Left the forum for a while, any new therapies? Any success with Stevia?

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SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 219
   Posted 12/6/2017 7:13 PM (GMT -7)   
Hi everyone,

I haven't been on the forum for about 10 months, I wasn't having any success with Lyme treatment so I began to doubt that it was Lyme... However, everything still continuously points to Lyme. I think I was a little in denial.

Are there any new "big" therapies I should know about? I've heard all of the rage over Stevia... Has it worked for anyone?

P.S. All blood tests still come back normal... This seems so strange to me. With the exception that Free T3 has consistently been low and has gotten lower, but MD's tell me this is nothing to be worried about (uhm, then why is it even tested for!?)

Annnyyway, hope to hear from everyone, thanks! tongue

Katie
Diagnosed with BB in Oct. 2016 (iSpot Lyme blood test)

Main symptoms: Depression, anxiety, joint pain (rheumatoid), hormonal imbalances, chronic and profound fatigue, multiple chemical sensitivities, vertigo, memory loss, brain fog, tinnitus.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9211
   Posted 12/6/2017 9:16 PM (GMT -7)   
Katie, good to see you again. Sorry you have not had any success with your lyme treatment. Sometimes it takes a few different approaches to find what works.

I flunked my first lyme test. The Elisa with my GP. I thought I was crazy and imagining all those symptoms.

All I can say is Never Give Up! I just kept on trucking until I found answers that satisfied me.

atxlyme
Regular Member


Date Joined May 2017
Total Posts : 34
   Posted 12/6/2017 9:42 PM (GMT -7)   
Been taking stevia for months now and no noticeable change with it for me

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27943
   Posted 12/6/2017 9:49 PM (GMT -7)   
SnowAngel - you've most likely heard about the Persister drugs that are being used?

Dapsone, Daraprim are two - sorry my mind is drawing a blank right now.

There have been a few discussions on here about them.

Both Dr H and Dr J are prescribing protocols based on persisters for patients who aren't getting well - who have not made progress or have plateaued.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 52
   Posted 12/6/2017 10:23 PM (GMT -7)   
What are people seeing with these two drugs? Do they compliment or replace things like doxycycline?

SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 219
   Posted 12/6/2017 10:35 PM (GMT -7)   
PeteZa-
Good to see you too! I originally tried the herbal approach and found that I have way too many psych symptoms with those that were unrelated to die-off. Did you ever get tested on the western blot or Elisa again after failing the first time? Thanks smile

atxlyme-
Sorry to hear that sad

Girlie-
I may have briefly heard of persister drugs... Are they working well for Chronic Lymie's with resistance issues? I am really scared of antibiotics because I already have some digestive issues and either SIBO or Candida or both. I've also heard that they can cause nerve issues. Either way, antibiotics seem like the best option for me. I think I remember that you've been on abx for a few years now, right? Has your Lyme gotten any better in the past few months?
Diagnosed with BB in Oct. 2016 (iSpot Lyme blood test)

Main symptoms: Depression, anxiety, joint pain (rheumatoid), hormonal imbalances, chronic and profound fatigue, multiple chemical sensitivities, vertigo, memory loss, brain fog, tinnitus.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27943
   Posted 12/6/2017 11:45 PM (GMT -7)   
here's a recent thread about persisters.


I think it's still quite early to know if they're going to be a game-changer.


/www.healingwell.com/community/default.aspx?f=30&m=3942041&p=2
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4441
   Posted 12/8/2017 1:15 AM (GMT -7)   
bvt is effective . http://www.mdpi.com/2079-6382/6/4/31/htm

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2195
   Posted 12/8/2017 7:59 AM (GMT -7)   
Bactrim is also a persister drug but likely not as strong as dapsone, etc.
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