cat's Claw, Andrographis, Cryptolepis, Sida Acuta, Houttuynia, Red Root
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