Lawsuit filed against IDSA and insurers over Lyme

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Dahlias
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Date Joined Jun 2017
Total Posts : 464
   Posted 11/14/2017 8:18 PM (GMT -6)   
Saw this posted by NatCapLyme:



/tinyurl.com/y6ulldok

Post Edited By Moderator (Girlie) : 11/27/2017 9:38:39 AM (GMT-7)


B99
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Date Joined Sep 2016
Total Posts : 94
   Posted 11/15/2017 1:59 PM (GMT -6)   
This is fantastic news! If the lawyers are going ahead with the lawsuit, it means they have proof of collusion between the insurance companies and the so called doctors at the IDSA. Even if the case stumbles in the courts, the vermin behind all this are going to have some bright lights shining on them.

I hope our Lyme groups can organize and synchronize events, or petitions, or something with this case so it gets out loud and clear in the press!
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 11/15/2017 10:37 PM (GMT -6)   
If anyone has read the (.pdf) book written by Kenneth Liegnar who is an LLMD - the claims in this case were identified YEARS ago. I can't believe it's taken this long to go after these guys.

This is a different suit than that which was filed by Frmr CT Senator Blumenthal, which failed simply because they did not have a more scientific basis for the claims. As a result of that settlement, IDSA agreed to form a panel to review their guidelines and low-and-behold, decided it was fine and there was no need to amend it. This is almost laughable if it wasn't destroying so many lives.

Then the IDSA guidelines were removed from the National Guidelines Clearinghouse for noncompliance issues, which basically is the index for all medical treatment info. ILADS was then included and are currently the only Lyme guidelines in the database.

Among the allegations:

" In the 1990s, the Insurance Defendants decided that treatment of Lyme disease was too expensive and “red-flagged” Lyme disease. The health insurance industry made a concerted effort to deny coverage for treatment of Lyme disease. The Insurance Defendants enlisted the help of doctors who were researching, not treating, Lyme disease. The Insurance Defendants paid these IDSA Panelists large fees and together they developed arbitrary guidelines for testing Lyme disease.

Once these arbitrary guidelines were decided, the Insurance Defendants could, and did, deny coverage for patients if they did not meet their new stringent Lyme testing protocols. Since most Lyme patients would not test positive under the new protocols, the Insurance Defendants could deny coverage for many people suffering from Lyme disease.

Additionally, the Insurance Defendants, with the help of the paid IDSA Panelists, decided that long term antibiotic treatment was not necessary and all Lyme disease patients could be cured in less than a month. By August of 1992, the Insurance Defendants had imposed an intravenous antibiotic limit of twenty-eight days.

By the mid 1990’s, the Insurance Defendants began paying large consulting fees to the same Lyme IDSA Panelists who helped them develop their arbitrary guidelines. The Insurance Case 5:17-cv-00190-RWS Document 1 Filed 11/10/17 Page 10 of 53 PageID #: 10 11 Defendants paid these Lyme IDSA Panelists to enforce their new stringent testing protocols and maintain the 28-day treatment requirement. These doctors began publishing papers on the “Lyme hysteria” and the “Pseudo Lyme” problem. "

The lawsuit names a number of medical doctors, all representatives of the Infectious Diseases Society of America. Among them are:

" Dr. Gary P. Wormser, Dr. Raymond J. Dattwyler, Dr. Eugene Shapiro, Dr. John J. Halperin, Dr. Robert B. Nadelman, Dr. Leonard Sigal, and many others were paid large sums of money by the Insurance Defendants in consulting fees, in expert witness fees, and to review, and deny, insurance coverage claims related to Lyme disease. "

This new lawsuit is not the first antitrust suit filed against the Infectious Diseases Society of America. In 2006, the Office of the Connecticut Attorney General filed an antitrust investigation to determine whether conflicts of interest may have affected the development of the IDSA’s clinical practice guidelines for Lyme disease. Findings of that investigation determined in 2008 that:

" “significant procedural deficiencies related to the IDSA’s development of its 2006 Guidelines” and found that the panel and the IDSA failed to ensure that the guideline development comported with due process, as required by antitrust law when persons (or their association) involved in standard setting have an economic interest in the outcome. In particular, the AG said the panel “improperly ignored or minimized consideration of alternative medical opinion and evidence regarding chronic Lyme disease, potentially raising serious questions about whether the recommendations reflected all relevant science.” "

-p

Post Edited (Pirouette) : 11/15/2017 9:41:36 PM (GMT-7)


B99
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Date Joined Sep 2016
Total Posts : 94
   Posted 11/16/2017 8:40 AM (GMT -6)   
I wonder how long it will take for the lawsuit to move through the courts. It's going to be tough. However, Lyme disease isn't the unknown it was -- everyone I speak with knows someone who has gotten sick from it. And it's been in the news quite a bit.

