Opinion on Test Results

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Mark FW
New Member


Date Joined Dec 2017
Total Posts : 12
   Posted 12/6/2017 4:43 PM (GMT -7)   
New poster with going 5 months symptoms. Dead ends everywhere with Specialist.

I did talk one NP into getting me tested for Lyme and she came back saying test was inconclusive. That was 2 months ago and although original symptoms are not as severe they are coming back each week.

Hoping to see a LLMD soon and decided to get a copy of my lab results.

Looks like a WB IGG came back with 2 bands 93 & 41

WB IGM came back with none

ABS total came 1.11 (Which recommends repeat testing 10 -14 days , which I never had since I did not see this prior)

Symptoms started 3 month prior to this test.

Does this tell me anything conclusive?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27971
   Posted 12/6/2017 5:19 PM (GMT -7)   
I see you posted previously looking for a LLMD. You did find one?


Band 93 is specific to Lyme disease. If your history/symptoms point to lyme, then this test can be used as a back-up to a clinical diagnosis.

If you don't see a LLMD - then you won't likely get a lyme diagnosis.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

nberg
Regular Member


Date Joined Mar 2016
Total Posts : 217
   Posted 12/6/2017 8:31 PM (GMT -7)   
I do agree 93 is specific for Lyme I had that as one of the bands on mine. If they ran a western blot then does that mean the ELISA test was either positive or equivocal? It looks like the 1.11 must be the ELISA. If that is the case then LLMD's will find you as positive.

Best of luck on getting the care you need to get better,

Nick

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9226
   Posted 12/6/2017 9:28 PM (GMT -7)   
Welcome here MarkFW. Sorry you suspect lyme disease. I hope you have better luck with your new doctor in a conclusive diagnosis.

Mark FW
New Member


Date Joined Dec 2017
Total Posts : 12
   Posted 12/7/2017 7:35 AM (GMT -7)   
Thanks everyone for the feedback.

Seeing a LLMD in Chicago today.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9226
   Posted 12/7/2017 8:52 AM (GMT -7)   
Mark, keep us updated. Everything crossed for a good doc visit.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2197
   Posted 12/7/2017 9:59 AM (GMT -7)   
I recently listened to IGeneX sales rep talking at Lyme conference (/www.youtube.com/watch?v=0X09pYet3KA). He states that they have been having a lot of viral cross reactivity with 83/93. He did not state which viruses, but I'm guessing the usual - EBV, HHV6, etc. I was actually very shocked about some of the things he says. Just something to keep in mind.

Post Edited (k07) : 12/7/2017 10:05:56 AM (GMT-7)


Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 557
   Posted 12/7/2017 12:10 PM (GMT -7)   
Mark - are you going to Dr K or the other one? I'd be interested in your experience. I've been seeing dlc. You got in quickly which is great!

I was Igenix IgG positive (39 and 41, with 31 Indeterminate) and IgM Neg.
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

Mark FW
New Member


Date Joined Dec 2017
Total Posts : 12
   Posted 12/7/2017 2:54 PM (GMT -7)   
Update:

So I was Dr. B in Chicago today.. I have to say I have mixed feelings.

Clearly a unconventional doctor,, which is OK.. but I do have some concerns. It appears his standard protocol is to contact all the doctors I've see to get there results. However I had records for everything.

He wanted to see my Endocrinologist test and it does have a high Norepinephrine reading 84 (out of 16-71 range) and did not really want to peruse Lyme until I had a follow-up with this last specialist.

He not outright refuse to pursue Lyme testing any further but he seems reluctant any only after all other possibilities were crossed off. However I sensed it was a path he did not want to go down.

This is on his web site.

While I am no longer a member of ILADS, I still work with patients who might have Lyme's related
symptoms, on a carefully conceived protocol, and that is on a case by case basis. Oftentimes, I like to
look at a case from a fresher perspective and have to do more background work and ordering more labs
tests at different labs who deal with Lyme and other types of infectious processes. Sometimes I will call
in an Infectious Disease specialist for further support.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2197
   Posted 12/7/2017 4:05 PM (GMT -7)   
Is he covered by insurance? I'm not sure about him. I like that he wants to thoroughly check you out, but the part about calling ID for further support raises a red flag.

Mark FW
New Member


Date Joined Dec 2017
Total Posts : 12
   Posted 12/7/2017 6:27 PM (GMT -7)   
Yes On insurance.

Not sure When or if He calls. I just signed a lot of papers saying he needed contact info and acccess.

Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 557
   Posted 12/8/2017 9:04 AM (GMT -7)   
I PM'd Mark separately. I saw this doc over a decade ago for thyroid. The good point was that he switched me from synthetic to natural thyroid supplement. The bad is that his methods drove me from hypo to hyper and I was having heart palpatations, and he wasn't concerned! I went to him about 6 months. He was always distracted, unorganized and one time he had me follow him across the street so he could get his breakfast! I have no knowledge of his experience with lyme, but I would not seek him out for any reason.
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps
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