Hi Mandy -
Welcome to the forum - sorry you're here but glad you found us.
It sounds like your previous treatment was inadequate, which is pretty common.
Please review the "New to Lyme?" thread info at the top of the page - it has invaluable information about
diagnosis, symptoms, treatment, etc. and will help you prepare for your first appointment.www.healingwell.com/community/default.aspx?f=30&m=1606610
We can try to help you find an LLMD. Please email Girlie
, our head mod, and she can help you with contact info for LLMDs in your area to consider. You can find her email address in her profile. Or click here:www.healingwell.com/community/profile.aspx?f=30&p=197951
I'm also a mod but not around as consistently but will help however I can.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You can email the Tick-Borne Disease Alliance at: firstname.lastname@example.org
ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme--they adhere dogmatically to the IDSA and very narrow definition of Lyme and limited treatment. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
Please don't hesitate to ask any questions that come up!
LYME FORUM MODERATOR
Chronic late-stage lyme—likely infected in '98; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses, GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many supps; cholestyramine