The insurers and IDSD are going to be scared and scrambling, pulling strings, doing whatever they can to hide their collusion. It won't be pretty.

But there is hope for truth, finally.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1228
   Posted 11/26/2017 10:27 AM (GMT -6)   
Sorry if I missed it, but does anyone know what evidence we have of these claims? I'm not denying it. Sounds plausible to me. Just wondering how strong our argument is going to be in court

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 11/26/2017 3:21 PM (GMT -6)   
Psilociraptor -

As I noted, Kenneth Liegnar, LLMD in NY wrote about these corruptive activities and insurance industry associations that were evident to him and others in the field in the 80s-90s (I forget when). When I get home I'll post a link to his .pdf book. Along with Pamela Weintraub's "Cure Unknown", they both are excellent resources for the history of the Lyme science.

Subsequently, (likely as a precursor to the Under our Skin documentary she helped produce), Poughkeepsie journalist Kris Newby obtained 3000 pages of additional documentation via FOIA disclosures, although it took the CDC 5 years to comply (the expected turnaround is a few months), and the result was 1200 pages of redacted emails and memos between CDC, NIH, IDSA, ALDF and others. Redacted? Why would information regarding LYME need redacting? The CDC communicated that info was redacted for reasons of "national security". Same ol' tune.

What wasn't redacted was enough to expose the crimes in both of these lawsuits. Can you imagine what was redacted (info regarding the bioengineered bioweapon components of Lyme, no doubt but probably other information regarding the failures of the vaccines, the methodology to continue artificial suppression of reported cases, information on Lyme specialists, etc...)

In one of the emails, this gem was found, the origin of the "Lyme loonies" pejorative term that has been used by at least one officer at the National Institutes of Health. It was a throwaway line in an email, as the nation’s head of research funding for Lyme disease neared retirement from the National Institutes of Health.

“I will certainly miss all of you people – the scientists,” Phillip Baker, the Lyme program officer, wrote a colleague in 2007 at the U.S. Centers for Disease Control and Prevention, “but not,” he said, “the Lyme loonies.”

Baker’s appraisal summed up in two words what physicians and scientists AND LYME SUFFERERS who challenge official policies on Lyme disease are up against.

This current racketeering lawsuit is a different anti-trust suit than that which was filed by Frmr CT Senator Blumenthal (which failed simply because they did not have a more scientific basis for the claims, which I think was by design - something strange about it). It also disclosed the multiple financial conflicts of interest between the Lyme cabal and the insurance industry as well as collusion and preferential treatment by the CDC and NIH for Lyme-cabal associations involving the development of the IDSA, IDSA Lyme diagnosis and treatment guidelines, review panels and committees and protocols for Lyme education.

The documentation of these crimes has been known for decades.

The reason these suits keep failing is from sabotage and poor construction of the facts. Only time will tell if this time, things get done. But if the suit IS won, I'm not sure things will change all that much. The corruption is baked in. But it's certainly a start to 40-yr long crisis.

-p

Post Edited (Pirouette) : 11/26/2017 4:09:23 PM (GMT-7)


Psilociraptor
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Date Joined Jul 2016
Total Posts : 1228
   Posted 11/26/2017 4:27 PM (GMT -6)   
Thanks for the elaboration Pirouette. It's really amazing how much you know about Lyme politics. I would buy your book in a heart beat ;) That said Baker is an A S S. Always knew it. One of the funniest things I saw was him getting shut down by a bunch of other scientists on an open peer review article of sexually transmitted Lyme.

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 11/26/2017 5:11 PM (GMT -6)   
Ha! Thank you - I wish I had knowledge for a book. I'm just regurgitating the hard investigative work of many other people.

I did NOT see that article w/ Baker! Please post it if you have it handy... very intriguing. He's a mess. The very harsh reality is that (the entire system corruption aside) some day, these criminals will die. How many millions will suffer before then? And

-p
LYME FORUM MODERATOR

Chronic late-stage lyme—likely infected in '98; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses, GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many supps; cholestyramine

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1228
   Posted 11/27/2017 8:52 AM (GMT -6)   
Well... I'm not saying that this study is top quality or not. There are some interesting rebuttals, but also some support. But more importantly is Baker being an a**hat in the comments of version one at the bottom https://f1000research.com/articles/3-309/v3 I love how this random guy Sin Hang Lee calmly disposes Bakers nonsense into a scientific trash bin that had already been emptied 100 years ago. Shows how much of a dinosaur Baker is. And Vett Lloyd's comment was just... beautiful. Reading that you can tell the difference between a scientist and a white coat politician in an instant. One touches into the heart of things and sees possibilities. The other instigates a culture of denialism and scientific conservativism.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 11/27/2017 10:44 AM (GMT -6)   
Dahlias and tickbite666 - I edited your posts only to change the links to tinyurl's because the long URLs were making the posts wonky.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
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Date Joined Mar 2014
Total Posts : 1604
   Posted 11/27/2017 12:11 PM (GMT -6)   
thanks

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 11/27/2017 3:46 PM (GMT -6)   
"...calmly disposes Bakers nonsense into a scientific trash bin that had already been emptied 100 years ago."

