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Facey
Regular Member


Date Joined Nov 2017
Total Posts : 20
   Posted 11/13/2017 9:45 AM (GMT -7)   
Depression and anxiety seem to loom large in my symptom list. I often find myself on the verge of tears. Being on leave from work, I'm often alone and I feel so isolated. Anyone have this with Lyme? Any suggestions? ❤️

AnnaKatherine
New Member


Date Joined Jun 2017
Total Posts : 11
   Posted 11/13/2017 10:16 AM (GMT -7)   
I dealt with this a lot when my lyme was at it's worse before I started treatment. I think the biggest thing I did that helped was getting really absorbed in other things. I started writing a novel, read a lot (when my vision wasn't blurry), and I listened a ton of lectures online. All these things I got very invested in and they took me away from the fact that I was on the sofa for months. Some people work on art or do puzzles or watch documentaries.
Also if at all possible, I had some good luck with skyping with friends after they got off work. It didn't require the physical energy, so I got some social time in.
Make sure your also getting outside a little, even now that it's getting colder. It helps more than you'd think.

Hang in there. Sending my love and prayers.

Facey
Regular Member


Date Joined Nov 2017
Total Posts : 20
   Posted 11/13/2017 10:22 AM (GMT -7)   
Thank you Anna Katherine. I've been trying many of those things and they do help. I'm actually an artist but the weakness in my grip has hindered my drawing. But I should still try. I may be getting a pic line put in and that may help me with these neuro symptoms.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27285
   Posted 11/13/2017 12:29 PM (GMT -7)   
Facey - I cried pretty much daily for many months - maybe even a year.

I still am on the verge of tears many days... although I have a good support system, I still feel 'alone' if that makes sense.

I haven't worked for over 4 years now...the financial strain is weighing on me as well. And the thoughts of this disease being with me for another year....is devastating.

But, we gotta get out of bed each day...and continue to fight this. We'll get there...


Hang in there. I hope the IV abx help with your neurolyme.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Facey
Regular Member


Date Joined Nov 2017
Total Posts : 20
   Posted 11/13/2017 1:48 PM (GMT -7)   
I'm so sorry girlie. It's too bad we didn't live n ear one another and could hang out. Most of my friends work and the others think, "oh Lyme, you take the antibiotics for three weeks and done. What's the big deal?" They don't get it and think I'm just being a baby. I get so discouraged and lonely sometimes.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27285
   Posted 11/13/2017 2:10 PM (GMT -7)   
Facey said...
I'm so sorry girlie. It's too bad we didn't live n ear one another and could hang out. Most of my friends work and the others think, "oh Lyme, you take the antibiotics for three weeks and done. What's the big deal?" They don't get it and think I'm just being a baby. I get so discouraged and lonely sometimes.


Yes- it's hard to describe what we're going through. I don't even bother anymore - unless someone asks. But then I usually give them the "short version".
I am fortunate that I have a couple friends that understand and have empathy but no one can really "get" what we're going through. It's indescribable really.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 72
   Posted 11/13/2017 5:38 PM (GMT -7)   
Facey,


Just wanted to chime in here and say I totally understand. I've been struggling too a lot. I find lately that I feel like I'm so numb and maybe in shock at what my life has turned into, what I've turned into, that I can't even cry anymore the way I used to. It's so hard to explain but I feel so out of it.

I feel completely isolated too. I pretty much am so I know where you're coming from there too. Most of my friends gave up long ago. They don't even know about my new diagnosis. Just that I have been unable to work or hang out because of horrible pain. Now it's in my brain and heart.

You're not alone though. There are others feeling and going through the same thing. Right there with you.

Sending big, healing hugs Xx

Facey
Regular Member


Date Joined Nov 2017
Total Posts : 20
   Posted 11/13/2017 6:10 PM (GMT -7)   
Thanks Mer girl I'm so sorry. Are you still in treatment? I hope you have something to give you hope. Sending big healing hugs right back to you. ❤️X

Mergirl
Regular Member


Date Joined Oct 2017
Total Posts : 72
   Posted 11/14/2017 1:56 PM (GMT -7)   
Thanks smile

Yeah, I actually just started treatment almost 5 weeks ago now. So just the beginning for me in that respect.

I try to find some hope everyday to hang onto. I wish the very same for you too.

KB69
Regular Member


Date Joined Jan 2017
Total Posts : 176
   Posted 11/14/2017 2:39 PM (GMT -7)   
Facey, I just wanted to add to the chorus of voices who have recommended various distractions. I try to get out when I can. I find even engaging with the clerk at CVS connects me to another human being and that's a good thing.

I used to be a prolific reader, but my eyes have been bothering me and sometimes I can't concentrate. If I can't read, I'll indulge in a Netflix series. I've watched more TV this year than in my entire life. There's other things I wish I could be doing, but at times that helps.

And, if you're capable of a brief walk, the fresh air can provide a boost.

I understand how depression and anxiety can further isolate you beyond the physical symptoms. I am trying to hold onto my job and work from home on the days I cannot make it into the office. Yesterday, I left my desk and sat in my car for a bit and cried. My depression and anxiety came on after I treated Babesia. Losing symptoms and gaining others just doesn't feel like progress.

But, I'm trying to stay hopeful. I hope you will, too! Hang in there! Sending you lots of positive energy and healing thoughts.
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