I'm new to this forum and found my way here via a simple Google search on one of my symptoms.
I have the same ALS like symptoms are dacarte3 described below and it's really worrying me, since it’s progressing into worse in a rapid pace. My muscles and tissue/fat have completely wasted away in just a couple of months and feel very loose/soft/mushy. This not only applies to my arms and legs, but also in areas like my face, neck, hand and even my ding-a-ling.... Worst of all is the pain in my back and the rear of my head when lying down flat on my back, probably caused by the reduced supportive muscle and tissue in those areas. Also, my skin is thinning all over my body and has become stretchy in an abnormal way. The thinning is also visible in my mucous membranes and gums.
The most problematic thing is that I don't know what's causing all of my complaints including the ALS like symptoms. I first started to feel sick in January during a dinner at a local restaurant. Initial complaints were related to my GI tract, but three months later spread to other areas. In April I started to develop very odd symptoms like a sore throat, sleeplessness, skin rash/dry skin, hair loss (my lashes have all fallen out by now), joint pain, cracking/clicking joints, receding gums, red eyes, peeling lips, burning pain sensations all over, fungus nails and so on. In the first three months I had abnormal weight loss of 14 kg, but didn't have the muscle and skin issues. This has started since August.
Since this all began I have been to a number of different hospitals and have done a lot of examinations. The doctors all tell me something differently and have not been able to make a comprehensive diagnosis. So far I've had the following diagnosed conditions:
*too much fat in stool, cause not known
*compression of the left renal vein
*disturbed persistalis in duodenum
*compression of the celiac plexus
*human borna disease
I have been tested for Lyme once, but it turned out negative. However, I think that a lot of my symptoms resemble that of Lyme patients and I might need to repeat the test. However, in the meanwhile I looking into starting the same protocol as you guys for relieving the muscle / skin issues. Do you mind if I keep posting and share the result of my progress here? Also, which place would you recommend for testing Lyme?
Muscle mass/tone/health - a lot of lymies with ALS like symptoms experience not just wasting but "flaccid" muscles or "mushy" muscles. The muscle is still there but flaccid and mushy.
I'm seeing noticeable improvement in this area. The forearm, a trouble spot for me is "filling" back out. The muscle tone isn't any bigger but my arm is filling out (literally).
For those that can relate, flaccid muscles and wasting in certain body parts become troubling "hollow" (literally, like the muscle and mass disappears and just leaves skin, blood, ligaments and maybe some fat), this was an issue with my fore arms especially.
It's filling in to the point I can notice a difference and when I flex the muscle is not flaccid. There's firmness and a elasticity to the firmness when pinching and poking this area, where before it was flaccid and "hollowed out".
Not to overstate this slight improvement (and possibly get ahead of myself), but the improvement is enough to actually notice and pay attention too.
It makes sense that if this protocol is healing the nerves and thus the ALS like symptoms that it would be very gradual, where existing muscles will get healthier first.
It will be terrific if additional muscle mass is actually created however this may require actual exercise to achieve.
If the flaccid/hollow issue continues to improve this may be a good sign that I can maybe, very slowly, re-introduce exercise.
Lapis my friend, if this continues and your beautiful mind actually found an effective remedy to lyme-ALS, you need to private message me so I can send you a gift. HA!