I've been on Buhner's bart and babesia protocol now for 6 miths. I quadrupled the doses 5 months ago and take things 4x/day inated of 3. I have seen zero change in anything. Absolutely zilch
I tried lyme specific herbs many times. Andrographis, gse and astragalus had no effect. Cat's claw and red sage ramped up my brain inflammation and i was waking up in fields in the middle of the night so i had to stop those.
I'm going to see Dr M in D.C. in January so i assume I'll get abx but will that all of a sudden be effective if Buhner's is completely futile for me? I'm thinking I'm amongst the 5% who have no effect from the herbs which is a real bummer
To answer your question, I don't ever give up on treating my kids. I have had many epic failures in both mainstream and alternative medicines. When we fail (eg something doesn't help), we move on to the next thing.
My best advice is to NOT give up and keep trying. If something doesn't work, try something else or add something different. Think outside the box. My Kid#1 would have never ever healed had we followed mainstream advice (which failed to help him in any meaningful manner).
Trust me - I get it. It's beyond frustrating. Really, it is.
But when things aren't working, then you need to think of other things that may be limiting your recovery. Pirouette, moderator here, has an excellent post about
considering other things that may be affecting your recovery. Things like mold, heavy metals, methylation genetic pathway issues, yeast, etc...
I know somebody who has failed years of abx and is extremely sick (too sick to work). It's really sad. But this person has tested positive for mold, so now this person is changing his protocol. Maybe that's the missing link for that person.
My kids (especially Kid#1 and Kid#2 too) are extremely difficult to treat. It took me several years to get Kid#1 well, but he is well now. It was a very long battle, with a lot of failures. The only reason we succeeded is because I never gave up, kept researching, and trying different things.
I personally have had a difficult time with some herbals, as they seem to just cause inflammation for me instead of taming it down. I recently rent off the herbals and feel better off them. I'm still trying to figure that out.
On the flip side, my two oldest kids are abx failures. They failed to get well on abx, despite years of abx and multiple ones. I switched them to herbals. Kid#1 finally healed with HBOT (and herbals). Kid#2 is much better than he ever was on abx, but he still is not well (but functioning and better, still struggling though).
My point is... clearly, we are all different. I share this with you because of the four of us, we all have different paths (although somewhat similar, we are also very different).
Your post reminded me of Kid#1's journey. It felt like nothing helped for years (yours isn't nearly as long!!!). So many failures. I believe there was/is something very dysfunctional about
my kid's immune systems, and what that is? I wish I knew. But for him, when we started the IV glutathione and Myer's Cocktails (we only did a dozen or two spread out), it was like it "woke" up his immune system. He started physically herxing whereas he was not physically herxing previously (physical herxing for him was flu-like symptoms - chills, fatigue, headache, really miserable).
Truly wishing you the best in figuring it out!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.