Now, THAT is some poetry.

Thx - I'll look at that site.

-p
LYME FORUM MODERATOR

Chronic late-stage lyme—likely infected in '98; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses, GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many supps; cholestyramine

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 11/27/2017 7:22 PM (GMT -6)   
Here is a little more information on the groups' activities ... And apparently the entire 2 days will be live streamed. The agenda isn't up yet but should be soon.

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html


Meetings

The Tick-Borne Disease Working Group meets at least two times a year. Meetings are typically two days in length. All meetings are open to the public and records of the proceedings will be kept as required by the Federal Advisory Committee Act. Notification of all meetings will be announced in the Federal Register.

Upcoming Meetings

December 11, 2017 - December 12, 2017

Meetings 1 and 2 of the Tick-Borne Disease Working Group (federal advisory committee) will be held in the Great Hall of the Hubert H. Humphrey Building, 200 Independence Avenue, SW, Washington, DC, 20201.

Meeting 1: December 11, 2017, at 12:30 p.m. to 4:30 p.m.
Meeting 2: December 12, 2017, at 09:00 a.m. to 4:30 p.m.

An agenda will be posted on this site prior to the meetings. Members of the public may attend the meeting in person or via webcast.

https://www.hhs.gov/live/index.html
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 11/27/2017 7:26 PM (GMT -6)   
Thanks tickbite,

I just signed and shared on FB.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 11/28/2017 4:56 PM (GMT -6)   
Excellent posts - TY!

-p
LYME FORUM MODERATOR

Chronic late-stage lyme—likely infected in '98; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses, GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many supps; cholestyramine

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 12/1/2017 11:39 AM (GMT -6)   
I have the date bookmarked on my calendar, so I'll try to remember to post here.

I want to watch this, maybe I'll have it on in the background while working. Not sure what to expect. I just hope I don't end up more upset than I already am.

Horowitz and Wormser, like matter and antimatter.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 12/10/2017 11:26 AM (GMT -6)   
A reminder The Tick Borne Diseases Working Group is meeting tomorrow. There will be a webcast for those who wish to follow. If anyone does, please post a recap. I think I can catch some of it.

I looked at the bios of the members involved and didn't see Wormser on the list. Was he uninvited??

Meeting 1: December 11, 2017, at 12:30 p.m. to 4:30 p.m. Eastern
Meeting 2: December 12, 2017, at 09:00 a.m. to 4:30 p.m.

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html

bios: https://www.hhs.gov/ash/advisory-committees/tickbornedisease/members/index.html

webcast: https://www.hhs.gov/live/index.html

Unfortunately the public comment period passed on the 6th, so maybe next time around.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 956
   Posted 1/20/2018 11:02 PM (GMT -6)   
Has anyone heard any updates on this lawsuit?

Looks like they posted some videos on youtube:
https://www.youtube.com/watch?v=WAeyjdc39Yo

Post Edited (gfields) : 1/20/2018 10:22:51 PM (GMT-7)


gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 1/20/2018 11:53 PM (GMT -6)   
https://www.youtube.com/watch?v=PPS3UkAhyhM

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 1/21/2018 12:25 PM (GMT -6)   
That first video brought tears to my eyes. She says it all, and so well. What she experienced is very much what my daughter went through. And so many others.

Thanks for posting this. I shared it on FB.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 1/21/2018 12:41 PM (GMT -6)   
I can't find any updates on the lawsuit, but here is their FB page: https://www.facebook.com/REAvsCDC/
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.

B99
Regular Member


Date Joined Sep 2016
Total Posts : 94
   Posted 1/21/2018 12:56 PM (GMT -6)   
Apparently Gary Wormser has been replaced my another doctor.

"The U.S. Department of Health and Human Services (HHS) has announced the appointment of Robert Smith, MD, MPH, to the Tick-Borne Disease Working Group."

Here is a quote from him: “Some symptoms may linger after treatment, but a relapse of the infection striking again is quite rare,” Smith said."

https://www.pressherald.com/2014/08/20/with-lyme-cases-growing-public-health-experts-call-for-more-awareness-research/

Ugh.
College age daughter with chronic Lyme who has was diagnosed two years ago with Lyme, Babesia, Bartonella. We think she was infected two years prior. Her symptoms are mainly neurological. Using antibiotic and herbal protocols.
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